@jessicaruth3: Well my morning took an unexpected turn… amjevita update for everyone . . . #hs #hswarrior #hidradenitissuppurativawarrior #hsjourney #biologics
If that’s humira that why I worried about nonhodgkins lymphoma..
2026-09-01 01:02:09
1
Melissa.D.X :
I have Epstein-Barr syndrome, lives in my body and flares. I also have HS. Makes ya wonder if there's a connection.
2026-08-31 18:56:48
52
Girl from Michigan :
I started reading Rinvoqu about seven weeks ago and I am having good results with it!
2026-08-31 17:19:16
1
user2333156276591 :
When I saw your lymph node I literally thought mono right away
2026-08-31 18:59:38
56
Jessica :
Babe can you catch a break or what?! Hugs sis 🫶
2026-09-01 02:08:49
3
Caroline Blower :
mono (epstein-barr) can reactivate especially from stress or other infections. it sucks
2026-09-01 00:19:23
0
Jisoo Wang :
Your body is just deciding to throw everything at you isn’t it?!!! 🙏🙏
2026-08-31 18:58:56
7
Shauna Reilmann :
Have you had your hormones checked? Once I was put on BHRT my HS cleared up.
2026-09-17 18:32:35
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Tara :
Silent follower for awhile now. I work in insurance authorizations for infusions- have you tried remicade/infliximab? I do a lot of authorizations for patients with HS for those and they seem to have decent results based on notes and the pictures in the charts! Also, I deal with Kaiser on the daily and I hate them as much as you do lol
2026-09-01 00:29:10
1
alyssa_poletto26 :
I hope you don’t have mono I had it before couldnt get off the couch or walk it about took me out
2026-09-01 16:22:06
1
Lauren :
I had the exact same thing and it was so so so so soooo awful. They also didn’t know what it was for me. My entire throat was covered in huge white patches and they hurt so bad. I had a numbing mouth rinse that I could gargle for relief, ask your doctor if it gets to that point for you!
2026-09-01 05:13:56
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Pjmayhem✨🧿🌈♾️🦓 :
You’re so strong ❤️
2026-08-31 17:35:19
11
The Cultivated Crone :
EBV reactivated last time I had Covid. Brutal. Hope you feel better soon ❤️🩹
2026-09-01 09:13:38
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kellywilliams7660 :
Yep!! Strep! I get that and my neck swells!
2026-08-31 21:38:58
8
Ronda Donati Tatum :
You're a warrior!! Keep on seeking the best treatments for you.
2026-08-31 17:55:33
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12katespring34 :
I’m on an immune suppressants for my arthritis and I’m always getting poorly !!! I try to stay away from sick people but you can’t also live in a bubble. Hopefully your feel better soon
2026-08-31 17:27:08
2
Kellie Gebhart :
From one HS warrior to another, I’m praying for you, get well soon my girl. 🙏❤️
2026-08-31 18:14:07
2
marivelus :
Dios miooo como me gustaría poder abrazarte o ayudarte con la cena o lavar ropa o algo, 🥺 eres fuerte amiga!
2026-09-01 18:18:54
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Lucky Penny :
You have the best attitude of all of the HS sufferers that post, I swear !!! Rarely do you complain when we SEE how painful the cleaning and flare ups must be for you !! You’re a great example for your family and friends 🥰🙏🥰
2026-08-31 18:30:45
2
lisagaughan562 :
My daughter takes Amjevita for her chrons and it doesn’t work at all but insurance no longer covers her Humira
2026-10-25 03:34:51
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Lovepieandbug :
I have been on Cosentyx since 2017 for another autoimmune and it has kept my HS almost totally under control.
2026-10-19 05:33:18
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Carrie Jay659 :
You can’t catch a break ❤️
2026-09-01 03:46:34
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bleb :P :
do u still have ur tonsils ?
2026-09-01 00:38:15
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dixiehallaticloud.com :
2026-09-04 04:58:04
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Merm :
I always ask my body why it is so insistent in constantly trying to kill me!?!? Like…can we please get a break!
2026-09-01 00:00:18
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