@sabrinal4mb: Tests he has had: 4x colonoscopy, 1x endoscopy, 1x MRI, 1x CT Scan, multiple blood tests, parasite tests, stool tests, h pylori , Fit test positive, infectious diseases tests. He also had a fistula which ruptured and became septic. This has since has surgery on. His blood tests always show an abnormal shape of red blood cells. The highest level of inflammation in stool samples was 556. 2 years ago, Sean’s because unwell after having bali belly and a fistula. He now always has rectal bleeding, dhiarroea, pain, cramps, bloating, confusion and several other symptoms. Two years of appointments, tests, waiting, trying the NHS, trying private healthcare… and still not having the answers we desperately want. We’ve now been given an NHS private referral, so we’re hoping this might finally get us somewhere. It’s also one of the reasons we’ve decided to buy a house and settle down. Travelling has become so much harder when you never know how you’re going to feel or where the nearest toilet will be. We never imagined a health issue would have such a huge impact on our lives or influence some of the biggest decisions we’ve made together. So this is another update in Sean’s story. If you’ve been following along, thank you for being here 🫶 #healthjourney #nhs ##ChronicIllness#ibs #crohns
Sabrina Lamb
Region: GB
Friday 28 August 2026 09:39:33 GMT
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Mukesh :
Sounds like ulcerative colitis. It's auto immune illness.
2026-08-28 21:07:50
1
obsidianrose10 :
Has he had a colonoscopy?
2026-08-28 10:13:52
0
K Mehta :
Just take him to india you will get a answer straight away!
2026-08-28 23:18:11
1
pr17s :
The symptoms sound similar to u
Ulcerative colitis. I have family members who suffer from it and it can be hereditary. Hope you get a diagnosis soon.
2026-08-28 11:11:07
7
5rana09 :
look at Sibo...similar issues ended up being sibo
2026-08-28 17:22:05
0
L A U R A :
Has he never been offered a colonoscopy?!
2026-08-28 18:50:17
1
Basanthi :
My husband had this on going for several years. No diagnosis. Went away by itself.
2026-08-28 14:59:11
0
Luckiest man alive :
sounds like diverticulitis. simply means the pouches in the bowel are weak and burst
2026-08-29 04:49:43
1
Triplettt :
I had colitis for 4 years nothing worked until I started taking testosterone I stopped taking it then the bleeding started again so back on the testosterone all OK again
2026-08-29 09:57:12
0
Pagal Lady :
not sure if I suggested this before but see if he can remove gluten and even dairy/cheese for a few weeks and see if that helps
2026-08-28 10:37:09
15
blondie :
I have the same ulcerative colitis it’s a nightmare if I had money I would go to china for treatment
2026-08-28 16:47:47
1
Mariamalik :
Yeh be careful my cousin was like that for two years, finally changed doctors was later they said 4 stage rectum cancer he died last week he was 44 push as much as you can to get diagnosed
2026-08-28 14:38:21
1
CrohnsdiarywithEm💜 :
Took me over 10 years to get a diagnosis for Crohn’s, started treatment 18 months ago and 3 months in I was and still am in remission. The inflammation was so bad I had 4 strictures one being 6inches and I was just under 7stone because I couldn’t eat. Being in remission was the first time I was able to eat in my life without being in pain
2026-08-29 06:22:28
1
KathyH :
I had rectal bleeding for 10yrs
2026-08-28 21:10:42
1
V :
Ulcerative Colitis 🙏
2026-08-28 14:24:15
8
sonia1.b :
Sometimes there is no firm diagnosis 🥲
2026-08-28 19:56:51
1
jojowebbxox :
uc, which is what i suffer from or crohns which my sister suffers from. it took me over 4 years to get my diagnosis even though they knew my sister had crohns, and it took 2 colonoscopy and many biopsies to get my results. best of luck to you both.
2026-08-28 21:15:57
2
Nya :
Sorry to hear that. Hope you’ll find the answers for ur hobby and also hope n pray that everything works out for better and feel better asap 🤲
2026-08-28 15:28:45
1
SrayatS :
Not sure if this has been looked at … Could it be a parasite? Wishing you both all the best.
2026-09-21 22:17:48
0
kia jewels10 :
so sorry to hear that !! which country was this from ? you don't have to answer if you don't ❤️
2026-09-12 17:52:52
0
Ash :
Id be inclined to try the endoscopy capsule
2026-09-13 19:33:19
0
S A A D O O ❤️ :
Wwww
2026-09-09 21:42:35
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Kausar Hussain :
all the best
2026-09-07 00:40:19
0
angelalamb92 :
Hope it goes well with the private hospital
2026-09-01 12:12:26
0
JayCee :
Hope all is well
2026-08-28 10:43:09
0
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