elle.belle
Region: US
Tuesday 11 August 2026 21:39:36 GMT
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Amanda🇺🇲💙🌎 :
the not liking eating in the morning is also a linked symptom to hEDSand specifically mcas/dysautonomia. the adrenaline dumps required to wake us up can degranulate your mast cells and give you a queasy tummy when you wake up. I've hated breakfast my whole life. Finally connected the dots.b
2026-08-12 17:48:22
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EternallyTaekn⁷ :
nail polish (even gel) won't stick to your nails is another. Mine just peel off in one piece usually within like a day...
2026-08-13 16:05:53
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TMarieG80 :
I learned that the reason I don't use the bathroom as often as most people is due to the fact that my bladder is also "Hypermobile" and allows for stretching but, I don't get much warning when I do have to go 😳
2026-08-12 14:54:40
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Marieezy🍓 :
This whole time I’ve been telling people I do my makeup EXTRA dramatically in the morning bc “you know how it settles and like melts off by 10am”.. turns out that doesn’t happen to everyone 😳
2026-08-13 12:42:58
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Emily Claire :
Extremely dry eyes! I have to use eye drops throughout the day. Eye doc and neurologist agree it’s because of my hEDS
2026-08-13 17:43:26
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Heather Steele :
2 sets of braces - elementary school through the end of high school. Invisalign as an adult and a permanent retainer cause I learned my lesson. Makeup/polish-gel never stays. Always had an aggressive salt intake. I know about hair hurting but my ears hurt when I sleep/apply any pressure, just me or hEDS?
2026-08-12 22:01:56
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carlaravema :
Oh let me tell you about hyper mobility and menopause. It is fking bad all around. The once mobile joints freeze up due to the drop of estrogen but dislocate from the now non fitting connective tissues. Of what a joy.
2026-08-14 04:17:13
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BeckyLynne :
nails, polish melts off too
2026-08-12 09:59:02
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Tiffany Roach :
yes on the make-up! it does like melt off and I just thought i was doing it wrong.
2026-08-13 23:01:31
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redflamingotattoo :
Have you/ any hyper Mobil person noticed skin adhesives (bandages, athletic take, second skin) not sticking or coming off right away?? I’ve never though about makeup not sticking but I imaging that’s linked
2026-08-13 18:34:15
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superfan77 :
I have learned more about EDS on TikTok than all the doctors put together
2026-08-13 23:02:05
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Lizardbit :
Hypermobile and jaw clenching are connected, i went to a facial pain specialist and he was the first one to tell me i was Hypermobile and just nodded his head when i told him other things the I have had issues with- wrist pain, plantar fasciitis, lower back etc.
2026-08-12 16:09:33
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Kaley :
My teeth have shifted soooooo much 😭
2026-08-14 15:07:19
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sweatyvitaminbestie :
Everything I experience that is related to my body or health is DIRECTLY linked to hEDS, MCAS, and dysautonomia. Not a single thing is unrelated. It’s exhausting
2026-08-13 23:09:34
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Carley :
I’m now learning that MOST of my experiences are all linked to EDS and connected
2026-08-12 18:24:45
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Shamrocks&Thistles :
It's because our whole body is made of connective tissue. We're a mess.
2026-08-16 01:50:18
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sierra :
Try miso soup for breakfast it’s also great!!
2026-08-12 15:45:31
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Kmhoth :
I just had a septoplasty for a severely deviated septum in May and now am afraid it reverted 😩 Apparently more common with HEDS. Going to make an appointment but I’m so disappointed. It gives me chronic sinus infections
2026-08-14 05:44:55
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Deke’s Mom :
Yep, my teeth shifted too
2026-08-13 20:46:36
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Alyssa :
I knew the thing about the teeth because my teeth are worse after braces 😭 everyone thinks I’m an addict but I swear I brush my teeth & floss.. it’s literally not fair 😭
2026-08-13 23:35:42
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𝒜𝓁𝓁𝒾𝓈𝑜𝓃 ✨ :
The makeup thing just blew my mind! It makes sense because I can’t keep polish on my nails, but I’d never considered it with my face. Even when I prep my face, wear primer, and set with powder and spray, it just seems to melt off my face.
2026-08-14 02:22:59
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Lil'bit🩵🤍 :
My periodontist swears that I did not brush my teeth and that is the reason my gums keep on receding and having EDS has nothing to do with it. since I've had to have gum grafting twice now, I'm pretty sure it's because of my gums. And yes, my teeth will shift overnight if I don't keep retainers every single night. My teeth pulled hurt with the next night's retainer
2026-08-13 19:34:41
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Nicole | EDS Unfiltered :
Tiktok has helped so many piece together the symptoms. Awareness is everything
2026-08-12 23:37:23
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𝔰𝔞𝔪𝔪𝔶 𝖙𝖗𝖚𝖊𝖑𝖔𝖛𝖊♡☠︎ :
HIGHLY RECOMMEND ELECTROLYTE CAPSULES!!! & as for makeup/nails (coming from a professional) it’s the the prep! for makeup your skincare needs to set in completely before makeup like 30 mins & a tacky primer, set with powder, finishing spray after powder THEN setting spray, and as for nails find a private tech that does a dry manicure as their prep & gel products (probably need hard gel) 🖤 HOPE THIS HELPS
2026-08-14 08:50:10
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Demi🐶 :
Your gums are made of connective tissue - that’s why our teeth move so quick 😩
2026-08-13 01:37:37
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