@sophierayy: Dementia is a thief. Nothing prepares you for your mom to refer to you as “her” or for your I love you to be met with “sure” instead of the usual “I love you more”.. Her happy days are becoming far and few. I miss her true spirit so so much.. grieving that version of her while loving her through this one is the hardest and bravest thing I’ve ever had to do Still learning how to navigate all of it. Any tips and tricks appreciated❤️ #dementia #alzheimersawareness #lewybodydementia

Soph & Frankie
Soph & Frankie
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Thursday 06 August 2026 01:18:33 GMT
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starrygirl1999
stargirl :
I remember the first time my dad didn’t recognize me, it was thanksgiving, we were all done eating.. he went to go put his plate away and I did too & he just blindly looked at me like a deer in headlights and asked me who I was. A ball formed in my throat and I just had to step away. He forgot me last, all my other siblings went through it first, but we always had this running joke he’d never forget me because I was his favorite.. I held onto that until that day. It hurt so badly.
2026-08-15 04:31:40
2225
kia73878
Kia :
She looked like she took good care of herself. What caused it. It’s 90% preventable with life style. 🙏
2026-08-06 23:50:02
91
ok.1045
OK 10-4 :
Thank you for sharing this. My mom also has dementia and I often ask why no one is talking about the grief that comes with caring for your ailing parent. Thank you for taking about it
2026-08-07 18:19:36
1512
tiavero77
Veritos :
my moms dementia has progressed so much this year. It's so sad. it hurts
2026-08-07 01:42:25
232
daamn.bam
Brooke :
This is the worst disease. So fucking heartbreaking.
2026-08-20 19:39:54
42
jessie31585
Jess031625 ❤️ :
I lost my mom to dementia on the 24th 2024
2026-08-15 23:44:47
85
michelleritschel01
Michelle Ritschel :
Currently going through this. It’s hard that nobody understands your grief. I will essentially lose my mom twice.
2026-08-09 17:34:15
19
quelsmom
:
My mom has dementia. This is how i explain to people..."I've already lost my mom, but she's still alive." It sucks. It's difficult. Our roles have completely reversed.🥺
2026-08-11 03:53:01
65
avagraceled
Ava :
my mom was diagnosed last May at 58. The pain is like no other. I hope you are proud of yourself for handling this while still showing up as a daughter. Take care💜🫶🏼
2026-08-10 17:31:16
47
missymo214
Missymo14 :
One thing I did while taking care of my sweet mom was tell her stories of our adventures we had together. Instead of saying remember when we did so and so I would say mom I love the time we went to Ireland. Especially when we did xyz.
2026-08-06 10:57:21
117
vanessaaa_820
vanessa :
dementia took away my best friend. i miss you everyday, i hope the fish are biting just as good up there as up north grandpa. we love you
2026-08-10 03:22:53
228
501.hannahgrace
501.Hannahgrace🦆 :
My father has been diagnosed very recently , i’ve found a support group called Lorenzo’s house for younger people dealing with parents or family with dementia/Alzheimer’s! Just look it up on google 🫶🏼
2026-08-11 01:34:36
6
anthony_lopezzz
anthonylopezz :
I would literally rather die omg.. I pray this day never comes and I’m so sorry for those who have to experience this grief
2026-08-21 10:12:05
12
grievinggravedigger
Coven Of One :
One day… one day we will have a cure for this. The most brutal of conditions 😭
2026-08-08 16:17:19
6
mrskrys23
MrsKrys23 :
My father's greatest fear was something effecting his brain. He started changing during covid. He was able to hide from friends and my mother was in denial. He had vascular dementia. Refused to admit something was wrong. The fear he must have felt trying to protect us from the truth. I will always have regrets. I am so sorry. losing them twice is cruel 😔
2026-08-12 01:27:31
7
jeanni768
EmJay :
They call Dementia the long goodbye. We will lose our Mommies twice. 😭
2026-08-10 17:53:17
52
oo0itsmaria
oo0itsmaria :
Man, my heart is broken for someone I don’t even know… 🥺❤️‍🩹 Praying for you for peace that you so desperately deserve. Your mama is so beautiful and has clearly raised and equally beautiful daughter.❤️‍🩹
2026-08-06 02:29:35
33
jess_krish
jess_krish :
The CRUELEST disease 💔 Just be kind to yourself because this road is the hardest to walk down.
2026-08-09 06:08:21
11
heathergallant6
Heather Gallant :
I work with dementia and Alzheimer’s patients and its so hard on the family’s but just know she will always love you every if she can’t say it❤️i love my job and what I do I hope she gets the best caregiver to help you guys!
2026-08-20 15:28:51
6
luuhcay
cay :
now im crying
2026-08-14 18:52:25
14
kaylia.5
kaylia :
lost my mom almost two years ago, music connected us through our last month together. sit with her and be present. say those “i love you’s” and all the things you wish to say. hug her. hold her hand. rub lotions on her hands. the ending is so hard. lean on people. cry. do all the things YOU need for your body and mind. i’m so sorry you have to walk this road. sending love.
2026-08-09 09:12:29
5
ashleyy.husseyy
⋆˙𓍊₊ ⊹˚𝓐𝓗𖥧𓋼˖°𓆑˙⋆ :
As I write this with tears in my eyes grieving a life I once had with my sweet grandparents… in Dementia world.. time is such a theif😌
2026-08-06 02:56:57
16
korensummers
korensummers :
This absolutely got me tonight! I took care of my mother Alzheimer's for a year. She died in 2020 I also did a diary recording to her. You don't realize until after it took me a year before I could look at those videos in. I'm exhausted in pain. I never want my children to go through this road!
2026-08-06 03:26:47
9
bearcatmla
Bad Dawg :
She seems so young! I bought a house with a guest house so my grandmother wouldn’t get put into a home due to her oncoming dementia. She was able to stay until she fell and needed full time care. Watching her struggle at the end was one of the hardest things I’ve ever done.
2026-08-06 03:18:39
6
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