@lilmssunshineeee: We’ll see if I can get an appointment with @drliu_endo_surgeon #endometriosis #endowarrior #endometriosisawareness #womenshealth #chronicillness
Girl- please see Dr. Spivack in South Jersey. She is with Rowan / Virtua.
2026-07-16 20:26:57
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Christine :
The same hospital I went to 😅 I lost 35 lbs in 3 months, I was vomitting for 11 days in a row during the month.. I was SICK SICK. I went to their ER to be told it was CHS.. the scan came back I had internal bleeding everywhere and a 6cm mass of endometriosis in my bowels BLOCKING IT. I was set up with one of their obgyns that assured me she could help me with my case, opened me up, took out a little bit, left my organs GLUED together and the massive mass in my bowels still. I found a doctor who's an excision specialist in the area and when he saw what she did he was so HORRIFIED, he called her office ! So that being said i am SO sorry you were treated that way.. please contact Dr. Jordan Klebanoff at mainline health in newtown square he works out of lankenau and bryn mawr hospital. You will be happy you did I promise
2026-07-16 11:22:08
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articulatechaos :
As a fellow endo warrior. I just want you to know that you are seen and you are not alone. I am so sorry that the medical field is so messed up and ignorant. I’m in the same boat. No help. But you are seen and heard. 💜
2026-07-17 17:32:54
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Halei Blauvelt💛🎗️ :
Please look into Dr Luke Chatburn in Boston🎗️💛
2026-07-17 16:20:09
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TiffAny :
There’s a specialist in the Philly area Dr klebanoff I live like 1 hr 40 mins away but I will be traveling there to see him I’ve heard he’s a really great Dr and he will be doing my surgery next month so just possible Rec for you so you may not have to travel far
2026-07-16 09:00:35
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Foxhall Farm Training & Sales :
I’m so sorry that this happened to you. I’m experiencing issues with the the healthcare system, more specifically related to my neuro issues. I have however had a wonderful experience with Dr Olivia Higgins for my endometriosis. She’s in Rochester, NY, not too far from Philly if you are able to travel for her!
2026-07-14 21:49:16
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Chey :
I am so sorry you’re going through this! The providers you seen are most definitely medically gaslighting you! It may be helpful to seek different medical care! I am not a medical professional however I had endo all over many of my organs including my kidneys, ureter, bladder, bowels colon, diaphragm, and so many other places, your pain is not all in your head! From what you describe it sounds like it has grown onto or very close to many of your other organs! (I say had because I just had excision surgery.)You do not deserve to be treated this way! Every endo warrior experiences their symptoms differently however your/our experiences are still valid and deserve compassion. PS I was put into a medical menopause. It was amazing for symptoms relief temporarily. Once my insurance stop covering it I was in worse pain and had wayy worse symptoms than prior. My endo also grew rampant during that time. My surgeon said this was the most endo she has seen in me and it should have been less than she had seen prior due to the menopause I was in. Wishing you so much compassion and routes for symptom relief!💛
2026-07-14 20:52:52
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sittinginlimbo :
I was going to ask if it was Penn. I go to Jefferson.
2026-07-15 12:54:09
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I❤️Jesus :
Idk much about endo if they go in and scrape all of it out and since you have no female parts it won’t grow back right?
2026-07-15 17:29:12
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Amanda Pierman :
I went throu sooo many doctors till I found this guy who was a OBgyn specialist, he took one look at me ordered a ultrasound and had me in surgery 2 weeks later. I had multiple ruptured cysts, flared up cysts, just a mess. No one believed me until him and it took a year to get to him! I’m so sorry ur going throu this.
2026-07-14 23:28:53
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L I L L Y 💄 :
You know America is not the only country that exists in this world, look for treatment outside of USA it’s cheaper there’s good drs in Europe and South America too
2026-07-15 02:20:44
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Ashley Shirelle :
Omg they said the same thing to me .. I was on it for 6 months and it did nothing but stop my period ! You most likely have a frozen pelvis .
2026-07-14 20:30:52
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HeartofThorns :
same girl.. same! struggling with endo since 2006. many surgeries through the years, feeling stupid for going to ER. I do have an appointment with Tufts medical group on 28 July
2026-07-15 01:16:43
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Trig ❌️ Girl ♒️ :
I am so mad that, in 2026, women are still not being believed or properly treated by doctors. I am so sorry you have to go through this. and don't get me started on the health care system that will put you into debt in order to get the treatment you need.
2026-07-15 15:09:29
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JoJo🎗️ :
You’re not alone. I’ve been to 6 primary doctors, 3 gynecologists, 2 back doctors and 1 pelvic doctor. For only the pelvic doctor to listen to me. She put me on Orilissa that treats pain from endometriosis until she gets me in with a new gynecologist that’s treats endometriosis as well as possible hysterectomy as well…
2026-07-15 00:58:15
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🧀💨 :
I'm so sorry you have to deal with that... shared this
2026-07-14 21:42:42
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Carmen Mata :
Struggled for 30 years not knowing what I had. Many doctors told me my pain was normal. I’m still learning to forgive myself for trusting them. I feel like trusting them caused such a long delay of 30 years. Just had exploratory surgery with a specialist at 45 years old…..they found Stage 3 endo. Yes, I’m in medical debt. I feel your pain. Sorry this is happening to you.
2026-07-15 11:28:53
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TinkAMom :
im sorry... none of my friends or family understood. they called me a liar
2026-07-15 00:37:38
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wolfe :
I was told I was lying and I went off on EVERYBODY 😂🤷🏻♀️😂
2026-07-15 18:21:25
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not here :
You want an endo surgeon that specializes excision not ablation. The ablation surgeon just continues ablation and never does the exploratory surgery you need. you may need to go to a larger city for ones that accept insurance. this has been my experience at least. I hope this helps you in some way, this journey is awful and I wish it on no one.
2026-07-14 21:54:01
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kayLEEbee :
I was told a couple weeks ago I should try ibuprofen. Holy shit idk why I haven’t tried that before 😒
2026-07-15 01:27:26
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Kirsten Trout :
Dr. Kate Prowell with Wellspan. She actually listens.
2026-07-15 13:52:55
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Kristin Ellefritz :
I'm sorry you're going through this! My story is similar to yours. I had to quit going to doctors and have just dealt with the excruciating pain because of medical debt. I asked a gyno if it was possible to have endo on my left kidney. her exact response, "It's possible, but not probable." 😡
2026-07-15 02:59:49
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carleeanne3 :
If you can go to Pittsburgh for stuff there is an endo clinic and I got an appt within a week online. I have surgery consult scheduled and it’s been a relief after having endo since I was 16 and no help even with the diagnosis. Prayers!!!!
2026-07-15 09:29:12
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lisa Parsons :
Pennsylvania is the worst state to get help for pain
2026-07-15 17:48:05
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