@alina.sara1: Living with CRPS is a never ending battle against my own body. I live life in excruciating full body pain 24/7. Even when “I look ok” I am experiencing intense pain but I am able to mask it really well. My CRPS is intractable pain so no mèds or treatments work to reduce the pain. I have spent the last 6 years living (surviving) like this. There hasn’t been a second that I have not experienced pain. Everything I do has consequences of pain, even just existing. I push through immense pain everyday but every night my body goes into a huge flare and I am left screaming in agony. There is nothing we can do but struggle through it. We have these videos to show my doctors the reality of my pain and what this disease does to my body. Despite it all I will always continue to fight because life is still worth fighting for even on the worst days. If you are facing your own battles please keep fighting, you are not alone🧡 If you want to learn more about CRPS I have lots of videos on my page explaining what CRPS is & how it affects my life. . . #chronicillness #raredisease #crps #chronicpain #chronicillnessawareness

Alina

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Region: US

Tuesday 14 July 2026 00:31:32 GMT