AskPainDoc
Region: US
Sunday 02 August 2026 12:02:31 GMT
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🌙 Shell 🌙 :
The first one sucks because I love love love walking, I love hiking and hills and exploring nature but these days I’m constantly calculating how far of walked and if I’ll be able to walk back.
2026-08-05 15:30:32
1
Sydniebeth🪬 :
For me the day after the day after is always the worse.
2026-08-06 00:00:57
1
Erica van der Voort :
or if the thing i did today is whort it to do that it mentaly can injoy still even whort the pain
2026-08-04 11:22:16
1
SuzieBlackNailJournals :
Also, sun exposure and heat. A lot of autoimmune that causes chronic pain leads to heat intolerance and sun exposure issues. Especially the medicine used in rheumatology to help with pain. So everything you listed plus that. Too much sun can lead to a week long flare.
2026-08-02 13:46:53
120
Lauren Letitia :
Psoriatic arthritis is kicking my ass atm. Didn’t shower last night as was too sore but had to do it before medical appointment. Had to force myself up to go. Was exhausted for rest of the day and slept
2026-08-05 00:26:37
0
clairecreasy :
fibromyalgia I hate it kills me every day
2026-08-05 23:32:23
1
tls9022 :
The anxiety that comes with having plans and knowing I’ll have to be ok is unspeakable
2026-08-02 12:43:59
77
Dudley :
Cancelling is the worst. I know my friends and family get frustrated and let down. I hate disappointing them. My body is not trustworthy
2026-08-04 15:52:56
1
girl.gone.blind :
Shower or food is normally my question of th day as most of the time I can’t do both …. Least ik
2026-08-04 23:34:22
4
Szandra Kócsó :
I feel untrustworthy because I have to cancel plans all the time and my kids don't trust me anymore because of this
2026-08-04 14:28:57
2
CemeteryLady76 :
the guilt
2026-08-02 13:59:44
21
Teri🔻🍉 :
For me, with a messed up spine, it’s not “how much walking” it’s “how much sitting”. I can’t sit in a normal chair for more than 30 minutes at a time. Spot on with these, though. As far as “will I pay for it tomorrow” the answer is almost always “yes” and I need to make sure I bring enough of my pain meds with me in case we end up being longer than we expected- I need to be prepared for anything
2026-08-02 18:24:02
8
Speedy Conzales :
Absolutely 100%
2026-08-04 20:59:05
2
MrsB :
People don't realize the internal struggle that happens for every chronic pain patient. It's awful!
2026-08-03 07:49:39
6
Edani :
Can I take you to my Drs appointment so you can tell them this. They don’t listen to me. They keep saying workout get at least 10,000 steps a day. Thats not at all doable with chronic illness. Or at least for me.
2026-08-02 21:51:31
8
Lulu :
I always book a day off after an activity.
2026-08-02 17:26:45
7
thatgirlkellonwheels :
Number 3 hit home big time for me. Not knowing if I am gonna have a good body day or bad body day is so stressful. And then not knowing how long your body is gonna need to recover is hard too.
2026-08-02 19:34:22
1
sunshine :
The part I hate the most is nobody knows the whys…. Even my kids don’t know the whys, they just get some lame excuse. I don’t want them rearranging plans because I’m a mess. The older I get, the harder everything gets
2026-08-02 23:15:19
2
pattielap :
guilt. as a mother, as a wife, as an aunt, as a cousin.
2026-08-02 23:13:04
1
LION 🦁 QUEEN 👑 :
Amen and thank you for speaking up for us quite ones in pain. I can’t trust me to walk anywhere for long 👏
2026-08-03 01:14:18
3
ElPel92 :
The NICE guidelines are the most EVIL guidelines to make patients suffer
2026-08-02 21:28:48
2
@peachez :
I do this everyday!!!
2026-08-02 23:31:33
1
🐝✨️ MK • Tamara 💛 :
Yes!! All of these and more.
2026-08-02 20:28:39
1
Mandy de Visser 🕊️ :
The sad thing is I can’t enjoy things anymore the way I used to. I can go to a festival, but I’m too tired and in pain to actually feel happy or enjoy music. No energy, no real joy in my life anymore.
2026-08-02 20:41:24
3
GasPanicRockandRollStar :
How far I have to walk and is the stairs involved is the first thing of thinking of
2026-08-02 12:11:33
2
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