PurpleMeadows :
My support worker: "You never complain about your chronic illness." Me: "Lol, not true. I complain A LOT when it gets really bad." My support worker: "Yea, but that's specific issues. Bur never just in general, about living with chronic illness." Me: "Oh, yea... I don't feel like 'oh, why me?' because why not me? Could happen to anyone. Also, I've already gone through my grieving phase, which lasted over a year. And most importantly, I know where I came from. My symptoms may be severe, but they're currently diagnosed, managed and supported. I'm currently in the midst of an Asthma lung attack, which SUCKS. But also, I got Prednisolon (very strong anti inflammatory med) within a few hours from my GP, before needing the hospital, and before fainting from lack of oxygen. There was a time I would fully faint from lack of oxygen, hoping I'd even wake back up, because no doctor believed I could have Asthma. It was all chalked up to anxiety. That was terrifying! And that's just 1 of my 15 diagnoses, that were ALL diagnosed 2 decades too late. I'm currently just happy to be alive and supported. I got 24/7 care, diagnoses, meds, mobility aids, and social security. Young me would envy me so much. I came from so far."
2026-08-23 03:35:18