Erin Rackham, PhD
Region: US
Tuesday 11 August 2026 20:43:39 GMT
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crowsader13 :
As someone who takes 4mg twice a day ….. i got used to it eventually. But if I didn’t take it, I’m in bed dying
2026-08-12 01:25:47
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DemoCrazy :
How can MCAS be diagnosed? Is there any test which could give information about MCAS? I have ME/CFS and would be greatful to get some experiences from others...
2026-08-11 20:53:25
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✨ In progress ✨ 📚 🏋️🌿 :
I can’t thank you enough for using the minimal energy you do have at your disposal to make these videos through your entire journey.
2026-08-11 21:16:26
7
jmont :
I had a very different experience, I find everytime I increase my dose it gives me more energy. I ended up going to 1mg twice a day pretty much right away because it was working too well and while taking it only once a day I felt awful from the yo-yoing of symptoms. it's interesting how it impacts people differently! I currently take 2mg 3x a day .
2026-08-12 00:26:27
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Amelia | Misplaced Style :
I had exactly the same response at the same doses. Low and slow it is. So frustrating! But a win is a win.
2026-08-11 22:41:44
2
Sofi :
That’s crazy I’m on 2mg at night and have no tiredness, I didn’t even realize that was a side effect 😲
2026-08-11 23:02:00
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Katie Chatham :
This happened to me when I moved from 1mg to 1.5mg.. I was shocked like I’m already on 1mg?? 😂 like I could not even think it was a lil scary
2026-08-12 01:54:12
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~*m*~ :
The starting dose my doctor gave me is 1mg… I’m scared 😳
2026-08-14 09:56:09
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Andreea :
I take now 1mg ketotifen at night and 0,5mg at daytime and I am functioning very well. In the first days I was sedated from 0,5mg, but after 3 days I didn't. In 2 weeks I was on my current dose and it's amazing. No sedation and most of the symptoms from mcas are gone.
2026-08-12 16:26:41
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Inquilab Zindabad :
It takes like 2-5 weeks to get used to the sedation. I started at 1 mg and went up after that period, but at the time I was more moderate-to-severe ME and MCAS, was still bedbound so I was fine with the sedation
2026-08-11 21:36:06
1
Shazzie :
I’m 6 months in and not on my full dose
2026-08-12 12:36:58
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kathleenbmovement :
It gets better if you go up. I was super scared to do the morning dose.
2026-08-12 00:05:00
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tracee_annee 🍉 :
I'm a tiny doser too 😁
2026-08-12 04:01:32
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Ad152 :
There is some thing with Ketotifen where the first three days it makes you super tired and then after that you’re fine so you may want to try it a little longer if you think it could benefit. Five of my friends now have experienced it, and it has gone away for all of them leaving only good results. It is to go up slowly tho. .5 is a big bump in one day. Every time I went up I got tired even going weeks in between.
2026-08-12 03:38:27
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tracee_annee 🍉 :
💛💛💛
2026-08-12 04:01:14
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