eyesonelenka
Region: AU
Saturday 08 August 2026 13:27:15 GMT
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Anastasia Beaverhausen :
It’s because of the Exotropia. She probably sees double when both eyes are open. But with only one, things look ok.
2026-08-10 20:46:53
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saffron the revert 💖 :
she needs MRI brain stem with 1ml slices, T2 flare and weighted flare and tsh for thyroid function, 3t4 3t3, achrab and musk, Mra and CTA - idk if this helps (I'm writing out what my husband is saying as he's a highly specialist orthoptist- he's happy for you to check his hcpc if you DM me!) if any more q's happy to help also, pyridostiginine maybe help as a trial query 5-10mgs he's offered to speak to his ocular plastics consultant if you want
2026-08-22 22:01:10
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Evelyn_flanders :
Hey!! My name is Evelyn! I have this! It’s called heteroextropia. Her case may be a bit more severe than mine! I started doing this exact thing at just 3 months old! I saw and still have double vision! I close one eye almost 80 percent of the time to see straight or to not see double vision! I’m curious to know if you brought up something along those lines and said she may see double if they would test her for what I may have? I see better when I close one eye specially when I am tired, it’s bright out side, or my head hurts! I have a paper stating all of this and I’d love to reach out to you as well as show you what I have as well! At the age of 22 I am now diagnosed but no one could ever figure it out when I was a child!!
2026-08-16 00:37:14
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eyesonelenka :
As a summary: Her symptoms are: acute onset of bilateral alternating ptosis and outward facing eyes with no range of movement, uneven dilated pupils with no reaction to light and nystagmus at 6 weeks of age Elena's tests so far: 4x MRI (including the most recent one specifically for the orbit muscles and 2x with contrast) - Lumbar Puncture - WES genetic testing (no findings) - full body MRI and ultrasound - 2x EMG performed - tested for Botulism (negative) - Liver and Kidney Functions plus several other blood tests to check for infections or any metabolic abnormalities - IVIG treatment to rule out Miller Fisher - Steroid/Pyrastigmine/Metabolic Cocktail/ Prednisolne/Fentolin trial - extensive ophthalmology eye structure health exam including pupil dilating drops (eye structure looks healthy) - Teller Acuity Cards Test to check vision - she has been seen by neurologists, ophthalmologists, neuro ophthalmologists, metabolic team
2026-08-08 13:30:41
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Makayla :
I’m going to show your daughters case to the three ophthalmologists that I work with…I know you have seen a ton in your area but maybe a different set of eyes in a different area might make a difference with getting additional ideas for a diagnosis. i can pm with any info they give🫶🏼 I’m praying for you mama and your little princess! I work for Dr. Johnson’s, MD office in Ohio just so yk who I’m asking! You are getting out there on this app girly, just keep going. One day you’ll find out what’s going on. You guys are so strong when you shouldn’t have to be🤍
2026-08-09 12:20:27
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Finn :
it's crazy doctors have no idea what she has
2026-08-11 03:05:46
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SJ :
She has a squint. This could be behavioural to compensate for the squint. Have you looked at having the squint repaired and seeing how things go from there?
2026-08-22 22:17:15
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Jessthemessx8ks :
This may sound absolutely ridiculous but could it be a vision issue? Like she can only see well or focus with only one eye open? Is she able to see? Reaching all her other milestones?
2026-08-15 06:35:18
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steph :
Kearns Sayre syndrome ?
2026-08-08 21:28:36
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sullie :
may be an overstimulation or eye strength issue, try eye patch training’
2026-08-12 05:34:07
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Erica :
Sweet girl probably closes one eye to put everything in 1 picture, and see clearer !
2026-08-12 17:56:34
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𝐆𝐚𝐛𝐛𝐲 ¯\_(ツ)_/¯ :
I’m overstimulated everyone’s saying different things
2026-08-22 23:11:47
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svitlanatodos :
My daughter had a visually similar condition affecting her eyes. She was diagnosed with myasthenia gravis. It took six months to more or less normalize her eye function. We are undergoing treatment at the Essen clinic in Germany. Sending you hugs 🤗 Hang in there, girls💗🍀🌸
2026-08-11 17:50:02
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Tori Danby :
Her exotropia is more than likely causing double vision with both eyes open. So she closes one or the other to allow her to see only one object. I worked in peds ophthalmology. Has nobody recommended strabismus surgery?
2026-08-16 00:53:43
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haaaa :
Has an MRI been done specifically for her cranial nerves? CN III to be exact? Could it be atrophying?
2026-08-11 01:34:11
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Not Interested Bored :
Is she closing one to try and focus the other? As they look to wander when both open. I had to strengthen my eyes is patches as a child to fix a minor wall eye effect. Hope you get answers. She also has a lot of hair for her age and even in her baby videos. Maybe connected genetically to something.
2026-08-12 11:06:33
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tacila :
TikTok asked me if this video was appropriate 😭 i said it was educational she's beautiful
2026-08-14 19:21:27
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Curlywurly Devon’s :
What a beautiful child I hope you get answers
2026-08-10 09:40:23
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malina♡✝️🇬🇷🇭🇲 :
shes beautiful. my son he is 4 was diagnosed with Duane's syndrome . his left eye he cant move it around. the optic nerve didnt form properly
2026-08-14 04:39:37
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Ghaliyah :
Whole Genome Sequencing!!!!!!!!!!!!!!!!!!!!!!!!!!
2026-08-09 08:47:40
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Guineapig_hamster_lover2026 :
Does she have a nerve palsy or exotropia
2026-08-11 06:46:26
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Envie !! :
omg her pupils
2026-08-11 16:55:08
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Helen Brett977 :
Gorgeous little bubba! And such a fine head of beautiful hair for 9 months old!!🥰
2026-08-11 09:21:13
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tastelessbeets :
Babe she cross eyed, she can’t see out of both at once! We thought it was some crazy disease, get her glasses sis
2026-08-13 16:03:15
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