@drgracedpt: Replying to @Heather Hanrahan #dysautonomia #hypermobilty #chronicpain #ehlersdanlossyndrome #fyp

Potcakemom1 :

Ive been taking oxybutinin

Jessica :

When I became unable to work and left my stressful job of 17 years I suddenly felt healthier for about a year. I was finally able to eat at...

Sarah :

So what I’m hearing is, I need to vacate my life. Beach every day saltwater every day sunshine every day.

bella 🥄 🧂🫀 :

when i went on vacation last year i felt 50% better 😳

Jennifer Delgado :

It also might be lower humidity it makes my symptoms worse I live in a very humid city😅

TinkerbellStitch✝️ :

It's probably the same reason why I cannot fall asleep without having to go.Pee before bed.It doesn't matter if I peed five minutes before like, if I am closing my eyes about to fall asleep, I have to get up to go pee.Otherwise, I literally feel like I am about to pee.My pants and cannot sleep even though my bladder is ninety nine percent empty

SabrinatheECteacher :

I just figured this out after a trip I went on last month. Husband was worried because I was going to help a friend with babies but even though I was doing that and did have some symptoms I was relatively better but I wasn’t sure if it was the lack of stress or that I was only an hour from the coast with different elevation.

Sam :

We need to be on vacation all the time. I don’t pee for 10 hours at work n at home im going every hours

Healing Alice 🌿 :

I think it's the weather for me, I'm so much better in a dry warm climate

sher :

Thanks!

🔮 👎🏽 ball Rose 🌹 :

❌Life as the face painter Kat :

My bladder fell into my vaginal area and I’m having so many issues now. Suppose to have surgery in November should i worry about healing properly with this type of surgery? I had so So So many issues after my hysterectomy and had a prolapse after that that i ended up with over 25 Additional surgeries due to not being able to be stitched up and stay that way due to eds paper like tissue and ended up having surgery at Mayo in mn! I need this surgery but am scared. I’ve talked to my surgeon but..? Need help knowing how to talk to her and how to not feel scared about the surgery that i need.