Stacimichelle
Region: US
Thursday 20 August 2026 22:47:10 GMT
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Tammy Hernandez869 :
I’ve heard getting a lawyer is the trick to getting disability. The lawyer doesn’t get paid until you get approved. It’s worth looking into.
2026-08-20 23:21:32
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Jane Burns :
Challenge them. Ask them why should you be refused because of your age. you taking part could get them break through info. You are very courageous xxx
2026-10-11 15:35:27
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Kasey, PhD :
Generally- no. There is no way to get around the clinical trial protocols as that is the age range that was approved by the IRB HOWEVER it is worth it to contact the study coordinator directly and ask whether the study has an expanded access or protocol amendment. Sometimes, if there isna strong scientific or medical rationale, an investigator can ask the IRB directly for exception. Contact your local aging and disability resource center. Despite the name, it serves adults with disabilities at any age. As you said, early-onset Alzheimer's is actually a Compassionate Allowance condition with SSA, meant to be fast-tracked, so a denial likely points to insufficient medical documentation or a procedural issue rather than age. You should appeal rather than accept the denial, ideally with a disability attorney (contact Disability Rights Florida-- free services!) or advocate who knows how to work the CAL process, and the Alzheimer's Association Helpline is also a good resource for younger-onset cases specifically. Also, when you call the ADRC ask specifically about the National Family Caregiver Support Program and Lifespan Respite Care, both of which fund respite care for caregivers (like your mom and husband) regardless of the care recipient's age. Given your baby and lost income, it's also worth asking the ADRC intake worker about any additional financial assistance programs they can screen for in that same call regardless of whether you need it right now.
2026-08-21 12:15:19
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MommaFlo :
The thing that helped the most to get hubbys disability approved was a personal letter from his physicians. He was 56 with Lewy Body Dementia
2026-08-20 23:43:24
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helloheylol44 :
Unfortunately, you can’t join Butanetap yet because it’s no longer recruiting. As for Trontinemab, there are lots of locations recruiting in Florida, but you’re not eligible due to age. ): You can try reaching out to the principal investigator directly and asking. I’ve seen it happen where principal investigators can be lenient to the criteria. They may be willing to accept you if you share your story and who you are. Also, remember that these are double blind studies! You may not even receive the treatment, so don’t feel devastated if it doesn’t work out. I’m so sorry. 😢
2026-08-20 23:10:39
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Mandieboo :
get a lawyer that doesn't get paid unless u do
2026-08-22 07:24:52
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Eri :
Can you get approved for compassionate use for the experimental drugs? This is reserved for patients with unmet need who are not eligible for trials
2026-08-20 23:28:53
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justbecool :
Try the university of Michigan this being a blue state you’ll have way more opportunity to be accepted via the hospital for those types of trial medications medication I was on was $1000 a day covered by the hospital. There are no criteria as far as whether or not you live here just whether or not you’re being seen by the hospital you can go in via ER and established care.
2026-08-20 23:30:38
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Laikee :
You mention maid not being available, are you willing to share if that’s an option you would choose if it was available?
2026-08-20 23:04:04
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Mimi4 :
Please get a disability attorney, they are so helpful and do not get paid unless you do. Good luck!
2026-08-21 00:51:46
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kgirl :
I was a former insurance regulated that specialized in health as well as disability insurance laws. I handled MANY cases of insurance denial and won most my cases forcing the insurance company to reverse the denial and pay!! Contact your state insurance department for help as it’s free and they have many ways to help you!!
2026-08-21 13:56:36
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MariettaInJersey :
You could ask the physician investigator to file for a protocol exclusion waiver. That would have to be approved by the IRB and given sponsor approval as well as obviously investigator approval. Best of luck to you. Can’t hurt to ask.
2026-08-21 08:08:56
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kari :
We are failing in medical/disability my dad fought for 5 years he had a stroke and 2 heart attacks he passed away 2 months after they finally approved him. I think the only answer is to always speak out
2026-08-21 01:20:53
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Justyna :
Denied for disability too? What?? I hope you appeal.
2026-08-22 16:08:57
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𝓓𝓪𝓷𝓲𝓑𝓮𝓮 :
For disability I just kept applying until I annoyed them enough to approve me
2026-08-20 23:12:38
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Kylie_LaLaLand :
May I ask how old you are? I love your videos. You are so positive despite your situation. ❤️
2026-08-22 16:21:09
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vboe1 :
My mom is doing the Trontinemab trial in Gainesville, GA. Althouhh she could be getting the placebo, with the improvement she’s felt and also some of the side effects (nothing too bad), our hope is high! She is 67, so she was within age range. Might be worth a call though! Thank you so much for your posts and advocacy. ❤️
2026-09-15 02:33:56
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justbecool :
Florida is horrible as far as medical care is concerned Georgia also even at the colleges
2026-08-20 23:32:32
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lisagph :
You have a beautiful smile
2026-08-21 02:45:17
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sykopoet (Lisa) :
So early doesn’t really mean early?
2026-08-22 19:36:21
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megalyse :
Contact your state representative their office is really helpful to the disability process approved and helps avoid the multiple denials
2026-08-26 13:31:11
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Kristin :
We must have birthdays very close. Sending you all the good vibes, Staci!
2026-08-22 01:29:52
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Sunshine Wisdom :
Maids is available in Washington and Oregon I believe. I’ll be looking into it myself if I come back positive
2026-09-07 02:24:13
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PullenMycrew :
my husband is 60 and we have been trying to get SSDI for his early onset Alzheimer's and he keeps getting denied. Good Luck, same with Leqembi. Frustrated
2026-08-22 19:33:08
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Francie :
you need to get a disability lawyer to get your disability. I had to get one when I filed for disability.
2026-08-21 01:07:30
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