Dr. Grace | hEDS, pelvic floor
Region: HN
Wednesday 15 July 2026 18:53:09 GMT
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Jennifer :
I don’t but that’s only because they had to remove my uterus and make a bladder sling when they were fixing both my prolapses after my uterus and bladder tried to fall out (literally) after childbirth. Saw a pelvic floor therapist before we realized that wouldn’t help in my extreme case but I strongly recommend seeing a pelvic floor specialist. If I had done that earlier I may have avoided surgery.
2026-07-18 15:01:21
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Rain_Queen :
I had a prolapsed uterus and a prolapsed bladder. I had to have a hysterectomy and reconstructive bladder surgery. Two months after I had my first persistent, genital, arousal disorder, flareup. It is the worst out of everything.
2026-07-19 02:46:12
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Sol | soldier 004 :
my flavour of pelvic pain is constipation for several days and then mad diarhhea
2026-07-18 10:39:24
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☔️ Rain :
I have adenomyosis. I had never heard of it before my diagnosis. After my hysterectomy the pain in my hips decrease 50%.
2026-07-15 19:14:25
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Josephine Fontaine :
I get terrible pain in my public area right where my hips split. Hurts to walk and exercise. I had it super bad during my last pregnancy and it’s just never gone away. I was just diagnosed with hEDS last week.
2026-07-15 22:03:26
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mndr. :
do you have any advice for someone experiencing subluxing finger joints? My fingers have started to sublux at the base of the joint in the past couple months after never having this issue before... right now my thumb is definitely out of place and has been for about a week (you can see the sinking at the base of the thumb) and I have no idea what's caused it or how to address it! thank you 😭
2026-07-15 20:41:24
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LittleLotusDesigns 🇨🇦 :
The diagnosis is the problem
2026-07-16 17:40:52
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Jeannie bean 🏳️🌈💕✨ :
I have HEDS. I have so much pelvic pain. I had a hysterectomy in May for adenomyosis and endometriosis. I also have pelvic congestion syndrome and venous insufficiency in my legs. My body is a mess 😭
2026-07-16 03:29:11
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NimisCogitare :
What if endometriosis was the body’s attempt to stabilize pelvic organs with unstable connective tissue?
2026-07-16 12:07:36
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upsidedown.eevee :
Im going to a specialist on monday regarding a hsd/eds diagnosis. Any recommendations for advocating for myself and symptoms to focus on?
2026-07-15 23:10:51
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Piggy Wiggler :
I had doctors shrug at me for years about this and just showing up to say that Botox for pain was life changing, just in case it helps someone else.
2026-07-15 19:43:59
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LadyLeBlanc13 :
I just started pelvic floor PT thanks to you! So far it’s going great and I’m learning so much about my body 😅
2026-07-16 14:44:53
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Karlee’s Jungle :
For me it was May thurner syndrome but I think I may also have endo 😭
2026-07-15 21:57:02
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Lisa Kunsman Cummings :
Idk. I have hEDS and I don’t have pelvic pain. SI joint and hip pain is another story
2026-07-15 21:51:01
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🦓JustJessica🦓 :
I gained 25 pounds after the injection,
2026-07-15 23:28:53
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Donna :
What books would you recommend on hypermobility eds?
2026-07-16 14:53:57
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Tatted_Chameleon :
THANK YOU!!! 🙏🏼
2026-07-17 11:01:03
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🦓JustJessica🦓 :
My pelvic pain went away 100% for 6 months from an L5 steroid injection in my back! But it came back same time as my sciatica pain 😔 neuro doc is refusing to see me again because I have ehlers danlos. Eating increases my pain…Ive lost another 15 pounds 😭 I have no specialist
2026-07-15 23:28:01
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