@hannahandherhealth: September is interstitial cystitis awareness month! Interstitial Cystitis was the first chronic illness I was diagnosed with and it completely changed my life. IC is a chronic condition associated with inflammation in the bladder that causes long-term pain, pressure, or discomfort in the bladder and pelvic region. This month I’ll be posting more about my experience with IC so let me know if you have any questions or there’s anything specific you would like to see. #chronicillness #chronicillnessawareness #interstitialcystisis #interstitialcystitisawareness

Kelly ⚡️ :

Have you tried freeze dried aloe Vera capsules? I just recently started and I swear it's the only thing that's helped

X :

My root cause for IC was low B12 and iron. Start supplementing!! I wasn’t even considered deficient I no longer have symptom.

Syn :

cystex doesn't work. azo doesn't work drinking a gallon of water doesn't work. nothing works. nothing.

80s Baby :

I guess mine must not be as severe as yours. I take AZO urinary pain relief maximum strength from the store for pain every day during a flare and stop when it goes away. I just have bladder urgency and burning like I have a UTI.

🦈MissOakley🦈 :

I got my 12th uti. Unfortunately this is the one that gave me interstitial cystitis. 4 months now! Severe flare to the point where I got pudendal neuralgia from it. I just did my 9th bladder instillation, and second nerve block and muscle block done into my lower pelvis two weeks ago. I do pelvic floor therapy one hour a day or more, suppository diazepam, magnesium citrate, d mannose, gabapentin (useless) solifenacine

🥣 :

I cannot recommend Uribel enough to anyone else who is struggling!!!!! I also was in the camp of azo/d-mannose/etc. didn't help but Uribel has genuinely saved my life. I take it as a relief drug instead of the recommended 4x daily. Talk to your urologists!!!

Chloe :

Currently doing bladder installations but very sensetive urthrea sooo it’s been a journey no luck yet

Izzy :

I’m commenting after my extensive journey. Look up HISTAMINE in bladder. Try allergy pill. Also look up using baking soda in bath water. It sucks

Emma :

Don’t give up! I am a year and a half into having IC and it’s starting to get better. It’s so exhausting it’s hard to explain the fear that you feel every time you have to go to the bathroom or the feeling of being burnt out from your own body. I second the aloe Vera pills. If your urologist suggests bladder instillations please do them they’ve helped me so much

Dani_elle_🪻🍃 :

Basically got told nothing will help get a hysterectomy and hope that helps I’m 20 with no kids yet 💔

Big Mama👏🏽 :

Good to know I’m not the only one.. because this is very lonely 😢

christine515066 :

I wake up every 1.5 hours to pee every night :(

Siding Castle :

I do not wish this on anybody and really don't think people understand the effect of this.

Jess :

I’m so incredibly sorry you’re hurting; IC is truly one of the worst things I’ve ever experienced, it has robbed me of so much of my life, yet it’s so hard because almost nobody understands the pain and exhaustion we carry when we look perfectly fine on the outside.

imsy882 :

Have you been offered neuromodulation ? I am having my surgery in a month xx

chronically_lils :

Thank you for speaking out Hannah ❤️this disease alongside fowlers has ruined my life. Friends like you are the most amazing thing to have on this horrible journey xxxx

Alana Cyrus :

In a flair right now 😫

tonisbrokenbladder :

Stacie Anderson :

mine was diet. changed my diet and barely any problems past 10 years.

Alejandra Sofia 🦋 :

Currently peeing fire on the toilet as I watch this

Diana Rodriguez :

Have they done uroplasma test ?

mizz.esoteria :

I got my diagnosis shortly after having H Pilori. I honestly feel like they should do more research on if it has anything to do with eachother.

Alice :

Feel alot of this and i have adenomyos and have my second long going pain cycle of the year

Jennifer Atkin :

im currently catheterised after going into full urinary retention last week... 3 days in and out of hospital and now left at home in agony... this is so much more than people think. I wish friends and family could understand more about it 💔

Sassy Squash :

I’m literally dying right now !!! ☹️