@erinrackham: Just feeling extremely grateful today for my ability to access this coping mechanism again (thanks to Cromolyn Sodium, Low Dose Abilify, & Ketotifen!). 🥹 #longCOVID #hypermobility #hEDS #MCAS
Doctors do not understand the amount of never ending physical pain that goes with all of this. Thank you for speaking about it.
2026-08-18 18:06:05
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Julez :
I’m weird because I love the bath(bcuz I get to lay down) but I have extreme heat sensitivity any other time. Before I was sick I was a summer girl and now I HATE it & can’t wait for fall/winter.
2026-08-18 21:52:43
3
L :
do you have the symptoms of head and neck pressure. not necessarily a headache but more so your head feels like a balloon
2026-08-19 23:33:17
0
marierie451 :
I’m so sorry you had to go through that. Happy to hear your feeling a little better you can enjoy your hot tub again
2026-08-18 17:22:35
2
butzibutzi4 :
How are you guys able to breathe with your stomachs under water? The pressure is so strong for me, I can’t breathe
2026-08-18 21:33:41
2
Joy Kinser :
This is hopecore, thank you for sharing!
2026-08-20 02:53:30
1
✨🦂Natural Born Muse🌹✨ :
Hot tub Time Machine 😭✨.
2026-08-22 03:26:21
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Nini&Charli🎨🧶🎶🛹🐕🪴 :
I also have it, 4.5 years now. I'm glad youve found something to help! I'm struggling but moment by moment I fight and will forever. 💕
2026-08-18 20:02:55
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WendyMarie25 🇨🇦 🤍 :
Ketotife has been a game changer for my daughter! She hot tubbed with us for the first time in 3 years this week 💙
2026-08-29 05:32:26
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