June Court
Region: US
Saturday 15 August 2026 13:01:04 GMT
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VintageGemini :
I have HEDs, MCAS, POTS, I’m rh-, have double clotting MTHFR, I’m allergic to everything, past menopause as well. I feel like I’m drying daily. Daily migraines too.
2026-08-17 18:02:30
11
SDP83467 :
We all know it’s an inflammation issue someone needs to find the treatment
2026-08-15 18:33:26
97
Manic Pixie Cab Girl :
In a flare & I feel.like all my bones are breaking 😭
2026-08-17 22:59:57
4
lindsey • fort worth creator :
As someone with HEDS, we’re exhausted
2026-08-16 14:53:14
27
Nanette :
i have all the other problems, but i have deds. i think every ctd causes auto immune shit😅
2026-08-17 06:43:28
0
Amanda :
idk if it is a chicken or an egg situation, but hopefully this will lead to a blood test
2026-08-17 03:45:00
2
georgianavear :
And this is why i have now developed rheumatoid arthritis
2026-08-16 14:28:18
18
Nyra Lunell 📚|Aspiring Author :
MCAS is insane and I hate it 😩
2026-08-16 16:18:39
7
mmmm393911111 :
Literally had a cardiologist tell me it's just a flexible jointbissue and has NOTHING TO DO WITH THE HEART
2026-08-16 06:10:38
19
user7569212720953 :
Blood is a connective tissue.
2026-08-16 07:55:27
20
user686271751687 :
Is this why there is angiodema ??
2026-08-16 14:54:02
1
amberstarrRN :
This is what happened to me, after two bad viral episodes over two years, my system has gone haywire and I am still trying to get it sorted out! 😭😭😭
2026-08-15 13:21:29
11
ChocoTaco :
I suspect it affects the interstitium too
2026-08-16 14:16:37
3
Brujã.Athena :
this is what kicks my ass every day.
2026-08-15 14:18:01
4
dollfacetosomeone :
I have type 3. I tell doctors that I have type 3 so they don't automatically write me off as seeking because I couldn't possibly have the symptoms I say I have when they think "hypermobile" just means I'm more flexible.
2026-08-16 22:32:03
1
Loving life! :
https://www.musc.edu/content-hub/News/2025/12/29/rethinking-heds
2026-08-16 05:18:04
4
Nancy :
What’s the study called!
2026-08-16 08:00:58
2
1234ideclareathumbwar09 :
Yup. We know this and we want a fix. I’m 44. Showed symptoms since a very small child. It’s always something. Currently I’m battling parvob19 chronic. My immune system cannot clear it.
2026-08-16 00:53:04
6
Zebrawarrior :
Rubbish study doesn’t solely compare hEDS, how can they make claims when they’ve compared it to anyone on the hypermobility spectrum? IMO the studies from Norris Labs are being pressured to align with EDS societies goals since they fund them
2026-08-16 15:03:34
3
Isabella Thomas :
So is it autoimmune because I have two autoimmune conditions and lipodema and hds and they can’t see any connection
2026-08-16 23:00:34
0
Stevie1111 :
Huh
2026-08-16 01:12:12
0
poupy 🦉 :
so that would explain why i became symptomatic (and dramatically disabled) after covid...?
2026-08-16 15:09:00
2
Lester :
Coagulation? Maybe that explains the DVTs
2026-08-16 10:00:20
0
TallNewYorker :
❤️
2026-08-17 03:31:34
0
☀️sunny☀️ :
@ThirstiiKirsty
2026-08-17 12:28:48
0
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