@deethexatriarch: A few years back, my health took a left turn and had many doctors perplexed as to what could be going wrong. Several misdiagnoses and tests later, I actually found out I have a rare genetic illness that affects about 0.002% of the population. Hereditary Angioedema. My diagnosis led to me finally access treatment that began alleviating symptoms I’d been suffering with for years. The only issue is, most treatment options are new and fairly limited, because research and treatment for HAE hasn’t been developed until very recently. Thankfully that’s changing 😮‍💨 There’s developing research helping the medical world understand more of HAE patient’s struggles so possible solutions can be developed with us in mind. Being a part of a private patient community for HAE patients & caregivers has given me some peace of mind knowing that we’re being thought of, and are actively a part of developing science that will impact present and future HAE patients. If you or anyone you know has HAE, or if you are their caregiver, I invite you to sign up for this community. They compensate you for each completed survey/ study, it can be done remotely and you get a $50 sign up bonus for joining. You know where to find it! 🔗 #hereditaryangioedema #HAE #fyp #medicalresearch #CapCut

Dee the Xatriarch

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Monday 03 August 2026 19:16:00 GMT