Dr. Erin Nance 🇺🇸
Region: US
Thursday 16 July 2026 15:29:17 GMT
34780
6402
547
487
Music
Download
Comments
Dizz Juggler :
I gave my dentist a journal article about EDS and dental impacts. she actually read it
2026-07-16 16:01:36
482
Jenni :
I live in a rural area that is four hours away from a hospital with any sort of specialty, and nearly 9 hours away from the hospital, where most of my specialists are located. Every trip to the doctors office, the emergency room, the dentist, leads to an education session with me passing very important information onto the medical professional that I am seeing. It is exhausting. However, I cannot under any circumstance afford to move to the same state where my medical specialists are located. I am on disability, very fixed income, and my specialists are located in one of the highest cost of living states in the US. So instead, I am stuck in this situation on a (unfortunately) regular basis.
2026-07-21 09:09:58
0
VanTechno :
I have Long Covid, we are all just figuring it out together.
2026-07-23 01:56:41
0
Left_Mom_🐾 :
Thank you! I snapped at a doctor who had seen me for 10 minutes during a hospital stay when he wanted to change a medicine that I had been stable on for 10 years to a different one based on his “preference.” I asked him why he would do that, and he condescendingly said “I’ve been working in medicine for 25 years…” I snapped “I’ve been living in this body for 45 years, Chet!”
2026-07-17 05:41:07
141
Sarah :
Nothing like seeing the ER doctor google Marfan Syndrome.
2026-07-21 16:00:22
3
lquinn8 🇨🇦 :
So many times. So many doctors. Lyme disease. Lipedema and treatments. Bartonella. And more diseases likely being missed - hEDS, MCAS, orthostatic intolerance.
2026-07-22 02:49:00
1
cheetodust :
The biggest progress in medicine will be the day doctors stop acting defensive and start actually listening to their clients.
2026-07-22 08:15:42
2
danab :
You get a virtual standing ovation from me every post! Please come to Australia to educate our doctors too!!! My conditions: hEDS, enfometriosis, pudendal neuralgia (post PNE), (subsequently) hertonic pelvic floor, SIJ dysfunction and now (most probably) CCI after an MVA... When many doctors feel out of scope or doubt here, the good old FND or "stress" comes into conversation despite all symptoms being perfectly accounted for with my conditions
2026-07-22 01:04:52
1
Robyn Whiteman :
I had a total knee replacement in my left knee. Since the surgery it’s been stiff & swollen. Went to back to the doctor numerous times and not just in that 1st year after. His response was “there’s nothing wrong with this replacement & you must be one of those people who have to take advil every day for the rest of your life.” He dismissed any and all difficulties I was having. Proceeded to go to other orthopedic drs to see if they could figure out the problem. Were the screws loose, was it misaligned. Nothing out of the ordinary came through. After years of researching, I think I have the answer. I’m allergic to the nickel in the replacement. I can’t wear nickel earrings, I’m highly affected by it. While there is no test to definitively determine if this is the case and it is very rare, even for those with nickel allergies, it is possible. My option is to have another TKR with non-nickel pieces. It’s on my agenda.
2026-07-18 11:54:31
7
Valkira :
I was misdiagnosed with Fibromyalgia. The rheumatologist was explaining it to me and I countered his explanation with a long list of differential diagnosis. This was in the 1990's. He asked me how I knew more than he did about this disease. I explained to him that I was part of a group helping researchers around the globe trying to find the answers about that particular condition. We spent hours online talking to diagnosed people, reviewing research, combing through emerging studies and more. I was in college at the time to become a medical researcher. I knew what was wrong with me wasn't fibro, as I sat with hundreds of people who suffered immensely from it, and my symptoms were very different. Turns out, I have HeDS, MCAS and also a brain injury.
2026-07-16 17:52:49
44
madradiation :
My brother is a rural doctor who seems to always tell family and friends to lose weight. But when I got diagnosed with MCAS, he took it to heart, researched it, and figured out THREE of his patients (
2026-07-16 20:46:31
168
Dreamydee :
I have renal tubular acidosis. When I was a child\nVery few of us survived. I was one of the lucky ones. I was constantly receiving\n Intravenous off potassiumwhich of course, burnt out My veins. When I was twenty two I met a doctor who said he was gonna take me apart until he discovered what was going on and how to treat it. He did and it worked. The one drug that worked was spiraonolactone which is a directuretic that keeps the potassium and sodium from leaving the body through the kidneys. I am 77 years old now.And I still have to tell doctors that a truckload of bananas would not raise my potassium levels nor would the potassium pills.
