Kit ✨♿️
Region: US
Friday 21 August 2026 19:20:28 GMT
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Danielle Clifford :
I hate that the AI search at the bottom of my page is: "why is everyone disabled now?" 😭🤮 even the algorithm doesn't understand
2026-09-07 18:45:06
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Kiara Smith :
Agreed. I couldn’t say it better. And it’s hard for me to be okay with not being okay for no reason some days
2026-09-07 22:33:24
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Eloico :
And on the good days I clean/cook/do laundry for hours bc I don’t know when I’ll be able to again
2026-08-21 19:34:42
85
Ginger Snapping :
I am crashing after a vacation… a vacation 😭
2026-08-22 13:52:29
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Ali :
And doctors and family only seems to recognize the sun-up days. Thanks for sharing this and helping me feel a little more human too.
2026-08-22 04:56:23
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KalLovsCorgis :
I hate that I took 2 weeks off to rest and relax at home and the first week & 1/2 were in a flair sooo now as i have 3 days left where i feel good im mentally preparing to go back to work 😭
2026-08-21 19:30:07
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Chronically Positive Lezli :
Yes! This is a beautiful way to explain that disability is often dynamic. Mine certainly is!
2026-09-06 16:25:53
0
Tamara Epps629 :
The majority of people only see us on our best days, so they can't imagine that other days aren't full of the same level of energy and symptoms. When we try and explain we are accused of faking or exaggerating, which is why so many people feel they can't share the good moments because the judgement (which can come in the form of benefits being rescinded at an extreme level) creates fear around having a good day. And we're also often made to feel guilty for finding joy in our lives, because they assume that if we're really disabled we should live small lives.
2026-08-21 22:36:34
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Zana The Book Fairy :
One that frustrates me the most is my changes in strength. Some days I struggle to lift a small cup of tea. Other days I'm hefting shit about like I used too. It's so frustrating.
2026-08-21 22:12:45
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Aly Writes a Book ✍️📚♿️ :
I hate having to explain to my work that yes, I can go to karaoke with everyone. No, I cannot have soy sauce. Yes, I can walk inside. No, I cannot sit outside in the summer.
2026-08-24 17:25:58
4
Aeawynn :
I suffered a lifetime of medical neglect for various reasons. So I spent my life thinking I was weak or lazy. That all the weird quirks my body has was just normal. That everyone felt some kind of pain all the time. So it was that I wasn't diagnosed until 42. And because of the dynamic nature of all my symptoms and flare ups, my sister refuses to take me seriously and activity talks shit behind my back to the rest of the family. So for my own mental health, I've started to pull back and set boundaries from her toxic narrative.
2026-08-22 00:08:54
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obsolescent :
I blame Hollywood and lack of educating k-12 on disabilities. way too many people think that a wheelchair user is always going to be paralyzed, blind people have no vision, and deaf people have no amount of hearing. if only people understood that disability is a spectrum and even one person can experience both ends of their own spectrum in just a few days time or even the same day.
2026-08-22 04:39:26
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raka🥰😊 :
...I lost job after job and cant every make them see that im just sick. and have issues i cant fix just live with...and no one. wants to understand
2026-08-22 01:42:30
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berb :
I feel so invalid for having days where I can do more/feel closer to the person I was back then, it’s almost like I have to put on a performance to prove to everyone that I am sick or else I am faking it
2026-08-23 14:43:30
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Jae Toomey :
yeah. no one at my job could understand this. I honestly think their inability to understand played a large role in my being fired.
2026-08-22 01:59:58
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☘️🍀Penny & Cindy♐️ :
It's exhausting explaining it to people so I don't. I use my energy for more important things.
2026-08-21 22:22:15
2
Author Sapphire Jones 📚 MA :
Mine is like that too, I wish more people knew what it's like
2026-08-21 21:40:03
2
Megan 🧸🎀 :
“But you traveled to Denver Colorado” yeah a 7 day work trip for my boyfriend. I started flaring up half way through the plane ride. The first two days I was in pain all day. The rest of the time I was in the indoor pool because that helps my joint pain
2026-08-22 00:00:02
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Jabberwocky56 :
finding this while on a horrible flare is a fantastic reminder because every time I'm on a flare I feel like I'll always be there so I really needed this
2026-08-21 20:46:57
4
souredpineapple :
im a raver and used to go to tons of shows and festivals…. that being said, i was using party favors to be able to handle it all. sobered up and it is very much up to my body what i can do these days. sucks when you’ve dealt with substance to be able to do things so you also don’t get believed !
2026-08-22 00:33:09
3
Aesthetic Art Hub :
When you are in flare up people be like “Why are you always fatigued ?” When you are well and have some energy, the same people go “you dont seem like you have a chronic illness since you can do this“ 🤷♂️🙄
2026-08-24 05:33:53
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🌸 Heather 🌸 :
Went camping with several families during an hEDS pain flare. They were being so passive aggressive about me being “lazy” and not helping out as much. My husband chose to carry our weight so I could rest. I don’t know why it ruffled feathers so much.
2026-08-21 21:40:11
3
James 🏳️🌈🏳️⚧️४✴️🏛४ :
OMG LAUNDRY CAN BE SO HARD. moving the heavy basket, dumping it into the top loading washer, and swapping the freshly clean clothes from the (again) top loading washer to the side load dryer can be absolutely exhausting or even agonizing for me sometimes
2026-08-28 04:26:09
1
rio :
im not diagnosed but there are days where i can go to dance class and there are days where my joints are in a lot of pain and i should not walk if i want them to get better, certain people don’t seem to understand that thats possible
2026-08-21 19:40:24
2
lizzie_n_disguise :
The most common misconception is that chronic illness folks can have fun sometimes.
2026-08-21 23:52:12
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