Erin Rackham, PhD
Region: US
Monday 31 August 2026 23:01:04 GMT
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clementine :
I’m on year four and the sheer level of widespread pain I experienced in those first few months is something I still struggle to comprehend. I’m bedbound/housebound to this day and have had no choice but to shut down all of my emotions. It’s like I’ve disappeared
2026-09-01 04:30:48
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Lynny :
I’m so traumatized by the 10/10 covid pain. I’m terrified of getting covid and long covid again. I already have CFS.
2026-09-01 01:26:46
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DDJ :
I had two attempts before being diagnosed with Hyperadrengic POTS, MCAS, hEDS and fibromyalgia. Between the adrenal dumps, vomiting and bone pain it almost took me out
2026-08-31 23:13:13
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lindseyadelle :
Thanks for sharing. I went through the same thing, the pain was indescribable and I had all the same thoughts. I’m glad I persisted 6 years later now that I’m feeling better and more functional but even just you talking about it reminds me just how bad it was, honestly I sometimes wonder how I survived it. 😳 the ptsd and nightmares were so real.
2026-09-01 04:53:22
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alwayshope1111🇨🇦 :
I get so much of this....i dont trust that I will not go back to that hell....so I tiptoe through life. I have MECFS
2026-09-01 16:29:40
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bambino123yyy :
Thank you for sharing the raw reality ! 🙏At my worst I felt like I couldn’t go on the pain and suffering was so intense . I don’t know how an illness can actually make you feel this bad
2026-09-01 11:06:02
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JBo :
Well said. By sharing this story you are helping others.
2026-09-01 05:26:13
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Justine Curran :
I’m in the post stage and I still struggle to verbalise the kind of pain I was in. For me the biggest factor in my miscommunication was I had never experienced that kind of systemic pain before so for me I didn’t know how to say it even now I use systemic and I didn’t even know what systemic pain was. Plus medical professionals are not familiar with it. For example I had pericarditis as part of my picture and the pain for that I was feeling was intense hot pain in my sternum but cardiologists say patients usually say they feel like being stabbed in the chest. Maybe ND is part of this but I’ve never been stabbed before so I never consciously went to that kind of description it’s not how I envision inflammation pain vs acute trauma pain. Anyway I think only people with LC can understand what I mean by this.
2026-08-31 23:49:36
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Brit Reed :
Watching you speak about your experience is making me so emotional because you are describing my life and it is scary. I had a normal life until about 5 months ago and I'm bed bound and not doing well mentally and my literal job before this was mental health counseling. I am waiting on mastocytosis and MCAS tests but no doctor will help me with the bone and nerve pain I'm in. Thank you for sharing your story, it is so validating and also gives me hope for some return to normalcy.
2026-08-31 23:56:46
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🐸🌸🍒 :
It’s like being poisoned
2026-09-01 01:27:56
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May :
Have you thought about doing EMDR to process all the physical and emotional pain from it? 🫶
2026-08-31 23:45:46
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han banan :
I have and will continue to watch all of your videos!! Thank you so much for making this one🥺💕
2026-08-31 23:53:38
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Morgan :
What was your long covid pain? Like how would you describe it? My immediate after covid was a 54 day migraine but the neuropathic pain that started like 6 months after was way worse, like where the S.I started
2026-08-31 23:24:44
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A.Honey :
I know brain inflammation is also causing mental issues but understand the mechanics and then actually living in a body torturing you are two totally different things.
2026-08-31 23:37:15
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ia3 🍉 :
❤️🩹❤️🩹❤️🩹❤️🩹❤️🩹❤️🩹🫂
2026-09-01 05:48:07
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LilMissMeatPants :
I also had COVID 4.5 years ago, and it feels like my life (if that's what you can call it now) has stood still ever since. The actual virus was not that bad, but two weeks later, I crashed and became bed-bound for a few months. I lost my job during that time because I couldn't drive/think/sit up, and the pain I was in was indescribable (mostly neck pain, but also full body pain that I couldn't put in words). No one has really helped me...doctors all treat me like I'm crazy, and every single thing I've done (like starting LDN) has been only accomplished through being fired by multiple doctors first. Even my mom and husband don't fully understand what I'm going through, and there have been many periods where I feel like I would be better off and less of a burden not being here anymore. I'm better than I was now, but by no means am I functioning like a normal person. I'm still fighting for validation from doctors who dismiss me and refuse me the most basic testing, and many have literally turned me away saying "there's nothing I can do for you", and I end up going out to my car to have another cry because of the time and money wasted yet again. I feel like a sucker every time I get my hopes up yet again when I see a new doctor, only to be dismissed yet again. I'm in Las Vegas...can anyone recommend a doctor who will actually help me? I'm losing all hope that I'll ever find answers that can allow me to get my life back
2026-09-01 01:20:33
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