@lizglenn4: i could seriously use all the prayers and good vibes #chronicillness #mcas #csfleak #bloodpatch #neurology

liz glenn
liz glenn
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Region: US
Thursday 13 August 2026 22:11:16 GMT
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brich201
brich201 :
Where exactly is the leak?
2026-08-13 22:47:42
2
michelle.jenine
Michelle.Jenine :
Oh Liz, I’m so sorry! I had two spinal headaches, one after my spinal for a c-section and one from a spinal tap. The one for the spinal tap was one off the most awful experiences ever, and I’ve had a brain hemorrhage, IC, and connective tissue disease I have no idea how you keep doing this but don’t stop. You’ve got this. I will not stop praying for you. Lay in the dark, lay flat, The more upright you are the more it leaks. My
2026-08-15 03:25:27
1
clundette
Clundette :
I’m sorry :( I 100000% understand the disappointment and devastation. However I’d really recommend not getting another patch so close to the original. The blood they put in hasn’t even been reabsorbed yet. Adding more will increase compression, which is really dangerous given the location of your leak. You risk arachnoiditis which can be a permanent complication. If you were a patient at Mayo Clinic right now, they wouldn’t allow you another patch for 6 weeks. I know your neuro means well but this is why it’s so important to see an expert. I know I’m just words on a screen to you right now, but I have been through this all and more. This is a bad idea. Please reconsider and get a second opinion from a leak center
2026-08-14 02:47:39
3
user3723194888394
Neff :
I’m sorry to hear that you’re going through this. It sounds brutal. Are you able to work or go to school or is your condition so debilitating? Good luck on Tuesday!
2026-08-14 02:03:56
1
aprilwhite59
April White :
have you been checked for chiari malformation ?
2026-08-21 01:33:22
0
chronically.roxii
Roxann Fredette :
Sending you so much love
2026-08-27 00:05:49
1
olivthebitchinwitchin
oliv :
I WANT TO PREFACE THIS! This is gross and I’m kidding, buuut I would mama bird feed you if I could
2026-08-14 03:46:42
3
cmcnelly_5
Christine McNelly-Br :
Have you been to Duke? Or cedars? Callen in Colorado? For your leak?
2026-08-30 07:28:01
0
ellenseymour
Ellen Seymour :
Oh no!!! Good luck with everything!! I’m so sorry for you!! I’ve had one as well amd it was MISERABLE!!!
2026-08-15 12:49:38
1
promoteshnate
Christie McGehee Wil :
Oh I’m so sorry 😢 even though you say it’s not long till Tuesday, I’m sure it feels like forever to you. I will be praying for you 🙏🏻
2026-08-13 23:30:22
1
patty.7654
Patty :
So sorry, prayers the second one works🙏🙏🙏
2026-08-14 23:19:59
1
buffieburnettevice
Buffie Burnette-Vice :
My heart just aches for you. How long have you had this? My wife got the after our first child was born. She could not hold the baby for nine days. The one day she got to hold her when we got into the house was with me holding her with her at the hospital we would just lay her on her cause she couldn’t hold her head up to hold her. It lasted almost 2 months completely to recover.
2026-08-13 23:01:16
2
donna_marie978
Donna Marie :
I’m so sorry😓
2026-08-14 01:00:18
1
stasiaroo26
stasiaroo26 :
Nooo I’m so sorry girl!
2026-08-15 23:32:35
1
alliidyer
Alli Dyer :
Sending all the good vibes ❤️‍🩹
2026-08-13 22:18:30
1
olivthebitchinwitchin
oliv :
I’m so sorry my love/sister/cousin/bestie if I could fix it myself I would
2026-08-14 03:44:43
1
brich201
brich201 :
Please take it easy
2026-08-13 22:47:15
2
brich201
brich201 :
Oh no!
2026-08-13 22:46:15
2
chronically.roxii
Roxann Fredette :
Nooo😭😭😭
2026-08-27 00:05:43
1
sean_not_seantayy
sean_not_seantayy :
ugh I am SO sorry 😭
2026-08-14 12:52:24
1
lablover387
Lablover387 :
I’m so sorry! I can’t even imagine!
2026-08-13 22:31:28
1
amymccarthy10
Amy mcCarthy :
Praying you feel bet
2026-08-18 08:47:38
0
sharoncorseri
Lamamama :
Oh no. We will keep praying that u get relief
2026-08-17 03:49:58
0
ag1tiktok
ag1tiktok :
Jeeze. Call Piedmont Emory neurology and oncology. Where is the leak and what is the volume? Do you have any brain shift showing on the mri?
2026-08-17 04:14:27
0
mackey3072
Mackey :
I'm sorry your going through this......
2026-08-19 14:38:41
0
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