2026-07-22 04:43:09
5
carrrrlz :
lol when i told my dentist i suspect i have EDS which is why she always has to give me double the lidocaine, it takes twice as long to set in, and my jaw hurts for days even just from a general cleaning she was like “oh cool.. does your elbow bend backwards then!?” 🥴 she’s a great dentist and she means well but i was shocked by her total lack of knowledge on how EDS should impact her procedures
2026-07-20 14:54:23
5
Rhonda :
I actually went to an urgent care once and the Dr actually said “You know your body better than me, what works best for you?” I wanted to die it was awesome!!
2026-07-18 18:08:05
34
Goldenboy.Scottie :
My cardiologist, who I was sent to to help diagnose and managed my POTS didn’t know that some people develop POTS after having COVID 🤦🏼♀️
2026-07-21 20:44:33
5
shannondmd :
I am a dentist with hEDS so, I get it. We use pediatric sized mouth props, sometimes I have the patient premed with anti-inflammatories and we are very gentle with the soft tissues. As far as anesthesia, I have not had issues yet.
2026-07-17 15:05:03
37
Monnie :
Endometriosis is one disease that even my OBGYN doctors still have so many misconceptions!!!!!
2026-07-16 23:52:58
37
OrangeZebra :
Many docs don’t understand Addison Disease. I had a doctor while inpatient try to discontinue my steroid medication because it could make me more prone to infections. The steroids I am on are literally keeping me alive without them I would have no cortisol on my body to tell my body how to function aka keep me from becoming unalive
2026-07-19 02:38:55
5
mamaprisma :
My dentist doesn’t seem to get how chemo and the resulting dry mouth is affecting my gum health. In theory she and her hygienist do, but, I don’t think they truly understand how sandpaper dry my mouth is all night long. Dry like paper. No exaggeration. Bone dry. Eyes too. Stuck together from dryness, not sticky, but completely dry.
2026-07-17 06:14:57
8
ladams15268 :
I hadn’t been diagnosed yet, but strongly suspected I had primary aldosteronism. I left my PCP who dismissed everything as anxiety, and started fresh with a new doc. I came in armed with medical journals and highlited lists of symptoms, BP logs, and pictures of how my body had changed over time. She was skeptical, but agreed to look into it. I came back braced to have to argue my case and was shocked to find out she had actually read up on the latest on the condition, believed me, and had researched correct testing protocols. I literally cried because I finally had a doctor on my side. I few short months later I was officially diagnosed. I’m now 1 year post adrenalectomy and have never felt better. Finding a doctor just willing to listen was everything.
2026-07-17 15:48:13
11
coriander.png :
I have Fibromyalgia, HSD, POTS, ME/CFS, and Long Covid. I was pushed to do physical therapy repeatedly despite talking about my how it was making me worse due to my ME/CFS. I’m currently functionally bedbound (~90-95% bedbound).
2026-07-18 18:06:38
12
Mandolin :
My Rhuemy actually told me I knew more about my RA than he does. 😳
2026-07-16 16:16:20
27
beckytonkmom :
Your Dental Assistant is more knowledgeable about ED and Red hair. I am a dental assistant and let me tell you how many dentists think the red hair gene is a joke.
2026-07-17 21:28:59
5
🍉KiaraInThePark🍉 :
I said to my sons paed…. i think Ive discovered in conjunction with Adhd & Pots that I may have MCAS and EDS, hyper mobility…..(i can turn my feet backwards) - and i think he my son is on the same trajectory. He dismissed me, laughed, said its rare and to stay off of tiktok and its another TikTok trend. (dude, im sitting uere because I diagnosed myself with adhd & pots on tiktok, and then formally diagnosed by a cardiologist!! MY SON IS HERE BECAUSE OF TIKTOK AND YOU 👉🏼 HAVE FORMALLY DIAGNOSED HIM!!!!! so which one is it BUD 😭
2026-07-20 02:19:13
5
AJ Hansen :
I get it and I’m sympathetic to it, really I am, but it’s so exhausting sometimes too. If I’m this frustrated I can’t imagine how frustrated a doctor must be.
2026-07-16 15:39:45
52
To see more videos from user @littlemissdiagnosed, please go to the Tikwm
homepage.
