@paulasojoro: Some rules I live by, what’re yours? #chronicillness #pots #ibd #endometriosis #tips

Paula Sojo
Paula Sojo
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Region: CA
Wednesday 05 August 2026 17:35:10 GMT
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slowmogirlie
Slow-Mo Girlie :
I just came back from Europe and I cannot recommend a cane chair enough. saved my broken ass literally everywhere. as an aside: do not go to Pompeii in the summer
2026-08-06 00:18:16
1017
elaineee13
Elaine 🖤 :
I ended up breaking down and getting a Rollator so I always have a guaranteed place to sit and it’s been a game changer
2026-08-06 00:12:42
251
lcurph
Lauren :
Being chronically ill has truly turned me into an agoraphobic
2026-08-06 01:32:54
1030
riss_ugh
🪩R I S S🪩 :
And dating someone who accommodates you is NOT a plus but a necessity.
2026-08-06 05:27:57
3054
cesspit
cesspit :
i feel like being “california sober” really helps my pain and nausea and such. but maybe it’s just a delusion lol
2026-08-06 00:19:19
125
drelizabethtrattner
Acumom :
Spoonie of 40 years. Don’t forget the bathroom access, a place to sleep, make your own work schedule, long weekends, and many others that will make people mad.
2026-08-05 23:18:39
1255
heganmickey
heganmickey :
I have chronic migraine and my family is baffled why i won’t go on cruise vacations with them every year. Weird food, weird smells, no emergency room. No thanks.
2026-08-05 21:14:23
364
dannymason30
Danny Mason :
If there are not chairs - I am not going
2026-08-05 21:11:28
2267
mackenziemaxwell_
MacKenzie :
my purse is my plan! I have every and i mean everything i need in it
2026-08-06 06:32:08
58
nadinadinine
nadiNine :
I always, always chat up security, anywhere I go. Even though I don't "look sick", bc I make them aware I don't "feel well", I may get escorted to the ladies room, get a better seat at a venue, or a wheelchair seat if available, elevator access etc.
2026-08-06 16:37:35
58
erbear780
Erin :
Crohns girlie here. Will not go anywhere without an actual bathroom, no Porta potties.
2026-08-06 11:30:08
38
youaremysuunshinee
Jordan Laya :
I am not chronically ill, but these all make sense?? like why would I make my life harder if I dont have to??
2026-08-05 20:55:25
410
purplerxapothecary
Dr. Renata | Holistic PharmD :
I always carry a water bottle. Always
2026-08-07 16:17:25
23
desertbloomfarms
LeAnn | Desert Bloom Farms :
I’m so glad I’m not the only one who thinks of hospitals ahead of time.
2026-08-06 01:32:35
125
naomi._.nov
naomi 🎶 :
if there is no seating, no water, no air conditioning, and no food? consider me GONE
2026-08-07 05:30:30
52
useless_talking
I talk too much :
My mom always makes me feel so guilty for needing a bathroom nearby everytime we go out. Everyone here needing the same makes me feel so good thank you for sharing
2026-08-09 05:24:45
14
carys037
Carys :
If I’m traveling and paying money to be somewhere I want a good mattress and a good pillow! After 5 back surgeries I refuse to pay money to be in pain and misery
2026-08-06 01:12:36
144
sari_sari_boomboom
Sari_Sari_BoomBoom :
I always have my own transportation planned out in advance in case I need to leave early
2026-08-06 02:04:13
44
troublelalala
TroubleLalala :
All of these and I’m in bed by 10, because I’m a tired queen 👸
2026-08-05 20:40:04
81
saraebernal
Sarae :
I feel this in my soul. My life has changed so much due to my illness. We are just being self preserving 💗
2026-08-07 15:24:15
11
jarchibeque09
🩷J.A🩷 :
I don't even leave the house without water, backup water, snacks, at least one of all of my meds, tissues and a chair if needed. I haven't entertained drama in YEARS. I have zero filter. I just don't care to hold in stuff to spare someone else's feelings, especially if they're being a jerk. I'm not mean just to be mean. I just don't have time for games. It's amazing how freeing honesty is.
2026-08-07 03:11:43
13
_sinamarie05_
_sinamarie05_ :
I‘m a extreme concert goer, and I love the floor in a stadium 😀
2026-08-05 20:22:36
45
cassieroll_
𝕔𝕒𝕤𝕤𝕒𝕟𝕕𝕣𝕒 🪩 :
where do you draw the line between substances and medications? my dr has suggested cbd and im not sure how i feel about it.
2026-08-05 20:22:45
11
bigb00bsbigbrains
plz don’t perceive me :
No heated workout classes, absolutely not.
2026-08-06 21:40:41
17
thecredibleshehoch
The Credible She Hoke (Quako) :
I keep camping chairs in my car. I’m not gonna be without a seat!
2026-08-06 04:08:22
24
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