@chronicallyharleigh: I’ve been meaning to make this forever but since I got another diagnosis recently may as well tack it on 🤷♀️ I almost added endometriosis to this, but I haven’t had my diagnostic surgery yet, so that is to be determined! My mom and grandma both have it though, so I feel like… mama a diagnosis behind you 💜 #chronicillness #chronicpain #POTS #nutcrackersyndrome #spoonie
My doctor diagnosed me with a strained muscle! Actual diagnosis after 3 years ~ posterior nutcracker syndrome
2026-08-10 22:27:40
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lottie :
Not being able to include endo because it TAKES LITERAL SURGERY to diagnosis is so real.
2026-08-11 00:46:21
861
1234ideclareathumbwar09 :
I was told I had anxiety. Actual diagnosis: CANCER. And then I got anxiety too 😂
2026-08-10 23:19:57
415
kenz.ie20 :
I’m so sorry but Have you looked into EDS? 😭😭😭
2026-08-10 01:40:12
53
nelllbowrooom :
look into ehlers danlos. it causes POTS and MCAS (pic #5)
2026-08-10 23:36:04
104
Momofom :
My doctor once diagnosed me with a ✨sin problem✨ when what I actually had was a collapsed joint in my foot and torn tendons. He told me I needed to pray and get right with God because my pain was His punishment for my sinning. 🥲
2026-08-12 02:48:30
4
Majo :
Dude, they way we, as patients KNOW what’s wrong with us and doctors still won’t listen because we didn’t study medicine… I get it, they studied for it, but a HUGE part of being a great doctor (and not a person with a medicine bachelor), is listening to your patients and their concerns without prejudice or bias
2026-08-11 22:23:31
8
ℭ𝔥𝔞𝔬𝔱𝔦𝔠 𝔑𝔢𝔲𝔱𝔯𝔞𝔩 :
they thought I have nutcracker, but it was Endo on my ureter
2026-08-12 23:24:40
1
healthcaregirlie2 :
Diagnosed my self with nutcracker after years of wrong diagnosis. When I finally got into a vascular surgeon he’s like you can see it in every CT over the past several years 🙄👀
2026-08-10 20:21:02
69
Skye 💕 :
Not a doctor but you have heds or at least classical type thank me later 😉
2026-08-10 02:33:35
12
abundancemindset8 :
invisible kidney stones? lawd these doctors just being saying anything
2026-08-10 20:48:59
13
missmendy79 :
I am 47. I have 5 autoimmune and just learned this past year I have retroaortic renal vein which explains why I always have blood in my urine etc. I have has 13 ct scans and not 1 mentioned it until this last one 🫠
2026-08-13 04:10:37
2
༽💚⚛️ :
wait I thought you couldnt get a formal diagnosis for avoidant personality disorder
2026-08-10 13:23:27
0
_rani.darling_ :
And that’s on EDS
2026-08-11 06:55:16
7
Creativity 5000 :
How did you get the POTS diagnosis? My daughter is going through this. Tilt table test is next week. But she said even if she ‘passes’ she’s convinced she has it.
2026-08-11 10:02:43
0
Hannah Marie4071 :
Wait like if my fingers bend like that often (or even lock in that position) is that bad? 😳
2026-08-21 04:47:37
0
thali :
have you gotten examined for hEDS you have a few things that go along with having hEDS.
2026-08-11 02:43:49
4
Belliott128 :
You being right and then being gaslit and then being properly diagnosed with what you thought but is happening multiple terms is wild
2026-08-11 19:41:21
5
fotocanvas :
I was told for over a decade I have anxiety and turns out it’s genetic Ankylosing Spondylitis. I had to retrain my brain to realize that my “anxiety” was actually extreme levels of pain and I wasn’t having a panic attack, I was in blinding pain.
2026-08-13 02:56:07
2
MiddlenameAwesome :
your reaction to scratches is probably MCAS its called dermatographia
2026-08-11 16:10:48
3
marisa.stevenson :
Okay but why are we all getting diagnosed with so many things !? 😭
2026-08-10 15:40:47
3
Your Final Warning🔚⚠️ :
not a single doctor can diagnose properly. I watched it with my mother all throughout my childhood being misdiagnosed, sent from hospital to hospital and then they took her off her chronic meds and she was in psychosis for a week. and now with me. not a single doctor believes me, and they all tell me I'm just anxious. Not a single one knows what they're doing unfortunately
2026-08-26 08:56:17
1
NikkiH1418 :
I hate when my fingers get stuck like that for a second.
2026-08-10 02:15:33
4
Julie :
I got told “you’re just bendy” after asking why I kept spraining my ankles when I was like 17. Actual diagnosis at 38 hEDS 😳
2026-08-23 13:45:35
2
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