@evelynmiller48: Sometimes you just have to sit there and question your life choices before going into Sam’s 😂 I’m not going to lie, I’m sitting here feeling like my arms are detached from my body because of idk… just MS lol. I just feel off, but I’m trying not to take myself too seriously & just do what I can do today, however long it takes me. Living with chronic illness is a lot of “well… this is apparently what we’re working with today” 🤷🏼‍♀️ I may have forgotten what I came to Sam’s for 17 times AND what this video was originally about, but eventually I’m hopefully getting groceries. 😂 #msawareness #livingwithMS #chronicillness #multiplesclerosis #multiplesclerosisawareness

Evelyn Miller | Living MeSsy🧡
Evelyn Miller | Living MeSsy🧡
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Monday 24 August 2026 17:33:14 GMT
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meagan_blueyes
Meagan McGarity :
That pain sounds like Trigeminal Neuralgia. I have it and have to take an anti seizure medication to keep it under control. When it first started for me, it would happen for a month then go away for a few months then come back. Now it is constant, and the pain level changes all the time.
2026-08-24 19:39:14
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jenhen1933
Jenhen :
what muscle relaxer do you use? especially 1 that helps you fall asleep sounds good 👍
2026-09-07 23:52:27
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animalmom124
Animalmom124 :
I feel you. I miss being able to go to Sam’s, but I moved two hours away from LR so I can’t go anymore. Look up Trigeminal Neuralgia. It sounds like some intense pain I had several months ago.
2026-08-24 18:12:42
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jadener94
@jadener94 :
I woke up one morning paralyzed from the waist down in December. Thankfully I fully recovered fairly quickly. But during that recovery time my husband talked me into doing online pickup shopping for all of our groceries and it has made a world of difference! I keep a running list on my phone so I don’t forget what we need. I also save a bunch of money doing it this way. I do go in and pick out my own fruit when needed so I still get the store experience but it saves so much time and energy
2026-08-28 00:32:07
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erin_u_
Erin_U4 :
Trigeminal neuralgia…
2026-08-26 18:34:39
1
brittbritt19890
🧡BrittBrat🧡 :
I have to make a list! Even if it’s jar 3 or 4 things the list is VITAL!
2026-08-26 01:14:14
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rapunzelofdoom
Nicole :
I don't have memory issues but get anxiety out and about. So I do Instacart deliveries.
2026-08-24 22:16:51
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leahnjohnson22
leahnjohnson22 :
💔 I feel this! The cognitive struggles I have at the moment is soo debilitating. Have you ever done any kinda of cognitive rehabilitation? I’ve been looking into it, but it’s soo expensive and not sure if it’s worth it 😩
2026-08-24 21:24:29
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kimycx3
KimyC :
So a pick up and sit in car n wait 😝
2026-08-24 20:02:21
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mikajo14
Mika :
Since my diagnosis in December of 25, I can’t go into stores anymore because I suddenly have the worst case of vertigo and it’s ruining my life 😂🙃 Bend down? Dizzy. Bright lights, dizzy. Breath? Dizzy.
2026-08-24 20:08:43
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burntpeas1
Burnt Peas :
Got a lesion along the trigeminal sheath in my brain and ended up with trigeminal neuralgia. That pain is insane. Nothing helped it until I got put on oxcarbazepine and that stuff has been a life saver.
2026-08-27 11:39:59
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chronicallyillgirlypsa
chronicallyillgirlypsa :
My memory is getting so bad. Like I NEVER used my calendar but now I am constantly putting things in my notes/calendar. Sometimes it’s just not enough anymore.
2026-08-24 20:31:41
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wanderingyaga
Wandering Yaga🌙 :
I feel this. I'll forget my sticky note in the car even. Its as if I need a back up sticky in my bag. I get the jaw and face pains. Its starts where my wisdom teeth were and my lips feel like they're swelling. This usually for me is the start of a flare, and I'll have it throughout. I'm really sorry you had this. Hoping its a one time thing.
2026-08-24 20:09:35
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denise.workman70
Robin Workman :
I agree with the other lady. your face pain sounds like trigeminal neuralgia. I think it's honestly listed as the #1 worst pain ever.
2026-08-26 01:43:53
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johannabaker26
johannabaker26 :
It’s tough, I know 🧡
2026-08-25 18:28:18
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bedo.boss
bedo.boss :
I go to a rehab here in Germany… they make me do those memory exercises that should test my brain and also strengthen my cognitive skills !! Sometimes it works and sometimes I’m just so dumb! I totally understand what you are saying 🥴
2026-08-24 17:46:02
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hey.karena
hey.karena :
This is me 100% but still no diagnosis I have almost every symptom but nope not yet
2026-08-25 18:05:27
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april.m.75
💙💙 April 💙💙 :
If I don’t make a list, I will not remember. I’ve also had to start writing it down if I know I need it because I will forget. I’ve been blaming it on Covid. Just diagnosed and see the MS specialist in two weeks.
2026-08-25 14:15:40
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denij619
denij :
I know the feeling 🙏
2026-08-24 17:47:21
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thg.2425
T.24 :
I’ve started ordering and picking up from HEB. I’m in Texas.. but also the heat. My mind just doesn’t work.
2026-08-27 21:49:42
0
fafomichelle
FAFOMichelle :
This is me with fibromyalgia. Disabled veteran as well. You rock!
2026-08-24 18:42:43
0
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