Dr. Grace | hEDS, pelvic floor
Region: US
Wednesday 05 August 2026 23:49:47 GMT
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Mel :
I have hEDS- I am almost never thirsty and as a result I'm chronically dehydrated. I'm only thirsty if I have dry mouth.
2026-08-06 04:50:21
2410
PrincxLynnox :
I used to have dysautonomia episodes randomly in the car with my mom my body would suddenly feel hot and my heart would race out if no where and I would feel like I was going to pass out then it would suddenly stop out of no where… they said I had anxiety…
2026-08-19 12:58:37
1
Rain_Queen :
Go past the point of being hungry to now you are nauseous and can’t even eat
2026-08-06 03:52:46
1619
Kristina :
Yes!!! I also have adhd and POTS, so I won’t know I’m literally starving until I feel like my blood sugar is 30 and I’m gonna faint or sweat to death 😅 it hits me instantly and there’s nothing I can do, so I try eating small things often :’)
2026-08-19 19:10:08
0
Lauren :
hEDS here…I go from “oh maybe I’m hungry”and if I don’t eat in the next 10 ish minutes I skip the “I’m starving hungry” and go straight to “I’m so hungry I’m nauseous”
2026-08-06 16:47:03
804
erikamonroe375 :
When I was younger I would go from not needing to go to the bathroom..to I'm going to pee my pants if I move, like instantly.😩
2026-08-06 11:31:58
327
Sophia♥️♥️♥️ :
I literally always say that I don’t realise I’m getting too hot until I feel really sick.
2026-08-05 23:55:09
681
Emily Claire :
Is there a connection between hEDS and motion sickness? I motion sick so easily and it’s debilitating
2026-08-07 16:41:09
83
Sarah :
As a kid, I had a horrendous anxiety about anything and everything. I couldn’t distinguish between whether I wanted to vomit because I was anxious or if I needed to eat because my blood sugar was tanking. it was all the same to me. I missed so much School because of this. I’m surprised they even let me pass the third grade because I missed 80 days.
2026-08-06 00:08:28
173
Scarah :
Anyone who has always had a huge appetite? I’ll get some days where I’m super hungry non stop. Like nothing fills me up.
2026-08-06 07:46:13
16
Pretty ILL :
When people say “trust your gut” 😭 yeah I can’t
2026-08-06 02:19:44
50
Jalapeno&Pineapple :
I became obsessed with flavored water because it's the only way I'll drink enough water regularly right now I'm drinking melon flavored water, it's sugar free and I'll drink around 80-120oz if not more in a day doing this
2026-08-06 14:39:53
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Anea :
I realized my interoception was terrible after a few times when I'd be really tense at bedtime and I'd be so confused, why was I tense? I'd stretch and roll around trying to relax and finally Id add another blanket: bingo! I was cold enough that I was tensed up, but not cold enough to recognize that I was cold 🙃 I also mix up hunger and nausea, and I'll be irritable or anxious if I'm physically uncomfortable, so now I have a checklist...
2026-08-06 03:43:46
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user3028696045492 :
I never know when I have to pee until it's AN EMERGENCY 🤣
2026-08-07 06:57:11
33
chloe 🫧 :
all roads lead back to hypermobility oh my god
2026-08-09 18:25:47
11
Maggie :
I don't realize I'm hungry until my blood sugar drops and I start shaking and even then, I'm not actually hungry, I just know that low blood sugar means I should eat something
2026-08-07 22:26:35
9
Ana-Maria :
Hmm… sometimes I’m not that hungry but I eat anyways because it’s mealtime and then as soon as I’m done I’m somehow hungrier then before I started eating. I always thought that was weird but now it makes sense 😂
2026-08-06 03:58:07
33
maroonmaester :
AuDHD here- the action signals like “I need to pee” get delayed but I can feel the way all of my organs relax back into place after I empty my bladder. I can also feel my kidneys empty into my bladder. Issa mess.
2026-08-06 04:56:28
8
Ellie :
I have autism and adhd and im hyper mobile. If i want a food, like crumpets. I cook one and eat it to make sure i am actually hungry because i never really know and then if i am hungry i cook more. I always have to eat or drink in little amounts first to make sure that i actually am hungry and thirsty. Or when someone asks if i need to go toilet i push on my stomach because i normally dont know that i need to go until im desperate but putting pressure on my bladder tells me if i actually do need to go or not. When i was pregnant with my daughter all the simple needs were so much harder to pick up on 🤦♀️😂
2026-08-07 14:19:36
8
Steven Allday :
Mine are AMPLIFIED like mad! I can even detect undetectable batería like MRSA and I always know when I have an infection or illness days before symptoms appear
2026-08-06 15:36:08
9
BeautifulDisaster :
Sometimes I start coughing uncontrollably and realize my throat is dry.
2026-08-06 20:40:54
5
Deleon0430 :
you're blowing my mind right now. i was getting really frustrated with my lack of ability to measure my own physical needs just last week. i was like what is wrong with me, how am I not noticing things? my wife and my health app and smart watch have been absolutely monumental in my awareness and symptom tracking. this makes me feel a lot better. i thought I was stupid or broken.
2026-08-06 15:56:07
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Currin :
your peers are terrorists for not knowing this info...im disappointed in western med...they been lazy
2026-08-06 02:40:44
15
AysiaLee :
I feel severe pain all over rather than localized. I had appendicitis but felt the pain everywhere even in my knees
2026-08-06 20:02:24
6
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