✨ME/CFS +ADHD awareness ✨ HC ✨
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Friday 14 August 2026 16:59:01 GMT
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✨ Emsie W ✨ :
I tried it and it did nothing for me unfortunately 😞
2026-09-14 13:44:25
1
popularthug :
Yes absolutely. More energy. Even if I crash I have recovered more quickly. Stay positive and hang in there.
2026-08-26 21:08:20
3
Firefly :
Caused sleeplessness and vivid dreams IIRC-I’m sorry it’s been years since I’ve been on it. Didn’t help me with any aspect of my me/cfs or pain. Tried twice over the years for very long periods
2026-08-27 16:02:22
2
clwschwartz :
I am not diagnosed with ME, but I am diagnosed with Long COVID with neurologic complications, and I meet all the criteria for ME. I take LDN, and I finally settled on taking it in the morning because when I went up to 5 mg, it was disrupting my sleep if I took it in the evening. It helps with the burning pain, but I still get brain fog and PEM. I didn’t think it was helping at first, but I ran out for a few days, and realized how much worse the pain was without it.
2026-09-12 23:43:11
1
Nicole Nehring Polen :
I was on LDN for a while and didn’t notice any improvement in my symptoms. But everybody is different and it can help a lot of people. There are very minimal side effects to LDN, like vivid dreams and that’s about it.
2026-08-23 15:39:12
3
Em| Fighting Long-Covid✨ :
YESSS. No more pain!!!!!!
2026-08-24 18:02:04
1
Amanda :
Can you tell me what type of specialist was willing to prescribe this? I keep hearing about it and desperately want to try but despite my long covid & me/cfs diagnosis, no doctor is willing to help me even TRY to fix the symptoms. I beg for referrals and nobody will refer me anywhere. Im going on 6 years next month and cant do this much longer
2026-09-05 04:43:11
1
Fatigued Yet Fabulous :
Didnt help me, gave me migraines x
2026-08-15 14:19:59
2
💙🏳️🌈🏳️⚧️💙 :
I’m waiting for mine to arrive from the pharmacy. Im super nervous.
2026-08-28 15:52:43
1
rbkah5202 :
Yes, it has helped me, although it has not cured me. I still have to be extremely careful about pacing.
2026-09-12 22:03:22
1
jwen 🍉 :
It didn’t help me but it has helped many. I hope you’re one of the lucky ones!
2026-08-23 21:00:07
3
🕳️melk 🕳️ :
I’m seeing lots of improvement with ldn. I have mild me- neuro subtype
2026-09-09 06:22:20
1
lynnboc :
For those that it has helped with energy. How long did it take for you to feel more energy and what dose?
2026-09-02 05:00:17
1
gg19733 :
I tried it. It helped for a bit until it didn’t 🥴
2026-08-15 12:14:52
0
GC life with M.E. :
I’m starting tomorrow too 😬 I’m nervous about the side affects! Xx
2026-08-16 20:05:53
2
m_larsonator :
Hi! When it didn't work for me, my specialist stated that it might have been due to my severity. She said that if a person can increase their baseline some, meds like LDN can become more effective. I don't know the science behind that, or if it's just anecdotal, but thought I'd share :)
2026-08-25 01:19:44
1
katerd :
it didn't help at all. I even felt worse with it
2026-08-17 20:04:19
0
GC life with M.E. :
Struggled to get to sleep the first few nights and had a headache but apart from that no problems. Very relieved 😊 xxx
2026-08-26 18:03:07
1
Crxteen :
Yes it has been life-changing for me!!!
2026-08-25 21:00:08
2
Maddy :
Yes my pem is as bad now. It took 4/5 weeks to work and i did get really nauseous at first but tgat went away after a while
2026-08-16 14:30:47
2
Abbie :
I’ve started it a few weeks ago and stuck on 0.25mg as every time I try increase it I crash so not sure how to increase haha. Hope it goes well x
2026-08-15 21:26:30
1
CW :
Also ich nehme es nun seit nun fast 4 Monaten. Hm, schwierig zu sagen. Weiss ja nicht wie es währe hätte ich nicht damit angefangen. Aber so: wau das ist es! Kann ich nicht bestätigen. Zumindest noch nicht. Mal sehen
2026-08-14 17:14:57
0
birchll :
it helped my CRPS pain amazingly, but I didn't notice a difference for my fatigue
2026-08-26 17:55:56
1
MariaMaria :
been on it a few years. it helps my joint pain, gut motility and fatigue. it does take 3+ months to really start seeing improvements. the only side effects have been weird dreams as I was titrating up to 4.5 mgs.
2026-08-24 16:15:07
1
vanessa_braided4justice♿️🛼🏫 :
Yes, I helps a lot but every one is different
2026-08-22 11:53:20
1
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