Durga ॐ🪷
Region: US
Thursday 03 September 2026 17:33:25 GMT
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kels0123 :
Hey, so this is insane. I’m an organ donor and have been for over 15 years. I’ve never told my family because it hasn’t come up. I’ve never had to recertify my wishes but it is listed on my drivers license. I would be pissed (if I wasn’t, ya know, dead) if they didn’t use me as an organ donor because the length of time.
2026-09-10 06:40:07
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Durga ॐ🪷 :
What upsets me about my grandma’s situation is NOT that she was an organ donor or that our family didn’t get to override her decision. That is not what I’m saying. My grandma was 78 years old. She registered as an organ donor over 20 years ago and never told any of us. She had a medical power of attorney and had gone over her end-of-life wishes with that person. She made it clear who she trusted to make decisions for her, so we believed her medical power of attorney would be able to help make those decisions if she ever couldn’t. What we didn’t understand was that the organ donor registration was treated separately. Because it was something she had signed up for more than 20 years ago, we believe she may not have even remembered doing it or realized that decision would still control what happened decades later. And then hearing that they were “interested in the liver and kidneys” was extremely difficult. It was jarring to hear organs referred to that way, almost like they were separate things being evaluated, while we were sitting there grieving HER. Especially when you can register as a donor at places like the DMV or even a carnival without necessarily sitting down with someone and having a real conversation about what organ donation actually means and what the process can involve. So please don’t turn what I’m saying into “she wanted to donate and her family was against it.” That is NOT my point. My point is AWARENESS. I want people to understand exactly what they are agreeing to and TALK TO THEIR FAMILIES about it while they are here. Tell them you’re a donor. Explain what you want. Make sure they understand what they signed up for, and make sure the people closest to them know too. I’m raising awareness because I truly believe that if I had seen a post like the one I’m making now, I would have brought this conversation up with my grandma long before this tragedy happened. I would have asked her what she wanted and made sure I understood what she believed she was agreeing to. Maybe that conversation would have changed nothing. Maybe it would have changed everything. But at least we would have had it.
2026-09-03 20:24:29
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georges_wild_world :
So I understand your concerns. I don’t even necessarily disagree with them in theory. It sounds like the way the hospital handled it was horrible. None of that type of exam should be done or discussed with family in the room. But I do want to point out that your plan to require organ donation registration to be done in a medical setting AND renewed every five years will present a SIGNIFICANT barrier to low income people being organ donors. Many don’t go to doctors except in case of emergency, let alone have routine check ups where they could renew the registration. Instead, I would suggest a requirement in watching educational videos about what the process would look like for both the patient and the family from start to finish. Then you could reach your goal of informed consent that is repeatedly renewed on an ongoing basis without putting up barriers to low income patients. Because if it is not a simple free process, they will not be able to register even if they want to. And then their family will be forced to make that decision in the middle of losing their family member without time to research and give informed consent which would go directly against your goal. I would also suggest reaching out to the hospital’s transplant team head or hospital administrator to explain how traumatizing the process was for your family and that you felt they dehumanized her and ask to help them with reforms of their policies to be more conscious of the feelings of families.
2026-09-04 01:53:36
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Angela :
I appreciate your grandma making that decision. I know it’s hard for everyone but I am one of those waiting on a kidney. It’s harsh watching the person you love go through all the processes on both sides
2026-09-04 01:48:44
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AD47 :
The OR side of it is horrific too. If people truly knew they would change their minds.
2026-09-04 02:47:44
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JinxyCambella :
I get it, but I look at it like if I needed one or my family needed one I'd be super appreciative that a family made this contribution to save another family from having to grieve the loss of a loved one. You and your grandmother gave someone a priceless gift.
2026-09-04 01:58:39
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Chasity 🌹 :
you do have that decision though. My brother had donor marked on his ID, but they stilll let us make that decision. Yes a lot does go into it and it can be very emotional, but the process is very necessary.
2026-09-04 00:23:42
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Angie :
I understand why you feel this way: but organ donation can save a life. That being said- the way hospitals handle it is terrible. I’ve heard stories where people who were to get better-don’t. The family has no time to mourn because the body is whisked off to be harvested (it need to happen fast) and so make other issues with the process. I also like to put I AM an organ donor. After I am gone, I want everyone to use my body for what it’s worth. I won’t use it after I’m gone. My friends and family have been made aware.
