Dr. Erin Nance 🇺🇸
Region: US
Wednesday 02 September 2026 18:42:31 GMT
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Amelie :
I was told “we don’t accept fibromyalgia patients because there is nothing we can do for you”
2026-09-03 16:37:37
13
Not the one :
The VA is refusing to even test me for hEDS because “there’s no cure and no treatment so why bother”.
2026-09-23 22:06:39
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Angie :
This would be amazing instead of being gaslit or being told that I am to complicated.
2026-09-02 18:58:13
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Britta :
literally pain relief alone does so much
2026-09-17 04:41:22
3
Selena :
2 years ago I saw a rheumatologist for sever joint pain. I had asked about eds because doing the scale at home I hit all 9 still at 35 years old. he told me since there's no cure or treatment then there's no point to test me for it. I have 4 kids and can hardly keep up with anything anymore. I finally went to a new doctor and was officially diagnosed with hEDS and I'm now looking to see if I actually have pots. if so I know there are things I can do to help my symptoms and hopefully give me a better quality of life. I hate when doctors tell me "well it doesnt matter anyways" as if I'm just expected to live in pain and 💀
2026-09-03 00:47:33
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kylie :
I was literally told this last year at the rheumatologist. I was already being treated for fibro there, but my doc retired. I saw another provider there and she dx me with HEds and then told me "There's nothing I can do for you". She then walked out and discharched me from the practice. She didn't even refill my scripts. I had to frantically call my pain management office I had not been going to for at least 6 months, to see if they could get me in on an emergency appointment to get my meds. Thankfully they were able to.
2026-09-03 16:55:07
2
Texasgirlbuckeyeatheart3 :
Those of us with chronic illness and chronic pain have known were never going to be cured. We've always asked to just have a little better quality of life, seems like that's too hard to ask for..😬💯
2026-09-02 22:29:42
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Jamie :
Yes !!! Finally someone said it ! Thank you
2026-09-04 20:56:07
3
Tarlov Cyst Info :
Sadly some conditions are so systemically ignored that patients never have the opportunity to have that conversation with their doctors. The doctors don't even believe it exists.
2026-09-02 19:27:33
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Kitty Kat :
I literally had a rheumatologist tell me that there was no cure for EDS so there was nothing he could do for me. Oh and he threw in how he wouldn’t prescribe pain meds just to add humiliation on top of disregarding me I guess. 😡
2026-09-02 20:14:37
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MrsB :
I get so scared to even talk to my doctor about my symptoms and possible diagnoses because I think they'll see me me as a hypochondriac
2026-09-17 06:31:42
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S :
I just want to be able to function a little and get what I need to at least manage. Not trying to be negative, but I’ve reached the point where I feel like I’m stuck and I’m not exactly enjoying myself. I’m hopeful but it’s rough. I appreciate your videos so much! You get it!
2026-09-09 19:47:24
2
Lynda :
This! I want to be able to go to Paris for our 25th anniversary. I’ve got four years to make it happen. I could not do it today. I don’t need to be cured I just need to be healthy and pain free enough. I need quality back.
2026-09-04 05:32:37
2
Rebecca Philips :
So many doctors have told me, “There isn’t a magically pill that’s going to make this better” when I am asking for pain management. I know, but can we improve?
2026-09-02 20:34:23
5
beckah.realtor.taxpro :
I don’t want a cure. I want a level of pain that is bearable. 😏It
2026-09-02 21:02:19
5
Bridget Kuykendall :
We treat all of my chronic conditions. Man its a ton of work.
2026-09-03 22:35:19
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erica.a.nolte :
I’ve been passed off by numerous doctors basically stating your so medically complex we have nothing to do for you and send me out. It’s so frustrating I just want help to have a better way of life with all these problems.
2026-09-02 18:48:36
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Britta :
not asking for pain free just managed
2026-09-17 04:42:55
1
Moi-rawr :
I was told for a while there was no point in diagnosing me with hEDS because there was no treatment. But there is. Physical therapy, pain management, and having it on my chart for possible medications I shouldn’t take and more.
2026-09-03 00:24:57
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Jasper the FURRPUPPY🐾🐕🏳️🌈 :
Thank you for those words! Quality of life is very rarely is the goal unfortunatly. I have a chronic condition, causing severe debilitating neurogenic pain. There will be no cure, but it took 2 years to finaly get a genuinely good pain reliefe. I wish more doctors were thinking about the Quality of life, rather its length.
2026-09-02 19:44:16
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Snickers’ Doodles :
If they can’t cure it they won’t diagnose it. So fucked up
2026-09-14 03:28:23
1
Happy Realtor :
so well said 👏👏👏
2026-09-19 07:06:48
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Laura :
Two weeks ago, the head of hepatology at Cincinnati UC told me there is no cure for my chronic pancreatitis caused by my mastocytosis. Told me I will never “get better”, it will never “go away”… HOWEVER, that doesn’t mean there is nothing they can do. He said their goal is to focus on improving my quality of life, even if it’s 10%… doctors can ALWAYS do something with incurable disease.
2026-09-12 19:09:31
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TheFeralHomestead :
Thank you for making so many people feel seen. I imagine you’ve been the reason that some of us chose to seek help one more time and don’t just give up.
2026-09-12 02:07:58
1
jadedshine :
ok..tell the Drs this....we patients understand this....
2026-09-03 04:04:43
3
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