Did you say Pierre Robin Syndrome? my son is 15 months old and I have yet to come across another human that has this!!!! I'm so happy to have found your page in my fyp!!!!
2026-07-12 21:07:37
1513
janneke :
Are we allowed to ask questions?
Because if so: are you able to swim? And if yes how? And how does it work for other things like a shower or something? Like I close my mouth while I shower when I wash my face etc, but your tracheostomy doesn't have lips to close it temporarily...
2026-07-13 17:23:51
315
Patrick :
It’s the exact opposite of a choker
2026-08-02 23:36:03
3452
Zoe 🎀 (Cancer’s Version) :
My daughter is 2.5 and had her trach put in when she was 5 months. I showed her your video the other day and she said ‘same same’ and had the biggest smile on her face. 🥰❤️
2026-07-13 09:06:12
505
dash5458 :
Do you carry a spare? I would be so afraid that something would happen to it and wouldn’t have a spare. Thanks for sharing!
2026-07-12 21:52:01
1484
Rachel Hart :
what happens if water goes down it? like swimming work showering? does it have any effect?
2026-07-12 22:49:19
704
FEMINEM :
Actual question, how do you shower without risking getting water in your lungs? Thank you so much for explaining btw I always appreciate learning something new 🫶
2026-08-23 04:15:14
47
Tiffany_♡MD♡_Gabriel :
Thank you for sharing and educating us. ❤️🥰
2026-07-12 21:42:59
353
Werisss!🍋🪽🩷⭐ :
how do you swim?
2026-07-12 23:18:39
14
Nikki Boling26 :
How do you eat??
2026-08-31 00:04:57
1
John Martin :
I have a question coz u have that does it affect wen u eat or drink ie if u drink does fluid come out
2026-07-12 19:16:48
20
Isabella :
Thank you for the awarness!!🤍
2026-07-12 18:36:26
102
AJ :
The fact they did this 35 years ago makes it even more fascinating. Do you need to replace the device often?
2026-07-16 18:42:30
127
Deb Oliver :
you have the most beautiful eyes x
2026-07-13 05:05:53
40
Letty 💕🇧🇷 :
For how long can you without the tube?
2026-07-13 00:45:13
46
karimmagedkassem :
How do you swim with it
2026-08-22 14:12:20
5
Bieber :
Ur so strong ❤️
2026-07-12 18:51:08
43
CharLEGH🦩⚔️🖤 :
Can I ask, because I'm not informed on anatomy, but does it affect how you eat?
2026-08-21 09:29:13
10
Girlsjustwanttohavefun :
As you’ve grown up has the size of the device changed? Have you had to have it updated since being a child?
2026-08-18 15:36:56
7
bho :
u should get a green ribbon
2026-08-22 17:23:42
6
Doorway💙💨 :
Is the little whistle sound when you inhale from the tube?
2026-07-14 07:37:44
7
wadeybb🍉 :
may I ask how often you need to clean it? you rock it by the way ❤️
2026-07-12 20:20:32
33
🍭🩷🦄👽🌸👾🩵 :
how do you eat? im just asking
2026-07-25 00:44:56
7
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