callie
Region: US
Thursday 03 September 2026 20:05:40 GMT
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Jill Kottmeier :
Chronic illness does not get you casseroles.
2026-09-03 21:41:08
795
💜 :
People do more for pregnant women than for chronically ill people. We didn’t chose this
2026-09-04 09:08:54
172
Samantha Dell :
My own family stopped inviting me to things. No one asks me how I’m doing. Not even my friends. It’s so isolating.
2026-09-03 22:42:14
441
Hannah 💕⚾️ :
I dealt with this not long ago. People started dropping like flies not understanding that in a flare I can’t do things. It’s so isolating.
2026-09-07 12:43:18
0
user6166718606115 :
It's the worst when it's your own family too
2026-09-03 22:38:39
91
ItsMe.TonyP :
TV and social media makes it look like the community will rally around you. Everyone gets together and donates time and materials to help you fix this, modify that to your needs, raise funds, blah blah blah. The truth? You never hear from anyone ever again.
2026-09-03 21:26:11
210
BrielleJ :
my mom has lupus and she still shames me for "not feeling well". like WHAT?!
2026-09-06 15:29:17
1
dannytheedancedoula :
Mind you casserole would be perfect and so helpful during a flare up
2026-09-04 13:06:03
122
Crystal Steers :
Chronic illness gets you judged and a lot of “you were fine last time I saw you”
2026-09-07 16:50:10
0
Jackie1999 :
So true sadly
2026-09-07 06:35:59
0
glizzy🌭mcguire :
friends and family asking when i’m getting better. i’m not. that’s why it’s called chronic 🙄
2026-09-04 12:08:27
16
Opossum :
I’ve had so much surgery because of my EDS, I’m talking every couple of months, and no one cares anymore. No one checks in or spends time with me during recovery. I don’t even get like, a good luck text. It makes me so sad. It feels like everyone’s annoyed like “how annoying he’s having another surgery” even my mom acts incredibly inconvenienced to have to help take care of me during every recovery.
2026-09-06 17:07:07
0
Amy :
“How is it always something?” Mhmm yep, bye Felicia 👋
2026-09-03 21:17:59
12
AmeliaTalks :
Yup. I’m grown to accept my disease and how it impacts me. Anytime I struggle with this acceptance, it’s because someone else is struggling with it.
2026-09-04 18:23:08
30
Amalie :
Mind you, they only see us on our BEST of days. They don't see us stuck in bed the other 80% of the time.
2026-09-05 11:34:49
9
Kaley :
I just stay home and I don’t make new friends. It’s so much easier.
2026-09-04 00:35:23
15
jay_ekeh :
They run, like RUN! And they try not to talk about it but thank God for the friends I have
2026-09-07 23:29:29
0
annie :
I’ve never had less support in my life than when I haven’t gotten better in three years
2026-09-03 22:31:48
99
Lilly🪶🖤 :
My sister got diagnosed with epilepsy around 2019-2020, and I make it my life mission to make damn sure that my baby sister never feels like a burden, or like she can’t tell me what’s wrong. She will always have me to depend on.
2026-09-03 23:06:28
40
viannasausages11 :
People like it when there’s hope to get better. Everyone always gets so rude when I say there is no cure, I’m going to be sick for the rest of my life
2026-09-04 20:05:16
7
leah :
So true like people will ask you how you are, but don’t really want to know especially if you’re struggling as it’s chronic
2026-09-03 20:11:35
50
Krixnn🫧 :
I keep getting told I’m young and to shake it all off and just do my best. Even by my doctors, how disheartening it is to be young and chronically ill. Then you have people say “oh you’re just lazy”. It actually hurts to hear so much, if only those people could see how I can’t live my life normally anymore.
2026-09-04 22:34:58
9
shebeauty :
My cousin told me she went quiet on me because she feels bad about me not getting better and she doesn't know what to do with me...
2026-09-04 16:26:16
5
Erin :
My perspective is that illnesses like fibro, chronic fatigue , pots , lyme, etc … they expose doctors lack of knowledge. The medical industry doesn’t like negative publicityso they don’t give us the same concern or public attention other illnesses get. This creates a vacuum around our healthcare and support systems.
2026-09-04 00:46:03
39
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