bloombeyonddiagnosis
Region: US
Friday 24 July 2026 21:08:34 GMT
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𝖆𝖛𝖊𝖗𝖆𝖌𝖊 𝖓𝖎𝖈𝖔𝖑𝖊 :
It’s not a motivation issue. It’s an “I can’t physically do it” issue. Able bodied people are starting to piss me off I’m sorry.
2026-07-24 22:15:09
2769
TwistedRainbow11497 :
yes this 🫠 Fibromyalgia, PCOS, EDS..
2026-07-25 07:57:20
1
user7548677076152 :
You forgot unable to completely walk or bend or raise an arm over your head. Everything in pain or swollen and brain fog
2026-07-24 22:01:50
917
ky :
people dont understand... waking up and NEVER feeling well rested. pain walking to the bathroom. pain putting on clothes. it hurts to lay down now
2026-07-25 01:51:04
155
Katie :
People severely underestimate the amount of energy and effort the “pretend they’re fine” part takes
2026-07-25 01:00:50
361
looneyspoonie :
And don’t forget they will need to be in an immense amount of pain constantly.
2026-07-24 22:04:18
474
ReinaDelMar888 :
I have to take energy drinks like juice to get through the day when I get like this. I know it’s bad but it’s the only way I can be functional
2026-07-24 23:47:52
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gilliannno :
that AND get hit by a bus and then yelled at for not being able to get up 😭
2026-09-02 07:21:06
9
Jay :
i used a wheelchair to help get around today for the first time, and im finally not exhausted and bedridden after!
2026-07-25 00:29:01
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humankirk :
Laying in bed crying because you’re exhausted and just want to sleep, knowing that not getting any sleep will just make this worse. But you can’t sleep because of the pain/discomfort
2026-07-25 03:25:28
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Iggy/Bjorn's second account :
Just got the result of my sleep study. I get less than an hour of restful sleep for every eight hours I’m out. According to traditional science, I should be dead.
2026-07-26 01:01:42
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Super princess :
This, my boss and coworkers look at me like I’m lazy when I take PTO like you don’t think I’d rather save this for a vacation
2026-07-24 23:31:45
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Leviathan 🪐 :
I can’t even drink a lot of caffeine to counteract it because of one of said chronic illnesses
2026-07-25 01:26:37
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Spicysugar :
Yeah no. I am not chronically ill but I do have HORRIBLE insomnia and there’s been many times that I’ve been awake for 3 days. It’s torture. I had to go to school still and was feeling like the floor was uneven and constantly shifting, I was hallucinating due to lack of sleep, I was thinking that I was focusing and then I would realize I wasn’t, I was just really focused on the concept of focusing. All of my skin was buzzing and I was trembling— even my eyes would be shaking. I would speak and not realize I was speaking and have no idea what I’ve said. Longest I was awake was 78 straight hours before doctors would even look into the issue— and it was only because I started failing classes that I was really good at. I DONT know how yall do it. Everyone saying you’re overdramatic. Everyone saying you’re faking cause you look fine even though the floor is shifting beneath your feet. I couldn’t function even at 25%. And you *have* to. And even taking function out of it; it wrecks you on an emotional level. The constant fight between self doubt because even doctors say you’re lying and it can’t be that bad, and “if I was faking it for attention, and everyone and their mother was calling me out on that and ignoring be because they don’t want to encourage that, wouldn’t I have stopped faking by now?” Ruins your nervous system even more. Which in turn negatively affects your disorder. It’s all fucked straight to hell.
2026-07-31 23:34:39
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𝙽𝙸𝚅𝙸𝙰 :
If your brain turns every small problem into ten new problems, Clara Hartley’s anxiety quiz might help you recognize why that keeps happening. It helped me so much! ❤️
2026-07-27 13:11:26
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Soleil :
I like to use the comparison : it’s like you had to run a marathon unprepared with a cold and then for the next week being questioned why you aren’t performing at your best possible pace because “you look fine”
2026-07-26 04:21:55
35
Sweet Mantra :
is it just me or are we all on board on bad days if breathing was optional I’d opt out for a few days.
2026-07-24 23:32:16
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chronicgloom :
I literally look fine so people don't understand if I get up too fast I WILL KEEL OVER. they think I'm just being dramatic 😭
2026-07-27 18:21:47
8
MFrae :
Don’t forget feeling like you have food poisoning and the stomach flu on a consistent basis
2026-07-26 04:35:30
8
ChessyMom :
It’s like having weights on your limbs. Removing gluten from my diet has helped. Also getting my cortisol levels checked soon.
2026-07-24 22:08:58
13
Donna Bailey :
and that's the baseline.... then imagine sometimes insomnia from pain on top of that
2026-07-25 14:41:06
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Jeanette Htn779🌎🆘🇺🇸 :
what if you have chronic illness, chronic pain and chronic insomnia???? the trifecta
2026-07-25 14:02:55
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Kortney :
then the joint pain hits and you feel like your body is stuck in cement
2026-07-25 03:29:23
5
Lee :3 :
I have cfs and genuinely I dont even know how many days people would need to stay awake and live normally to understand how exhausted I am daily
2026-07-27 08:35:51
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