@youngepilepsy: "All seizures look the same." 👀 Not true. In our latest podcast episode, Hattie (@Purpledayss), Spike and Sophie from our Youth Voice Network talk about why epilepsy is different for everyone. Different seizure types. Different triggers. Different experiences. That's why understanding epilepsy starts with listening to people who live with it. 🎧 Catch the full episode of the Let's Talk About Epilepsy podcast on Spotify, YouTube, Apple Podcasts and all major streaming platforms - links in bio. Remember epilepsy is a highly individualised condition. The information, experiences and views shared in this podcast are not intended to replace professional medical advice. Always consult a qualified healthcare provider for personalised support. If you're feeling sad, worried or lonely, text PURPLE to 85258 to start a conversation with a trained Shout volunteer 24/7. 💜 Drop a purple heart if you're helping raise awareness of epilepsy. #LetsTalkAboutEpilepsy #EpilepsyAwareness #Epilepsy
Young Epilepsy
Region: GB
Wednesday 19 August 2026 09:00:25 GMT
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🐈⬛ 은 하 🖤 :
I feel trapped and someone just snipes the control from me
2026-08-23 06:07:48
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Claudine :
problem with mine is there is no set trigger. I habe no warning I just go. As some people say when have auras and absent moments means gonna be big tonic-clonic but doesn't for me. I have absent moments every day and auras. but big ones fingers crossed tad more under control due to VNS. But I have no specific trigger sometimes be sat doing nothing, calm relaxed and it happens. Other times be stressed. but sometimes be stressed and all things be fine. People that know me don't know the triggers as i don't warn it or change. Sometimes happens and they know to get me on floor and calm. But most time fine. Is annoying when people say all same as makes feel like nothing.
2026-08-20 12:44:05
2
Kady Newbrook Delaney :
I've got epilepsy since I was about 2 years old and I started of with steering fits then I stop for a bit until now it carries on 💜
2026-08-20 12:37:17
1
vintage addiction :
Thank you for having me !! i had such a lovely time expressing my frustrations and journey !!! 💜
2026-08-20 11:23:35
1
Rhys Colville :
its not easy especially when nobody understands 💜
2026-08-19 20:49:40
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Kelly Louise 🦋🌼🪽 📚 🇬🇧 :
it's annoying 😑 all seizures are different
2026-08-21 16:28:40
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Matt Seligman :
100% Always be so greatful for those who those in your life who try to understand. Those looking out for your limits and triggers while not judging or changing the way they see you.
2026-08-21 17:33:55
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Samoya Campbell 123 :
2026-08-21 17:06:38
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Purpledayss :
💜💜💜
2026-08-19 10:45:43
1
Charles - FNDDAD :
💯
2026-08-19 21:18:01
1
Macey :
💜💜💜💜
2026-08-22 12:09:22
0
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