@eliizabeth.maryy: I know life isn’t fair. I know tomorrow I’ll wake up, measure every dose, fill every syringe, and do it all over again. But tonight? I’m angry. Most days I can find the positive. I can be grateful for the medications that help her, grateful for her doctors, grateful that there are things we can do to make her more comfortable. But sometimes I look at all of these bottles and syringes and I’m just so angry. She’s a baby. She shouldn’t need a schedule full of medications just to hurt less, relax her body, sleep, eat, and feel somewhat comfortable. I know being angry doesn’t change anything. And tomorrow morning, I’ll wake up and lovingly give her every single thing she needs, just like I always do. But I’m allowed to be angry. I’m allowed to look at the life my baby was handed and think “this isn’t fu*king fair.” And tonight, that’s just where I’m at. #LightForLuna #MedicalMom #SpecialNeedsMom #RareDisease #MedicallyComplex

Elizabeth 💕

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Monday 17 August 2026 02:22:18 GMT