The Pain NP
Region: US
Tuesday 11 August 2026 20:32:24 GMT
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Sonora Chacon Creations❌ :
I cannot lay in bed, movement feels better( not a lot).
2026-08-12 00:44:40
6
Joan :
I do it to stay warm, it’s a temperature thing for me
2026-08-11 20:40:52
10
ChronicallyCrystal 🖤✨ :
Sometimes my pain is so bad I can’t get comfortable… I try my hardest because I also have Myasthenia Gravis & my neurologist said resting is the best way for me to get out of a flare. I end up going to the ER. My neurologist put a stabilization protocol in my “chart” for the ER to follow.
2026-08-11 21:55:16
2
Ms Mummy :
Yes good advice
2026-08-11 20:47:38
2
Lez-he West🧚♀️🧚🧚♂️🏳️🌈 :
I have never been able to stay in bed. Even if I’m hurting. I just keep going. Bite my tongue. But by 4pm my head is so heavy I can’t lift it and I end up sitting on my bed on my heating pad until I fall asleep at like 11pm
2026-08-11 20:38:52
4
inelisasworld :
Just going from the bed to the couch is huge on the DAYS!!!
2026-08-11 20:53:17
4
charlottestreet3 :
I’ve been suffering with really painful back spasms and advice given was to walk around and not sit down for too long….. I’m a full time wheelchair user so figure that one out!😭
2026-08-13 20:27:31
1
ooo-Oyuki Lee khan01 :
I start by moving in my bed because I wake up stiff every day 😭😭i pick up my legs with my hands and rotate every single arms and fingers then my feet . May god help us all
2026-08-12 04:19:09
1
suesimpson77 :
thank you
2026-08-11 20:50:55
2
h4ppyp3ngu1n :
Finding the perfect balance that works for YOUR body is the hardest part of our job!!
2026-08-12 01:25:13
2
Stella :
I had a bad flare yesterday on my qst day off work so I just kept going dis everything that needed done ans then last ngt allowed my body to shut down I slept to 3 pm today ans feel better
2026-08-11 21:09:04
2
MPS :
During a flare, it drives me mad. I want or need to do something and I will hobble my way outside and end Up walking around the garden very slowly and coming in again without doing anything but as they say intentions are good. 😂😂Ps that was my day today.
2026-08-11 23:36:53
2
Edith :
The last three weeks I’m struggling with a bowel obstruction but sitting still makes the pain more intense. Moving stimulates the bowels. But I’ve also had two very scary health problems that make me want to just sleep. I’ve had a TIA ( mini stroke) and sepsis. So I force myself to move then take a short nap. My journey has changed making things much harder but I refuse to just quit, moving a little keeps me physically active, mentally active mixed with rest💕💕
2026-08-12 01:44:03
1
Pam (Retired Goddess) :
this is my dilemma. hurts to move and hurts not to move smh
2026-08-12 18:41:01
2
Tj :
Sometimes that’s all I can do
2026-08-11 21:04:54
3
kerrieocal :
this is very true
2026-08-11 20:51:36
2
Schnauzermum3 :
Having a flare today. This was so helpful and encouraged me to move gently
2026-08-12 10:52:03
1
Dort :
Thank you.
2026-08-11 22:37:41
2
Janet H-M :
I made the mistake of thinking that staying in bed for extended periods of time would help me heal. I ended up losing muscle mass and now my legs are very weak and it’s difficult to walk. Listen to this gentleman!
2026-08-14 02:53:50
0
HellCat :
Are you familiar with Hypermobility Spectrum Disorder? Because I have days where literally I wake up like 'OMG Idk what I did but I feel great!' - *puts feet on floor to get out of bed* - Nevermind. 😳 But equally I can have days just the opposite and after 30 mins of moving, despite the agony, it actually unlocks everything and no the pain doesn't stop, but it becomes alot more bareable. Problem is I don't know what it's gonna be till I wake up and even then, how I feel upon waking isn't always a reliable source of information. 😒
2026-08-14 19:51:49
0
Honey :
It’s so true! MS for decades has thrashed my joints so I sit (Native American) style. But I stretch my legs out and roll my ankles and knees. Then go back. Rolling shoulders is hard for me because they hurt almost as bad as my neck. I use a chair for slow,Taichi. It might hurt for an hour or so, but then I feel reallly good for me. I take my pain meds ahead of time and I should add it’s only 10-15 min of movement. Sometimes 5 min of min is all I can do too. Even rolling my ankles. I understand pain. 4 decade of MS has taught me (I’m not being a pick me girl-old lady. Hehe) a body that moves keeps moving and a body that does not move, will not when you need it to. And one more thing. Idk who God put this on my heart for, but please don’t leave our devices to charge while we are gone or home for too long. Because most of us aren’t runners. Our animals won’t leave us either. Thank you 😊
2026-08-13 12:10:41
0
dazaharia :
Yes! I found this out the hard way! but a question. how do I find a physical therapist who can help me realize that movement is ok. like, retaining my brain while moving. is there a phrase or words that might send me in the right direction when searching for the right PT?
2026-08-12 19:40:47
1
thisisjotoo :
Agree, with the postdrome stage of my migraines I find doing quite physical housework actually helps relieve the pain a bit
2026-08-12 15:53:59
0
Better with Fetter :
I don’t move well but I force myself to move every day as much as possible I want to move it not lose it 😊
2026-08-12 15:22:32
0
Moon Angel :
💯💯💯
2026-08-12 03:21:33
1
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