@dra_says: 3 conditions that we need to rule out before we diagnose fibro! #fibromyalgia #chronicpain #fibromyalgiaawareness #doctor #fibromyalgiawarrior💜🦋
my diagnosis was labeled fibromyalgia for 3 years. it was syringomyelia from chiari malformation.
2026-08-20 02:09:28
3
Jules :
I’ve only been tested for sjogrens syndrome
2026-08-20 18:04:25
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isolatedpoptart :
once diagnosed with fibro my gp blamed everything on it and didnt listen. Turned out I had multiple sclerosis as well.
2026-08-19 19:48:11
53
kj :
I have sent a message if your able to help
2026-08-22 00:59:40
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💛Sugar Rush Fermanagh💛 :
I got diagnosed with fibro when I have Ankylosing Spondylitis, even with a positive HLA B27 and father having it. Thankfully I'm on anti tnf meds now. I also have Heds.
2026-08-20 04:58:42
13
Alex witchy beyond the scream :
no one bothered ruling out anything. fibromyalgia is all they said
2026-08-21 21:55:15
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Anita’s journey 💪💗🌸🐝 :
sadly theirs couldn't care less, cant or wont test
2026-08-21 11:38:27
1
Cath :
Yo! The first one… Uhm… That’s my symptoms. Can a GP help me with this? How do I bring this up?
2026-08-21 09:00:26
1
donna :
i was diag with fibro first then hypermobility though
2026-08-20 16:29:12
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Kirsty ✨🪐🫧🕯️💎 :
Why has early MS been missed off the list? It’s one of the most important to rule out
2026-08-21 19:26:26
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Annie :
what if youve already been diagnosed with Fibro..how do I now ask for hEDS to be tested..its been 3 almost 4yrs woth "fibro"
2026-08-19 19:21:55
3
merseylass :
ive never been tested for anyone of these things; but told i have fibro. :(
2026-08-20 12:03:01
11
distracted_sanctuary :
How would I get someone to rule out small fiber neuropathy?
2026-08-20 02:52:56
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Isabel :
They only ruled out rheumatoid arthritis and lupus before they slapped me with a fibromyalgia diagnosis when I was 18. Now I’m almost 26 and have just recently gone to a chiropractor as a last ditch effort and he was the first medical professional that asked if any of the previous doctors I’ve seen had mentioned hyper mobility.
2026-08-20 03:07:28
5
Angela Clark779 :
last gp just said it was fibro and wouldnt look into anything else and now im in pain daily but have had burning pain in my hips but i was bending when youger and my kids have hypermobility
2026-08-19 21:13:18
3
kross :
I have ME, chronic pain and fatigue....I think I have fibromyalgia as well....is that possible?
2026-08-20 20:13:32
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cat taylor 🇬🇧🇧🇷 :
I was diagnosed with fibromyalgia 5 years ago, and diagnosed with hEDS two months ago. It explains so, SO many things that fibro alone doesn’t. My MSK pain specialist told me it is possible to have both conditions as co-morbidities, but I always had a feeling there would be something else the doctors would find I have because I have a ridiculous amount of symptoms that either aren’t covered by my pre-existing diagnoses (like how my knee dislocates on a daily basis) or are commonly co-morbid with hEDS for example I also have POTS
2026-08-20 09:53:13
6
sara :
my physio told me gps cant diagnos fibro .
2026-08-19 20:41:54
1
Peter Spyner 🇨🇦 :
Can someone clear something up for me if I have Ankylosing spondylitis does that not mean you don’t have fibromyalgia? I also have hEDS but I think that means I was being lead astray when one former dr started insisting my joint pain is caused by fibromyalgia and that she is then misdiagnosing me.
2026-08-20 04:03:23
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fairy brook furries :
I’ve got fibromyalgia but wasn’t tested for any of these I was told I’ve or
2026-08-20 15:55:26
0
fountainpenjourney :
How can I get my GP to consider heds? 8 months in and finally got a physio assessment.
2026-08-19 23:26:01
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S333 :
What type of doc diagnosis Ehlers?
2026-08-20 09:52:24
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🇨🇦Boston X Babes🇨🇦 :
I see hEDS everywhere these days? Where was this 15-25 yrs ago when I was going to a dozen drs to find out what is wrong with me? Or anything you just mentioned? I always felt just pushed off and when they couldn’t find something on labs or standard tests they just tossed out Fibro/ME/CFS and Myofacial Pain Syndrome at me as “we don’t really know” lol smh 🤦🏻♀️Now I’m stuck with them.
2026-08-19 21:00:57
4
Bunchkin🧁🔵🍉🏳️🌈 :
Diagnosis 1 was fibromyalgia. Found out I have small nueropathy, HEDS, MCAS, arthritis, plus a few bonus things im working on now.
2026-08-20 10:54:38
4
dumbell girl :
You have lovely eyes 🥰🥰🥰
2026-08-19 20:01:27
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