@chronicallycatherine: The doctor that diagnosed me with hEDS, POTS & MCAS diagnosed me with Lipedema. I also went to see a specialist in CA that diagnosed me & gave me a surgery option/recommendation. I’m not going to have surgery at this time, instead I’m focusing on whole body wellness for a bit while I also adjust some medications! #lipedemalegs #chronicillness #chronicpainwarrior #lipedema #spoonie

ChronicallyCatherine🦓
ChronicallyCatherine🦓
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Wednesday 29 July 2026 19:20:52 GMT
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lefki_nymfaia
Μαρία.Χ :
Lipedema is supposed to be a very rare disease, yet I constantly see more and more women saying they have it. I used to believe the same about myself. Basically, I have many of its symptoms and I also have a lower extremity scan from a radiologist where they wrote that I have lipedema of the shins. Since then, I visited two vascular surgeons who know about lipedema, as well as a plastic surgeon who also specializes in it. They examined my veins and told me to take Vencil pills and a gel to strengthen my veins, adding that visually I don't look like I have lipedema. Of course, I am overweight, and that by itself doesn't make things any easier. I am on a diet, etc., and I am trying to lose weight so that I can visit a doctor again and have a clearer picture. Anyway, the doctor told me that many physicians tell women they have lipedema when it’s actually just localized fat. He also mentioned that since he used to work in another country, he saw women going in for surgeries based on just one doctor's diagnosis, without being 100% sure they actually had it. Furthermore, he told me that surgery doesn't really offer much—maybe only to the appearance. Maybe... What I want to say with all this is: don't get discouraged. Research it more thoroughly so there is a correct diagnosis. Start with diet, exercise, and positive thinking! I am still eating myself up inside (despite the doctors' positive reassurance) thinking that I have it because of the symptoms, but I have started the process of fighting to fix myself inside and out. In a few months from now, I will visit a doctor again to be checked, but only after losing weight first! Start fixing your inside so it can happen to your outside too, and then you will see if you have lipedema, just localized fat, or some vein issue—because these cause common symptoms. Look into it well, girls!"
2026-08-02 17:15:57
6
charlaparker0
charla parker :
I have it and my vibration plate has helped 100 %. 💯💯❤️
2026-08-03 00:18:41
15
woobs85
Randi C :
I’m so glad I found this side of TikTok. I genuinely felt like I was alone in this …: what a relief! 🫶🫶🫶🫶
2026-07-30 19:19:58
43
la.gueritanavas
la.gueritanavas :
What I just had that knee surgery months ago and I can’t recover and I have a huge feeling I have lipedema
2026-08-02 15:17:47
2
house2.0
GH :
Do your fingers ever feel achy and full of fluid? Or swell up?
2026-08-01 15:47:37
9
202baebae
#202baebae :
What type of doctor did u see to diagnose this?
2026-08-03 14:19:00
0
kinderj5270
Julie :
When I had hip surgery, the surgeon cut my orbuturator artery. Went back in 10 days later and the artery wasn’t closed off and I was bleeding in my leg. Had a coil embolism done. I’ve never been the same. I know I have terrible lipodema and vascular issues. He ruined my life but I’m past the statute of limitations so I can’t sue
2026-08-04 00:40:36
1
shopnalo.7
NALO7 :
after 7 babies, this is me.
2026-08-03 14:50:14
1
sun_will_rise01
CraftedByChaos🌀 :
I’m curious how your legs and arms as far as aching. Does it feel like it’s sore, almost like you slept on it wrong the whole night or maybe you had a tetanus shot and it’s sore
2026-08-03 11:59:40
4
crazycatladytrainee
Chelsea 🐱🎮📖📸 :
How do we help ourselves with this condition?! I have it but have no idea how to help it.
2026-07-30 03:22:40
3
elaineflett
Elaine Flett :
I have this, not been diagnosed but this is how my legs are. is there any treatment
2026-08-01 08:15:43
3
mariewashington16
mariewashington16 :
I hate waring shorts shirts all of it about to order some of them skin leggins or stalking one of the 2
2026-08-04 14:54:52
1
emilyullrich4sho
Emily Ullrich :
I’m so glad you were able to get informed care!! I’m in GA, and I’m struggling to find Drs that know anything about EDS, POTS, MCAS & esp Lipoedema!
2026-07-31 13:47:45
4
skythebutler
Reema ♠️ :
my legs looks exactly like yours but i never got diagnosed
2026-08-03 03:03:25
4
amandavazquezhernandez
Amanda and Baby Santi💙 :
Looks like my legs
2026-08-01 23:47:16
4
macsmammy
MrsMac :
I had meniscus surgery over 2 weeks ago. It feels like the other knee will need it too at some stage.
2026-08-02 23:33:49
2
bettina.jefferies
BettJeff :
You’re not alone
2026-07-31 18:02:43
3
noonya27
N :
هل المشي يزيد الحاله سوء ؟
2026-08-03 22:41:56
3
user960952602376
user960952602376 :
Same here, identical to mine - your lucky in a sense you don't have stage 3 osteoarthritis in both knees 😭
2026-07-29 20:18:49
5
lynnnichole20
Nichole :
Same! I hate it
2026-08-03 13:08:19
2
gigglepicks13
Tracey Pickett :
how were you diagnosed please?
2026-07-31 11:46:49
1
katie.thomas459
katie.t💜 :
i have secondary lipedema after tearing ligaments in my knee last year this heat is making it so much worse 😫
2026-07-30 21:41:06
3
sha07954
sha0795 :
same here
2026-07-30 10:28:54
2
sha07954
sha0795 :
I get so many Bruise
2026-07-30 10:29:09
3
jolenewelsh88
jolenewelsh88 ✨ :
Do you have burning , tingling and like zaps of pain my legs are overly sensitive
2026-07-31 19:29:03
1
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