loganjamescoulter
Region: US
Monday 27 July 2026 17:38:41 GMT
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Lisa Dowell :
I do IG therapy weekly instead of monthly because monthly didn’t work for me and I had to go up in volume until it showed significant improvement. Food for thought. 🙏🏻
2026-07-28 01:10:26
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WhimsyOuiser :
I have two kiddos with PANS. Their trigger was mycoplasma pneumonia. My daughter also sustained a concussion playing baseball while unknowingly having mycoplasma pneumonia. Long story short…brain inflammation, molecular mimicry, PANS, POTS, Behçet’s, chronic low IgA, and now celiac.
2026-07-28 01:42:19
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mnmama2.0 :
Dr Horowitz. Lymes
2026-07-28 00:58:58
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Dri :
I was diagnosed with PANDAS at age 8 and then I got Lyme disease and got re diagnosed with PANS. I’m now 22 and for the past 2 years have been in a really severe flare very similar to Gianna’s rn. I was recently diagnosed with Babesia which is a co infection of Lyme disease which has been causing this extreme long flare. Has Gianna been tested for Lyme and co infections? I had to go to Lab Corp to get tested because the regular tests don’t catch Lyme.
2026-07-27 18:09:10
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🌸Jennifer Neves🌸Queen Bee :
I wish I knew how to tag but I don’t sorry I will do all the other thing 💗
2026-07-28 00:23:22
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Your mom probably :
As a PANDAs/PANs parent, I’m sure you’ve seen the STEM cell therapy happening in Mexico? We looked into it but have been lucky that our son is responding to IVIG. I went a year without sleeping because of the same thing (started when he was 4, he turns 6 this week), before they’d give us a diagnosis. P/P is cruel. I’m so, so sorry your family is also in this battle. 😭 —have they considered putting her to sleep for a spinal tap? That’s what we had to do for our son.
2026-07-27 18:52:44
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witchingliliestoo :
thank you for posting, i had my first pans flare when i was 8 and now 25 with a pans diagnosis and going thru ivig. it is sooo difficult to even know whats happening!! are you in idaho? i have a doc recommendation if that could be helpful, not positive if he is taking new patients but he definitely saved my life and has figured out so many of my medical issues
2026-07-27 23:59:56
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Michelle Haskell :
I commented on another one of your videos. I’m in full support and would love to hop on and help. I’m a special needs mom to a non-verbal son - who has PANS. Has she had Lyme testing? If Bartonella is in the picture, IVIG may not work as effectively. I recommend Igenex, Galaxy, T Labs, or Vibrant. A variety of opinions on these tests, but I would check this off your list.
2026-07-27 23:59:08
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Beth :
Is there a CBC with differentials or did I just miss it?
2026-07-27 22:45:42
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learningasigo 🔄🌸 :
seronegative autoimmune encephalitis (seronegative AE). Here’s what that means: * Seronegative = no currently identifiable autoantibodies were found in the blood or cerebrospinal fluid (CSF). * Autoimmune encephalitis = inflammation of the brain caused by an abnormal immune response. My sons autoimmune panel was negative bit he has mycoplasma pneumoniae antibodies extremely high, but no active infection, ochratoxin a was positive, speckled pattern 1:360, and yeast antibodies . Looking at her results I’d say pans because pandas is strep specific. Of choosing between those 2 options. Both pans/pandas and other autoimmune encephalitis/encephalopathies mess with the autonomic nervous system and sometimes sensory processing.
2026-07-27 21:01:59
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dgkop69 :
Has she had testing for all tick borne infections via Igenex or Vibrant??
2026-07-27 20:36:29
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Aleena0523 :
How are people seeing them? They are blurry on my screen. They call me the diagnoser in the ER because I can diagnose before most the doctors. Not bragging lol. Just telling the truth. I would love to look at them. I'm not a doctor. I'm a nurse. And there are amazing doctors out there. I hope one of them sees this!
2026-07-28 00:00:23
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chronically_empowered :
Have they checked for chairi malformations, it pushing on the spinal cord and can cause similar symptoms. The scan needs to be done whilst standing and in flexion and extension- it will not be found in a normal laying MRI.
2026-07-27 21:41:25
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Alyssa Rowlands :
Make my heart so sad watching ypur daughter, but I watch them all! Hopefully funding is picked up asap!
2026-07-27 17:43:53
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Stacy Sock :
I may have asked you this in the past, but have you had her tonsils/adenoids removed? If not, PLEASE do it. Josie had hers removed and it was really life changing. Also, get her the spinal tap with possible anesthesia so she doesn’t move. Is she taking binders? I started CSM and it’s been rough but I’m holding out for a day I finally feel better. Look into doctors in the Houston area/medical center. We see Dr. David Doan. 🙏🏼
2026-07-27 19:58:17
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TaraLynn :
you guys are amazing parents, and with parents like you, you guys will fight until shes back healthy and happy... I hope that is soon..❤️praying for your family and your sweet girl..
2026-07-27 23:30:44
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yvonnechandler223 :
My daughter almost died yesterday by breaking hotel glass door and cut her wrists
2026-07-27 22:03:53
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💋 :
As a parent, my heart hurts
2026-07-27 23:19:06
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Stacy.Barner :
You said perfect storm and that’s is exactly what I was going to comment!!!
2026-07-27 18:48:48
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jodiechristian852 :
Has her doctors ruled out all the look alikes before they diagnosed her with PANDAS?
2026-07-27 18:00:17
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Dabrah Cooley :
Go through other companies for testing don’t trust just one
2026-07-27 21:39:30
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daniellesatterwhi :
what about a medical holiday as they call it in Turkey
2026-07-27 23:34:46
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Go Leila Go :
Have you heard of the mold avoider FB group? It’s if cross over symptoms in that group with what your daughter is experiencing. 🙏
2026-07-27 23:55:08
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jamsrus2012jr :
Also have they done genetic testing? When our daughter was in children’s and they couldn’t figure out why she wasn’t getting better and they couldn’t get her off the vent they started genetic testing.
2026-07-27 20:42:20
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⚡️Sterling Rayne⚡️ :
just throwing out random thoughts: have they done a functional MRI, or a T2 weighted MRI or one of the many they use for usual diagnoses, lead poisoning, Lyme. Has anyone tracked EVERY SINGLE DETAIL of her life the day before? What she ate (even if it wasn’t intentional) where she went (swimming/hiking,) did she do anything {{ANYTHING}} at all abnormal the day before or even a few days before? Did she get scratched by a stray cat? Did she come in contact with a toxin or poison? She was a young strong athlete so she could have easily suppressed initial onset symptoms unknowingly. Did she complain of ANYTHING -headache, earache, fatigue, dizziness, nausea, muscle weakness/cramps, in the leading days? If you guys didn’t hear anything from her - maybe a friend did, a coach, another parent? Ask around if you haven’t already. There is something. Somewhere. Buried in a small detail. We aren’t asking the rights questions or running the right tests. What are we forgetting guys? What are we overlooking? Are the answers to the questions we’re not asking right in front of us? Let’s put on our thinking caps, forget the logical answers and ASK THE SILLY questions!
2026-07-27 18:52:54
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