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@swexo_.aep: lana edit🤩🤗 | #smallville #lanalangedit #clarckkentedit #smallvilleedit #edit
𝒔𝒘𝒆𝒙𝒐
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Region: DE
Friday 31 July 2026 20:23:33 GMT
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This is Darcie speaking in her own words. ❤️ You may notice that her voice is very quiet and weak. That’s because epidermolysis bullosa (EB) has affected her airway, making it incredibly difficult for her to speak. EB is often called the “butterfly skin” condition because the skin is as fragile as a butterfly’s wings. But for some people, including Darcie, it affects far more than the skin. It can impact the mouth, throat and airway, making everyday things like talking, eating and breathing a challenge. Every word she speaks takes strength. Thank you for taking the time to listen🩷 #ebawareness #darciesstory #babytok #fyp #jeb
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