@purpleforpaisley: Paisley update Paisley has been in ICU now for 25 days 23 of these days have been on life support. Paisley was on the conventional ventilator but sadly took are really bad and scary turn last Sunday and ended up back on the oscillator, fast forward to Tuesday thankfully once again she was able to be moved back to conventional.🙏🏼 On Tuesday the 26th after multiple cultures ( test for infection and fungal markers ) BAL’s ( where they do a deep infection/ fungal test of lungs) paisleys lungs were still not improving despite being on multiple antibiotics/ fungal medications 💊 they finally decide to start her on high dose steroids which obviously come with a massive risk this is why they were being so reluctant to give her them❤️🩹 Over the last 5 days paisleys lungs on her Xrays have showed improvement !! Her CRP ( a test that shows how high your infection or inflammation markers are) has dropped from 409!! All the way down to 41!! 🥹 another small positive! Today has been one of her best days since being admitted to PICU even though she’s had her small wins sadly yet again today Paisley has been faced with another complication 💔💔 Paisley is still needing lots of support from the ventilator her sats started to drop once again to the low 80s out of nowhere after having such a good day 💔 the done an emergency xray and they found they Paisley has a pneumothorax ( Air leaks into the space between the lungs and the chest wall. )This puts pressure on her lungs and heart which can cause her lungs to collapse again 💔💔 She has now been rushed to emergency theatre to have a chest drain put in to her left hand side to drain the air from around the lungs and heart so her lung can expand again properly! It’s honestly just blow after blow! We get a few wins and then we are hit with something like this! 😭 each time it’s breaks our hearts a little more! she is a strong girl and has so much fight even with what’s happened today we know our Paisley will be okay and will keep fighting! Just another unfortunate set back! 🥺 Our beautiful girl still needs all the love and support she can get so please keep praying for her, keep supporting her! She’s the most amazing little girl!! As we truly believe it’s just a blip in the road! we are staying positive and she will be back to kicking cancer but in no time 🎗️💜 Fuck cancer 🖕🏻🖕🏻 #cancer #fyp #sad #hope
Keep fighting Paisley. Sending love and lots of prayers 🙏🏻. Beautiful girl we all can’t wait to see her wee smile again. 💜💜💜💜💜
2026-08-30 22:30:32
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ajr :
prayers for your baby to get better 🙏 ❤️💙
2026-08-31 21:33:17
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CL x :
Come on beautiful princess 💜💜 big loves today tomorrow and always. Forever in my prayers 🙏🏼 xx
2026-08-31 10:46:56
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Case :
She will beat this 💜💜 thinking of you all 💜💜
2026-08-31 06:55:40
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catwoman8576 :
such a fighter. sending lots of love to you all and prayers for little paisley 💜💜💜💜xx
2026-08-31 17:03:52
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🧹🖤🧡 DonnaH@42 🧡🖤🧹 :
Keep fighting beautiful girl 💜💕💜. You have so many adventures to live for and so many people love you and are cheering you on 💜💜💜💜💜💕💜💜💜💜💜 xxx
2026-08-31 04:24:06
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leahr1923 :
Honestly waiting for that update where you say she’s come off the ventilator she’s such a fighter and so are you! Both incredibly strong can’t imagine having to watch your baby go through all that! Keep praying for her and you girl! You have both got this let me know if you need anything 💜💜💜💜
2026-08-30 20:07:46
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lily :
praying for you baby girl bravest princess ever ! God is with you all everybody reading this POWER OF PRAYER IS REAL so keep praying everybody x
2026-09-02 21:33:59
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Brooke Gent :
Praying for use so hard 🤍🤍🤍
2026-08-31 06:38:58
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🌻 :
Keep fighting little warrior 💜 💜 💜
2026-08-31 08:33:23
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deletemequickly :
Jesus, tears in my eyes as I read this. We're praying for you, Paisley 🙏🏻 We know it's rough and painful, it's so unfair for a little girl to go through this. We're looking forward to meet you on the playground one day 🫂
💜💜💜💜💜💜💜
2026-08-31 07:45:01
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Donna :
💪💪💪 such a warrior bless her heart. Thinking of you all❤️❤️❤️xxx
2026-09-01 19:05:02
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Sammie 🖤 :
Oh Carlyn and Ross 😭 I’m sending you guys so so so much love 💜
2026-09-01 20:17:59
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Harpers_Army22 :
Sending love and strength to you all xx
2026-08-31 08:49:26
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welshnade97💗 :
Keep fighting beautiful girl 💜💜
2026-08-31 10:04:39
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Chels stock x :
Keep fighting paisley darling💜💜
2026-08-30 16:30:15
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Betty’s battle 🎗️ :
Continuing to send so much love, although you’ve had set back these are some serious improvements, what a warrior, keep fighting beautiful you have so many mummy cuddles waiting for you 💗💗
2026-08-30 17:12:21
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Alisha 💕 :
the most precious girl forever fighting no matter what 🥺
2026-08-30 17:11:11
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Jacks Neuroblastoma journey :
Thinking of you and sending lots of love. Hope Paisley turns a corner very soon ❤️
2026-08-30 18:11:27
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MrsHowe_x :
Thinking of you all, sending love and strength❤️bless her heart, she’s so brave and strong. My inbox is always open to you❤️❤️
2026-08-30 19:12:10
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Hayley 🤍 :
Always keep fighting paisley. Sending you so much love xx
2026-09-06 18:46:01
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Claire Zaleski :
Keep fighting baby girl, you have got this 🙏🙏🙏🙏🙏🙏🙏❤️❤️❤️
2026-08-30 23:35:30
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G G 💕 :
sending love and prayers ❤️❤️❤️
2026-08-30 21:31:25
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shivvy :
she’s bravest strongest wee girl about 💜💜💜xxx
2026-08-30 21:28:47
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💝 💕 Tracy 💝💕 :
keep fighting baby girl
2026-08-30 18:46:40
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