There’s a really interesting study that presents a theory called “the connectivome theory” which basically suggests that autism is linked to connective tissue disorders and actually a whole body disorder rather than just neurodevelopmental. The statistics show CTDs are closely linked with autism (although I have no idea where they found that statistic specifically about keds)
2026-07-20 15:37:14
2
ehlers.samlos :
I think that’s closer to the actual statistic (albeit potentially underestimated) on autistic individuals having Ehlers-danlos syndromes/hypermobility spectrum disorders as a whole, NOT kEDS 😭
2026-07-19 20:17:45
263
Jack Patric :
People just get on this app and lie
2026-07-19 17:34:21
77
tdawg563 :
Ppl love to be like “if you have autism or adhd you prolly have EDS” as if that’s the originating factor of EDS. No. It’s the opposite. If you have EDS you prolly have adhd or autism or both
2026-07-20 15:14:09
2
Maxi-Yadriel :
All the misinformation out there abt EDS makes me genuinely more frustrated than all the times I've almost died or faced major health issues as a result of EDS
2026-07-20 03:37:11
27
floatawhile :
I think they were thinking 30-40% of people with HEDS are autistic.
2026-07-19 20:38:25
74
Percy :
stop 💀 why is there so much EDS misinfo out there??? I had folks trying to diagnose themselves on my post talking about “omg i have these!!” Girl i have vEDs.
2026-07-20 13:06:27
8
Kimi 🎻🌈🦓 :
Ni, Xiaolin et al. “The first case report of Kyphoscoliotic Ehlers-Danlos syndrome of chinese origin with a novel PLOD1 gene mutation.” BMC medical genetics vol. 21,1 214. 31 Oct. 2020, doi:10.1186/s12881-020-01154-3
2026-07-19 17:26:43
49
Chandler 'Bada' Bing :
They made the numbers up for dramatic effect
2026-07-20 11:58:22
0
John TikTok :
okay well did you know that at least 45% of all people with bubble guts have at one point consumed an entire galaxy and are also Norwegian? didn't think so, check and mate
2026-07-19 17:38:19
95
Giusiana Prosser :
The misinformation out there is more painful than my chronic illness at this point
2026-07-19 20:14:58
11
🐓🦴That Bone Bird 🦴🐓 :
Yo ultra rare disease gang I got APLAID and sincerebellar ataxia type 42
2026-07-20 02:23:10
2
Fang🧩🌀 :
What in the world, where did they even pull that number from?!
2026-07-19 23:08:48
14
Mel___ :
I thought this was about those shoes
2026-07-19 22:43:57
2
asher 🚀⚙️|🥩📼 :
This has GOT to be s typo right?
2026-07-19 23:39:14
1
┈┈┈┈․° Doll / Rot °․┈┈┈┈ :
I thought this statistic was like for hEDS not this new one I am hearing about (I must research it now i am curious) but idk I have an unreliable memory
2026-07-20 10:33:51
1
Jessica :
What were your symptoms , me and my drs wanna figure out if my spinal shit is just a coincidence along side my other type of Eds or if I need genetic testing 💔
2026-07-19 21:56:21
2
Lex Balm :
Dropped in without context and thought we were talking about tennis shoes
2026-07-19 21:06:03
1
Just.em.brace.it :
Retweet 🗣️
2026-07-19 17:51:46
5
️ :
people just be coming on to the internet and lying 😭
2026-07-19 18:04:50
2
user8372211984674 :
bro took the EDS and scoliosis stats for autistic people and merged them for a super rare condition
2026-07-19 18:24:35
14
finn ✿ :
me when i lie and spread misinformation
2026-07-19 17:44:28
5
brette crane (like the bird) :
online hEDSers vs realizing that hEDS isn’t the only kind of EDS. also hEDS and hypermobility aren’t the same thing. this person is just so far off it’s not even funny.
2026-07-20 02:12:29
2
miskaszyszka :
Their statistics pulled out of a bum hole... 🕳️
2026-07-20 00:06:21
1
🧂Granny🩶 :
Me when I pull stuff outta my ass 😭
2026-07-20 11:42:48
0
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