zoe ⚡️
Region: GB
Wednesday 05 August 2026 06:06:04 GMT
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Siobhan | Lipoedema Coach :
You’ve inspired me to make a post based on this!
2026-08-05 09:15:39
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Laura :
I was referred to the lymphedema service by my GP but I feel like they just see people with Lipoedema as a nuisance. After increased pain and swelling recently I asked for an appointment and literally got my head practically bitten off. 🙈 my prescribed compression no longer fits but they offered me a telephone appointment in September 😁 I have to laugh.
2026-08-05 07:08:22
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sarahclark592 :
I have written to my MP again because I am so exhausted trying to fight for treatment. Recently told one leg has progressed to lipolymphodema 2 years after I told them I felt it was different ! It took my regular nurse at the lymph clinic retiring and demanding a referral to vascular to get somewhere. Also diagnosed with chronic. Vein insufficiency waiting for ablation. I’ve got arthritis in both knees that physio won’t touch because of lipodema. Can’t have a knee replacement because surgeon has “ never had a successful outcome with lipodema” I feel like life is constantly in fight mode.
2026-08-05 08:55:13
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𝔑𝔞𝔬𝔪𝔦 ﾒ𝟶 :
i was diagnosied and was told no compress, ldm are waste of time. i was told excercise and diet. im happy to share my letter with this "care plan" xx
2026-08-06 00:39:35
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B :
I was lucky enough that I knew where my local Lymphedema service was (and while I'm not diagnosed with lipedema, they do support folks with it as well), so when I finally got a diagnosis I could say "I know that the closest Lymphedema service is in this hospice". And that's the only advice I can really give. Check your local hospices to see if they do have a Lymphedema service that you can join the care of.
2026-08-06 19:18:55
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