Many people in the hyper mobile community are experiencing this, especially after the ‘vid or an illness like mono. Research ehlers danlos shutdown syndrome. It messes up your nervous system too, so the more you can practice PTSD recovery stuff and calming your nervous system through out the day, it will help. Nervous system is in fight or flight all day which contributes huge to the exhaustion. Not necessarily recommending meds, but the only thing that has helped me be ‘functional’ is an SSRI that is an ‘activator’ rather than a depressant. If I’m not in it, I can barely get from my bedroom to the kitchen. With it I’m not the same, but I can do about everything I need to as a mom and work full time. I can hike a little too, but not as far.
2026-09-02 01:35:16
6
Emily Dexter🌙 :
Also, someone suggested get well cards and since many of the things have already been grabbed off the list (thank you SO MUCH 🥹), so if a card is more your speed the address is PO Box 17101 South Lake Tahoe, CA 96151. Truly thank you all!
2026-09-01 22:24:13
65
sandybeachlover :
Hi Emily - it's Patti and Kendra. How about just to get well card? Money is tight right now and I would love to send her a get well card with a story about the loon that's on the front. Do you have a PO Box?
2026-09-01 21:04:52
8
Jennifer Smith :
Math teacher here, Algebra, Geometry, etc. If she would like some help with math while she’s recovering I would be happy to help!
2026-09-01 23:43:40
28
bflyfoot21 :
What can we do for mama? I have special needs kiddos and I know how hard this has to be for YOU
2026-09-01 23:09:03
29
April :
it took my mother-in-law's 2 years to get diagnosed with myasthenia gravis. she lost the use of her legs too. getting diagnosed is A hard road and I'm sorry she has to go through it.
2026-09-03 04:07:52
0
kymberb222 :
I wanted to let you know that a couple things on the list told me I could not send to that address. But as a chronic illness girl myself I totally understand & sent some goodies her way. She is not alone & sending healing vibes her way. 💕
2026-09-01 19:55:04
17
Teddy Talks 🇨🇦 :
I will send her some art I’m working on right now if you dm where to send.
2026-09-03 05:37:21
0
Mind Over Matter 2.0 :
Lee - you are so brave and so strong!!! You are also so loved by a bunch of strangers ❤️Sent you a DM as well. Hang in there mom! 🫶🏻
2026-09-01 20:21:06
12
Tracey in the ROC :
I went to the link but everything was already taken ❤️sending her my love. I had endometriosis when I was a teenager and had to have surgery when I just started college at 17. It was hard but so worth it. It gets better! One day at a time! ✨❣️
2026-09-02 00:46:50
0
V I T A :
just saw that all the items have been purchased that is beautiful 😪
2026-09-03 06:09:59
0
fly.away.9💙 :
Endo warrior here!!!! You got this girl! We’re the toughest girls in the world! Sending you all the love and strength! ❤️❤️❤️
2026-09-03 04:22:18
0
Leah :
Coming from someone who had endometriosis from 12 years old, I wish my mom was as supportive and the gung-ho about getting me help as you are. Sending her huge hugs
2026-09-01 20:37:57
21
user5205043849310 :
Everything on list purchased 😭🙌🙌🙌
2026-09-02 04:22:06
1
Teddy’s mom :
You got this! You are a rock star ⭐️
2026-09-02 02:52:38
1
Milly Melly :
You are such a great mom! Your daughter sounds like an amazing kiddo. She rocks! May she have a full and speedy recovery and HEAL ❤️🙏
2026-09-01 21:17:21
10
Jess Duran :
Hi, I tried adding a few of the remaining items and unfortunately was not able to. An error message comes up saying cannot be sent to that address.
2026-09-01 22:22:13
0
Niki the Creative Healer ✨ :
does she have a fav animal? would love to paint her something small with Energy Infused in it 🥰
2026-09-02 09:40:54
3
Emily Dexter🌙 :
You are all the absolute best!!! Thank you so so much for all your support, suggestions, and kind words. It means more to us than you know! And I will show her all your comments next week before surgery 🥹💜
2026-09-01 22:19:08
12
Lill8dy :
I dont see the link
2026-09-02 04:06:46
0
annafaye :
Poor kiddo! What an amazing mama you are, too! Sending good vibes and can’t wait to send something over to her. 🥰
2026-09-01 22:01:35
4
Creative Arts Therapy :
I am an art therapist and a somatic therapist. Will send some stuff your way.
2026-09-01 22:00:09
3
RKukuk :
I'm so sorry you are all going through this. Has anyone suggested whole genome sequencing to you? Seems like there may be a genetic cause. Please look into it. Feel free to reach out to me. Sending all the love❤️
2026-09-02 02:48:37
2
Katie M. F. :
if you enjoy video games or just want a little cozy game to play I recommend "little kitty, big city" for Lee. You are loved and supported a thousand fold. It might feel bleak right now but there is a rainbow on the otherside. You got this.
2026-09-01 23:07:57
2
MementoMoriDesignsNYC :
I’m on it!!! ✨❤️💗
2026-09-01 22:07:53
2
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