@dra_says: 20 years or can take to get diagnosed with this! #hypermobility #hypermobilityspectrumdisorder #doctor #chronicpain #hypermobile

Dr Ahmed
Dr Ahmed
Open In TikTok:
Region: GB
Tuesday 01 September 2026 18:46:46 GMT
23051
1365
130
188

Music

Download

Comments

niki_latoya
Niki_latoya :
Been going down this rabbit hole and does this cause occipital neuralgia?
2026-09-10 10:15:31
0
linds_sews_builds_bikes
Linds 🚗 🏍️ 📚 🪡 :
My husband just listening in to me watching TikTok he’s like ….. why is he talking about you 🤣🤣🤣 I know I’m hyper mobile but think it’s edging more to the hsd or heds my dentist won’t pull my teeth himself as he says the right of my jaw is very unstable
2026-09-11 19:27:30
1
sarahevans9774
Sarah Evans977 :
Interesting. I have hyper mobility, ADHD and stomach issues 🤔🤔🤔
2026-09-10 18:04:42
0
itsnotlyndsay85
Lyndsay :
Labelled as fibromyalgia
2026-09-01 21:51:37
6
emmasnowden0
Emma Snowden46 :
I have been having symptoms for 10 years saw a rheumatologist in 2023 and was dismissed currently under a new Rheumatologist and was also referred to Neurology, currently waiting MRI results since June, this rheumatologist has said I have hypermobility but I would like to know the difference between HSD and EDS it’s all so confusing
2026-09-01 20:53:46
2
alli45544
Alli :
Nothing should take 20yrs for a diagnosis
2026-09-02 07:37:50
16
katherine1774
Katherine :
After you have a diagnosis, what do you do next? The DRs Just kind of drop you?
2026-09-02 07:33:40
13
elizabethstrawn79
Elizabeth Strawn390 :
I was diagnosed in 2017 and guess how much help I've had?..Zero😳. It sucks. I don't even bother going to the GP anymore and just sort myself out.
2026-09-01 19:26:42
8
autumnqueenshops
SammyL0u :
I was rudely diagnosed in Covid by a physio. No support or help. Sick of going to the GP with different things. Being treated one joint at a time and not as a whole person. I’m sure I have HSD but how do you find that out when just dismissed all the time
2026-09-01 22:22:39
4
amanda.blondie
Amanda Blondie :
Are you taking patients? 😭
2026-09-01 19:55:10
2
selena_lottie
Sunshine :
Can we books to see you for this type of diagnosis ?
2026-09-02 20:13:52
1
selinagotsleeved
Selina Powney :
my body is falling apart.bmy knees.hips.lock jaw.my hart valve need replacing + widening undery valave.im hypermobile.what do you think I should be asking about now ??
2026-09-03 05:41:07
1
spockdropnroll
lauren 🏴󠁧󠁢󠁳󠁣󠁴󠁿 :
when I was diagnosed they labelled it benign joint hypermobility syndrome when there's sod all benign about it 💀
2026-09-01 19:10:06
11
the_pilotswife
Jess | Vinted & Easy Cooking :
Why do you need this to be diagnosed? Genuine question. As someone who is hypermobile, I know where the issues are and how I can manage it. That’s not to say I have this, I think it’s more likely hEDS, but as I say, what’s the need for the diagnosis?
2026-09-01 18:57:43
2
kimb8314
KimB83🏴󠁧󠁢󠁥󠁮󠁧󠁿 :
How would I go about getting an assessment of this? I have hyper mobility, joints dislocating, fertility issues, severe back pain, very clumsy and have had intracranial hypertension which required a lumbar puncture. Whenever I see my GP I to discuss pain I get the biggest eye roll. I’m also waiting on an ADHD assessment.
2026-09-02 16:59:52
4
evieemilianormajayne
Lynne Christine Wood :
is this different than Heds?
2026-09-02 18:53:44
1
acatcalledmouse
acatcalledmouse :
How do we ask for testing?
2026-09-01 20:01:38
1
autumntopaz
Ruby Noodles :
I'm 53, score really highly on the Brighton score, feel like a bag of 💩 most days and have done so for decades but no one ever wants to discuss joint hypermobile issues or eds. I'm sure it runs in family too.
2026-09-01 22:32:23
15
donnas800
donnas800 :
This goes with autism
2026-09-01 18:55:03
8
naomiwallace321
Naomi Wallace :
Incompetent Dr won't diagnose my son with EDS till he reaches 18 because he is still growing. Glad the new guidelines start in the next few months.
2026-09-02 01:02:09
1
rbsboss86
bigboss :
I've been diagnosed and left just like that no further test or consultations
2026-09-03 16:16:31
2
eavesplease
no :
i wish you were my gp because when I went to my gp to get a formal diagnosis, she told me to go private... like I've got the money for that 💀
2026-09-02 05:33:10
2
mariadarkfox
Maria 🏳️‍⚧️♿🇪🇺 🩷🤍🪻🤍🩷 :
And when you finally have the diagnosis, it still gets dismissed by every single doctor you see anyway.
2026-09-03 22:47:32
4
username_brockie_unknown
Afro_vibes_nation :
Yes, it is hyper mobility and I have it . Doctors never take it seriously!
2026-09-03 23:00:41
3
pocketofkindness
Pocket :
Are Ganglions common with HSD?
2026-09-01 22:37:33
2
To see more videos from user @dra_says, please go to the Tikwm homepage.

Other Videos


About