@kimievieee: Respuesta a @thegrassisbleeding ☭ lol source: “trust me bro” #disinformation #medicalmisinformation #kyphoscolioticeds #stoplying #mewhenilie

Kimi 🎻🌈🦓
Kimi 🎻🌈🦓
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Region: US
Sunday 19 July 2026 17:19:17 GMT
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drewtylerxx
Drew Tyler :
There’s a really interesting study that presents a theory called “the connectivome theory” which basically suggests that autism is linked to connective tissue disorders and actually a whole body disorder rather than just neurodevelopmental. The statistics show CTDs are closely linked with autism (although I have no idea where they found that statistic specifically about keds)
2026-07-20 15:37:14
2
ehlers.samlos
ehlers.samlos :
I think that’s closer to the actual statistic (albeit potentially underestimated) on autistic individuals having Ehlers-danlos syndromes/hypermobility spectrum disorders as a whole, NOT kEDS 😭
2026-07-19 20:17:45
263
thisisathriwaway
Jack Patric :
People just get on this app and lie
2026-07-19 17:34:21
77
tdawg563
tdawg563 :
Ppl love to be like “if you have autism or adhd you prolly have EDS” as if that’s the originating factor of EDS. No. It’s the opposite. If you have EDS you prolly have adhd or autism or both
2026-07-20 15:14:09
2
idominicantanymore
Maxi-Yadriel :
All the misinformation out there abt EDS makes me genuinely more frustrated than all the times I've almost died or faced major health issues as a result of EDS
2026-07-20 03:37:11
27
floatawhile
floatawhile :
I think they were thinking 30-40% of people with HEDS are autistic.
2026-07-19 20:38:25
74
intothevoidthatismybrain
Percy :
stop 💀 why is there so much EDS misinfo out there??? I had folks trying to diagnose themselves on my post talking about “omg i have these!!” Girl i have vEDs.
2026-07-20 13:06:27
8
kimievieee
Kimi 🎻🌈🦓 :
Ni, Xiaolin et al. “The first case report of Kyphoscoliotic Ehlers-Danlos syndrome of chinese origin with a novel PLOD1 gene mutation.” BMC medical genetics vol. 21,1 214. 31 Oct. 2020, doi:10.1186/s12881-020-01154-3
2026-07-19 17:26:43
49
choicejazzband
Chandler 'Bada' Bing :
They made the numbers up for dramatic effect
2026-07-20 11:58:22
0
johnnytiktok21
John TikTok :
okay well did you know that at least 45% of all people with bubble guts have at one point consumed an entire galaxy and are also Norwegian? didn't think so, check and mate
2026-07-19 17:38:19
95
giusiana
Giusiana Prosser :
The misinformation out there is more painful than my chronic illness at this point
2026-07-19 20:14:58
11
partially_clown
🐓🦴That Bone Bird 🦴🐓 :
Yo ultra rare disease gang I got APLAID and sincerebellar ataxia type 42
2026-07-20 02:23:10
2
immortal_velociraptor
Fang🧩🌀 :
What in the world, where did they even pull that number from?!
2026-07-19 23:08:48
14
a.k.a.mel
Mel___ :
I thought this was about those shoes
2026-07-19 22:43:57
2
asher_lizard
asher 🚀⚙️|🥩📼 :
This has GOT to be s typo right?
2026-07-19 23:39:14
1
rottedporcelain
┈┈┈┈․° Doll / Rot °․┈┈┈┈ :
I thought this statistic was like for hEDS not this new one I am hearing about (I must research it now i am curious) but idk I have an unreliable memory
2026-07-20 10:33:51
1
jancy4everrrrr
Jessica :
What were your symptoms , me and my drs wanna figure out if my spinal shit is just a coincidence along side my other type of Eds or if I need genetic testing 💔
2026-07-19 21:56:21
2
impossiblyobscure
Lex Balm :
Dropped in without context and thought we were talking about tennis shoes
2026-07-19 21:06:03
1
just.em.brace.it
Just.em.brace.it :
Retweet 🗣️
2026-07-19 17:51:46
5
bb.71246
️ :
people just be coming on to the internet and lying 😭
2026-07-19 18:04:50
2
user8372211984674
user8372211984674 :
bro took the EDS and scoliosis stats for autistic people and merged them for a super rare condition
2026-07-19 18:24:35
14
finn.ertia
finn ✿ :
me when i lie and spread misinformation
2026-07-19 17:44:28
5
bigorangeadultmale
brette crane (like the bird) :
online hEDSers vs realizing that hEDS isn’t the only kind of EDS. also hEDS and hypermobility aren’t the same thing. this person is just so far off it’s not even funny.
2026-07-20 02:12:29
2
miskaszyszka
miskaszyszka :
Their statistics pulled out of a bum hole... 🕳️
2026-07-20 00:06:21
1
_salmoncheesecakebish_
🧂Granny🩶 :
Me when I pull stuff outta my ass 😭
2026-07-20 11:42:48
0
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