@erinrackham: Round 2–Valtrex for Long COVID (1500 mg/day). Valtrex is significantly helping my nerve pain again even after just a few days of being on it & I’m eager to add Celebrex (since that’s what the trials do), but waiting until I’ve stabilized on my higher Ketotifen dose. **The Bateman Horne studies showed that the lower dose of Valtrex was just as effective as the higher dose, so I may drop back down to 1,000 mg/day if I start to notice any side effects. 🤷🏼‍♀️ #Valtrex #Valacyclovir #epsteinbarrvirus #longCOVID

Erin Rackham, PhD
Erin Rackham, PhD
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Tuesday 25 August 2026 14:19:28 GMT
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jenniferleiningcr4
jenniferleiningcr4 :
I’ve been on high dose Valtrex and celebrex for long Covid and reactivated EBV .. it has made a huge improvement
2026-08-25 14:23:55
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emparker49
EmParker :
Wow, I was going to ask why it helped your nerve pain because I have horrible nerve pain. Maybe I should try it again. Thank you for sharing 🙏
2026-08-30 20:49:32
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andrewcrawford210
Andrew Crawford210 :
How did you find a doctor/doctors that were willing to try a range of off label meds to treat your rare symptoms... most doctors ive met are conservative and not willing to try things out side the box even when conventional meds failed.
2026-08-26 03:10:35
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shadowssettle
shadowssettle :
Celebrex helped my brain fog, my allergist recommended it because it can help MCAS too
2026-08-26 10:06:26
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beiser.nicole
Nicole Beiser :
I HATE CELEBREX. The rhum put me on it but the rebound headaches were wicked! as a chronic migraine and tension headache girlie, stay away from celebrex. BUT I am so glad things are looking up for you! praying for everything to help you feel better
2026-08-25 20:59:38
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riotgirlonfire
riotgirlonfire :
I loved being on truvada for LC/EBV.
2026-08-28 16:30:18
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gracemademelbourne
user680200462567 :
high dose vacyclovir literally changed my life 🙏✨😭
2026-08-26 08:03:20
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ad1245678
Ad152 :
Celebrex *****caused mouth sores and joint pain - known side effects . Had to get off.
2026-08-26 02:41:40
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sjonherway
Suzanne Judd :
Can you make a video of all the medicine you’re on and what they are supposed to be doing for long Covid for you or for the mcas?
2026-08-25 16:34:00
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copingwithbrooks
copingwithbrooks :
I’ve never tried that high of a dose recently anyway. I should try it again.
2026-08-26 17:00:45
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birchll
birchll :
does it help with fatigue at all?
2026-08-26 15:33:38
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no023187
no :
This is so fascinating I survived the first wave in New York. The worst wave I was hospitalized and then sent home basically to die and I was put on Valtrex like five months later because we couldn't even find a doctor or couldn't even see a doctor for at least three months And when I finally saw an immunologist who specialized in ME she put me on six months of it at 1000 mg and it did absolutely nothing for me which isn't to say it isn't effective for you. I just find it really fascinating that it didn't help with nerve pain at all for me. I have small fiber neuropathy from Covidand I still have Al Onia burning back pain on my back every day and the Valtrex never helped with any of that neither did gabapentin.
2026-08-25 21:32:53
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lavendermilktoad
Lavendermilktoad :
Celebrex was knocking me tf out, so I’m still on my second week of Valtrex only.
2026-08-26 13:19:00
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lauraastra
lauraastra :
wait why did the cardiologist want you to stop? does it have heart effects?
2026-08-25 19:18:17
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pamelacouncil
PAMMI COUNCIL 💅🏽⛲️ :
So funny… I started again yesterday after 6 weeks off! Tis the season
2026-08-26 01:06:15
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lexilassie13
LexiLassie13 :
The herpes virus lives in the nerves. Long haul covid makes these viruses come out of the wood works. So you’re actually treating that and not long haul covid. Just stay hydrated because it clears through the kidneys. Our stories are pretty much the same. Ketotifen and LDN gave me life again. Glad you’ve found them as well!!
2026-08-25 20:06:04
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