2026-09-03 22:22:13
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heather❌️0530 :
watching my brother in law for THREE DAYS on life support because they were making matches and telling us DAILY tomorrow would be the day is WHY I removed it off my license.
2026-09-03 23:05:40
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greatkate79 :
I worked briefly at OPO. I struggled with how I felt about the process. my husband is an ICU nurse and has feelings too. both of see the complete value and appreciate of donation, but the logistics behind it sent me home crying everyday
2026-09-04 02:10:22
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season :
I am and will always be a donor. I want every inch of my body donated if it can help someone else. I’ve been a donor since I started driving, over half of my life. My Mema (my favorite person in the world) lived an extra 10 years because of organ donation and many of her siblings have as well. Organ donation has saved many of my family members and at least 2 more will need kidneys in the future. I think you have a good starting point and making the decision with your medical provider should be the norm.
2026-09-04 01:53:47
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Maddy Groffenberg :
when I was in highschool, they had an organ donor sign up, and if you did you got a free cookie. thankfully I never did it, but I know so many people who did. they probably never realized what they were doing
2026-09-04 01:30:33
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ZebraStrongCa :
As a parent who began the process for a donation for my child, the person receiving the donation goes through even more tests. Thankfully we decided it wasn't the best option and in the end it was no longer needed (double lung and heart). It's a very long process full of classes and meetings, and evals and tests and social worker assessments and so on and so forth. They have to make sure the patient receiving the organ has the best chance thus why they run all the tests on the donor.
2026-09-04 01:57:43
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Venus :
following...I totally support this is amazing. I recently removed myself after my mom passed we went thru the same, except states away. we didn't know she was a donor either, nor how devastating the process is for loved ones. everytime I get something from donor services its like I go thru it all over again. even worse I couldnt get to her ❤️praying for you🙏
2026-09-04 00:20:51
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Caleb Waller :
This is a very good idea. Working as an ICU nurse I am a strong believer in organ donation, but informed consent should 100% be mandated rather than just checking a box.
2026-09-04 05:47:10
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Janell :
As someone currently trying to get into this field (2nd interview next week), I promise I will remember this and do my best to help this somehow, if given the opportunity. I’ll be honest this is a side I haven’t heard of yet. But I will try. For Nancy ❤️
2026-09-04 01:31:01
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Daisy :
I wish you luck with this. I think that what you’re doing is incredibly important.
2026-09-04 01:49:45
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Munchling Ratings :
I want to be a donor if I can but I have ADHD and this would be way too much admin work for me to keep up with.
2026-09-04 23:49:07
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Dinner For Two 🧑🧒 :
I’m incredibly sorry for your loss. Perhaps it may help to think that every poke and prod in those difficult days went towards saving another life. I understand how jarring this must have been as you were grieving her loss, but she did so much good for others in those last days even though she was no longer truly there. ❤️
2026-09-04 04:48:19
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mads :
It is a really generous thing to do but unfortunately staff is NOT trained enough if at all on how to handle family’s at my facility our lifebanc lady tells us to NEVER mention it to the family until she does then she stays with the family for as long as they need to answer questions (24hrs+) and even after that she tells us to stay out of it and put her on the phone if there’s any questions after she leaves I’m sorry your experience was so poorly it’s not how it should be
2026-09-07 18:59:15
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LucySugars :
Honestly, as someone who had to watch my mom wait to receive her kidney and a organ donor myself. I completely agree with you. There does need to be a better system in place for making that kind of decision. There should be a greater explanation then just "check this box". It's a massive deal and one that should not be made lightly. I do encourage everyone to look into it and make the best decision for them and their family. But, absolutely, there should be a better process for it.
2026-09-04 04:10:03
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u_m_m_m_m :
I think this is an excellent suggestion. And I appreciate that, despite your tragic experience, you’re not trying to talk people out of organ donation. I hope this becomes a law. I’m so sorry you went through this with your grandma 💔
2026-09-04 01:52:51
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Tami Adams299 :
I was a funeral director for 17 years. The way the deceased are sent to funerals homes after bone donation is appalling. I would never donate bones after seeing that. Skin donation also. 🥴
2026-09-04 04:03:53
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Heather B :
I checked that box when I was 18 thinking, of course I want my family to donate my organs when Im gone. Never knew then that it meant I would be kept alive. That my family would have no choice.
2026-09-04 12:13:34
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