eyesonelenka
Region: AU
Tuesday 18 August 2026 11:09:05 GMT
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Emma A :
She’s a beautiful happy little angel. These things I see for SURE 🥰
2026-08-23 19:18:35
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smm :
Sorry if these were answered before- I understand she’s had a lot of testing. But does she have full movement of her eyes? Does the eye wandering improve at times? Do her eyebrows sometimes droop? She seems to be closing one eye at a time to avoid double vision which is very impressive.
2026-08-22 02:36:56
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Breanna Gabrielle🇨🇦 :
have you considered a lysosomal storage disorder? they don't always flag on genetic panels because the gene modifications are minute and often at the cellular level
2026-08-19 15:54:16
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kyleigh :
Question - does Elena experience any other neurological deficits/signs other than ocular? Her case is specifically interesting to me due to the fact that she was born with fully functional/mobile eyes & slowly lost that ability. I hope you find answers soon!
2026-08-22 03:53:03
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