Dr Ahmed
Region: GB
Thursday 30 July 2026 16:20:21 GMT
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Inquilab Zindabad :
We also have a higher risk of central sleep apnea. At home studies won't be as good at picking up central sleep apnea per my sleep specialist
2026-07-30 22:00:00
117
kayfaistraveling :
Women are just being ignored.
2026-07-31 06:20:34
412
Vicktoria 161 :
Ever since I started my adhd meds my sleep apnea got way better! Never slept better
2026-07-30 16:55:34
8
Donz :
sir, where are you based and do you see patients privately? genuinely, my body is broken. 🙏🏻
2026-08-23 12:29:25
2
Emma :
I wake up every couple of hours it’s exhausting could it be that ?
2026-07-30 21:47:37
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Luminaria 🇺🇸🇨🇦 :
I wonder if other EDS folks experience this: I was diagnosed with sleep apnea and given a machine. But when I use the machine, I can’t sleep. It’s not because the mask is uncomfortable although it did take some getting used to. It’s because I feel so oxygenated and awake! I’m so full of energy and my brain starts racing. I had to stop using the machine because I would get two hours of sleep a night. So I can either be tired because I’m not breathing in my sleep or I can be tired because I’m not sleeping!
2026-07-31 15:49:01
11
Richard Parker :
I have a theory Ed could cause post partum hemorrhage
2026-07-31 04:20:05
4
Vico :
😭 I thought I would have it but no I'm just tired no reason
2026-08-02 05:39:00
1
Jan Chowdhury :
This! For those who CPAP doesn’t work, might be worth looking into a Mandibular Advanced Device (MAD). I have moderate/ severe OSA. They found the structure of anatomy meant that CPAP doesn’t work but MAD was effective on myself (apart from currently trying to combat TMJ pain now)
2026-07-30 23:21:42
8
Amberlee 🦋 :
They are higher risk for OSA and for hypersolemnence (narcolepsy/ IH) according to a presentation at EDS society conference
2026-07-31 01:33:55
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Nebulatron :
have you heard or seen early osteoporosis in people with eds? I'm 38 and was diagnosed last year
2026-07-31 01:00:52
12
chronically_heather :
My “sleep apnea” is my esophagus shifting in my sleep. Sleeping with a full height pregnancy pillow helps a lot. It keeps me from rolling into weird positions.
2026-07-31 03:17:09
7
rjsj1994 :
Also, another comborbidity that's often overlooked (especially in EDSers with severe Dysautonomia) is Centeral Apnea!! As our autonomic nervous systems' gradually degrade, our brains start to forget to make us breathe.
2026-07-31 10:52:33
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🏳️🌈carebearstare🏳️⚧️ :
a narcolepsy scientist presented to a narcolepsy support group that I'm part of and explained recent research puts narcolepsy is the same group as eds, mcas, etc. they're very comorbid. so just get the sleep test in the lab because the home test won't test for all of the sleep disorders that you have a higher risk for.
2026-07-31 04:18:50
6
caitlin :
I wish my doctors knew a single thing about eds so I can actually get something sorted for myself. But I live in the middle of nowhere with no money to go out my way to pay for treatment. It's been 15 years with no answers
2026-07-31 09:37:05
11
Jenniferm@rie :
My gp won’t even look into an eds diagnosis. Even tho I have far too many symptoms for it not to be that.
2026-07-31 06:27:58
5
Mystical Creature :
I have MCAS and fibromyalgia. I was diagnosed with OSA well before this. but I hate my cpap
2026-07-31 03:58:26
7
Not Applicable :
So refreshing to listen to a knowledgeable professional. Thank you for creating awareness and acknowledgement that we suffer from many complex issues 🙏🏻🙏🏻🙏🏻🙏🏻
2026-07-30 19:32:24
12
kasia.enongene :
my 17 year old daughter was diagnosed with POTS at 15 year old. when she was 7 we were told she is likely double jointed. For the last 5 years she is experiencing abdominal / gastro issues, heavy periods, still is very flexible in many ways, her knees and jaw locks often for years- GP referred her to MSK clinic but they appearantly can't diagnose but help with physio
2026-07-30 20:05:01
0
youmakemetiktok :
this happened to me, they told me to lose weight when I've had these symptoms my whole life if I sleep on my back. but luckily, LDN really has reduced inflammation in my body and I can breath better, and take deeper breaths.
2026-08-02 10:45:07
1
Lydiapumpkin :
I have obstructive sleep apnea severely and I have a little bit of central and I wore my machine for over three years and I felt so much better but it ended up being in a place that had black mold and I’m afraid to use it so I haven’t used it in over six months and I have no way to get another one and it’s really affecting my health 😢
2026-08-01 16:35:59
0
Nicola Victoria :
Please I really believe I have this. How do I put this to my Dr and be heard? I have had 2 brain surgeries to remove pituitary tumour that unfortunately still left tumour behind meaning I still have acromegaly. I have read eds is often common with my condition? I also had a hypopsyectomy
2026-08-15 18:56:51
0
tealeafthesis :
I had a sleep study because I was so tired and sleep didn’t touch it, minimal activity would send me back to bed exhausted. Sleep study came back fine and they basically shrugged me off. 3 years later I have a diagnosis for me/cfs. Look into it if this sounds like you.
2026-08-02 20:10:14
4
Misscara :
i had a doctor and physio say i have EDS, another doc did the beighton scale and i scored 9/9 even at my age of 52. referred me to the hospital doctor and they said theyre not seeing anyone to diagnose EDS no more?
2026-07-30 21:10:55
2
Aali :
I’m trying to figure out if it’s worth mentioning testing for Eds to my consultant. I have pots but also have multiple eds symptoms but I’m not hyper mobile. I used to be very flexible as a kid always doing gymnastic stuff but I’m not now, is it worth even getting tested as I’m not hyper mobile?
2026-07-31 02:35:26
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