Erin Rackham, PhD
Region: US
Monday 13 July 2026 18:00:39 GMT
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Joelle Friend :
Do you recommend anything for insomnia with MECFS?
2026-07-13 18:18:13
2
Max, Munsted + Mosy the cats! :
Can you say more about Mestinon crashes?
2026-07-15 15:38:05
1
yess :
How are you getting such small doses of naltrexone? Compounding pharmacy?
2026-07-16 17:33:11
0
Ro Kay :
what did the nicotine patch help with?
2026-07-14 04:19:37
0
Devindean123 :
Have you tried HBOT? Methleyne blue? Red light? EBO2?
2026-07-14 03:58:50
2
Darla :
I’m starting LDN this week. How long and what dosage until you started seeing improvement?
2026-07-14 03:45:22
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lastnightwithnicole :
What did you feel was the most helpful with fatigue and PEM?
2026-07-13 22:16:36
2
Audrey Frampton :
I wish I could take Naltrexone. I had an allergic rxn.
2026-07-13 23:30:42
1
HFS :
This is awesome, thank you for sharing! I’m so curious about what you said re: taking LDN twice a day?! Can you explain. I take it in AM 5mg (tried it in PM for 6 months didn’t work until I switched to AM) but I’m fascinated that you take it twice a day. I’ve never heard of someone doing that. Did you initially try once a day and move to twice? I would love to know more. Thanks!
2026-07-14 06:33:42
2
Annmarie Pratt :
what team of docs would this be supported with? gastro? cardio? immune? etc?
2026-07-14 20:12:38
1
Sandie-Joy! :
What didn’t you like about the Hydroxizine?
2026-07-13 18:06:49
1
❤️🔥Frank❤️🔥 :
thank you so much for this summary!!! did you ever try pregabalin? if so I would be curious about the experience.
2026-07-13 19:17:15
1
Mentholmelancholy :
Niccotibe just scares me because supposedly inhibits bone healing but everything hurts so idk
2026-08-11 18:23:15
0
aubrey | offsetprintshop :
I wonder if I should increase my LDN cus I’m only on 4mg at night and still have daily pain. Didn’t know you could take it 2X a day! Does it cause drowsiness?
2026-07-14 03:44:42
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Samantha Golden :
Which kind of doctor did you go to about LDA and other medications to address your MECFS symptoms? I'm on a lot of the same medications as you (LDN, proponolol, etc) and have been looking into LDA for my PEM and sensory issues but don't know which kind of doctor to seek out
2026-07-15 00:17:22
1
BR(A)NDIN :
just started LDN for hashimoto's I am really hoping it helps started at 1.6 and going to increase in a week or 2
2026-07-13 21:56:39
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Trevor :
Have you tried any low dose SSRI like fluvoxamine?
2026-07-13 18:24:03
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Ashley :
What didn’t you like about singulair?
2026-07-14 17:19:51
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Joelle Friend :
Wait how can you get tested for levels of mitochondria? Wha5 test is that?
2026-07-13 18:20:13
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nicolameikle0 :
Love this post ♥️You appear to have been exactly like I am now! Just been prescribed CS oral then it’s to be LDN then Abilify xxx
2026-07-13 18:09:53
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marmag :
What kind of doctor are you seeing ?
2026-07-13 22:34:14
1
PAMMI COUNCIL 💅🏽⛲️ :
When you say mitochondria - levels - which levels?
2026-07-28 16:38:03
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Penny Anne Marie :
Did you build up to LDN twice a day? I’m taking it once and I like the idea of titrating up more with this than yet another med
2026-07-28 17:15:58
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Anything, But Mild🔥 :
I could not take metoprolol. It made me feel worse. I ended up getting more reactive to foods when I was on it and I even cut the lowest dose in half. I’m being evaluated for MCAS now. Apparently, you use beta receptors to help fight mast-cell reactions, so beta blockers can reduce your body’s ability to fight back making reactions more noticeable (according to AI). Still need to wait to talk to my doctor to confirm that.
2026-08-24 21:31:00
0
L :
Ldn worked great for about two years and then just stopped working for me. I tried taking a day off a week. Helped once or twice and then made me feel worse. Sigh!
2026-08-03 15:44:30
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