@cjsmindfulmagic: I feel like I always hear people say, “I was diagnosed.” But nobody really talks about the chapter before that. At least I haven’t ran into it yet. The waiting, the blood work, the specialists (which I’m grateful I can even get to). Geez, and the self doubt. Theres the exhaustion of advocating for yourself while wondering if you’re going crazy because your body is screaming that something is wrong, but you still don’t have a name for it. I’m in that chapter. I’ve been told I have fibromyalgia, MCAS, I’m being monitored for an autoimmune disease, and honestly… I’m still searching for answers. Quite frankly I feel like I diagnosed myself and I need more answers. Someone who knows. I’m not sharing this because I want sympathy. I’m sharing it because if you’ve ever felt like the black sheep, like no one believes you, or like you’re fighting a battle no one can see… I want you to know you’re not alone. Maybe the silver lining isn’t getting sick. Maybe it’s that one day we’ll be able to look at someone else who’s terrified, still waiting for answers, and say: “I believe you. I’ve been there.” 🦋 Until then, keep advocating for yourself. Keep asking questions!! I can’t stress this enough. Do research and please… don’t suffer in silence. Someone out there needs your story just as much as you needed someone else’s.

CJs Mindful Magic
CJs Mindful Magic
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Thursday 16 July 2026 03:35:29 GMT
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storm.636
storm.636 :
I know exactly what chapter you’re talking about and I do believe you. Before getting a diagnosis for my gastroparesis I went 5 years with no answers feeling like a lab rat every month a new test with no answers. Terrified of eating or leaving my place cause I didn’t know when I was gonna get sick for hours on end. I do think the worse part about it then and even now is no one cause actually see it on the outside so no one believes you especially ones that supposed to be closest you or the self worth that tries to disappear when it flairs up. You’re not alone and ppl will believe you and you got one here.
2026-08-10 00:38:39
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courtneypoust111017
Courtney Poust :
You’re not alone friend. Reach out anytime you know this! It took me 6 years to get diagnosed with lupus. Now they’re looking into ms as well. 💜 keep fighting. Keep pushing for answers. Keep asking for testing!
2026-07-20 16:17:07
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animeeyez79
J.J. Bruccolieri Haas :
You are definitely not alone my friend, coming from a fellow autoimmune disease fighter who took years and multiple Drs to diagnose as well ... the road is not easy, especially when some of us have invisible illnesses and some of us are not good at advocating for ourselves 🥺 No one believed I was sick because I looked "healthy" and I was SO very young (12 at the time) plus I was on a professional dance team touring across the US...So the Drs thought there was no way I could be sick...They were so very wrong... I pray that you find an amazing group of medical care professionals that figure this out and get you on the right path to comfort and living your life to the fullest... It is possible❤️Sending you SO much love & light...
2026-07-16 17:03:40
1
shelbz201014
Shelby :
So proud of you and all you’ve done for yourself, I knows it been such a long hard road.
2026-07-17 12:54:19
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