Dr. Grace | hEDS, pelvic floor
Region: US
Friday 04 September 2026 20:32:04 GMT
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𝓛𝓲𝓵𝓵𝓼 🖤 :
I just tried kt tape for the first time nd omfg it helped soooo much but When i took it off i have lots of little itchy burns 😭 like fuck man😭 it was on for 2 days theyre supposed to last 6😭 when i heal im gonna try again and only leave it on for the day😭
2026-09-05 01:15:29
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caliy :
I'm also allergic to neoprene and rubber aswell as tape and elastic
2026-09-19 00:55:55
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Pandas01234 :
I need help with the shoulder. tape helps, but I get reactions to it and most braces have failed…😅
2026-09-17 22:12:05
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Shift 🇨🇦🏳️🌈 :
Perimenopause decided my Hereditary Alpha Tryptasemia and fragrance/mold allergies were going to go from moderately annoying to deadly. It's been great....
2026-09-05 07:11:00
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Pamela Walker Arban :
any tips for stabilizing a thumb without tape? I have not been able to find one.
2026-09-04 23:33:44
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Michelle :
Just wait until menopause and you have to put patches on twice a week! My whole stomach looks like I’m going through something these little patches with red around them stays for weeks. But hey menopause isn’t a joke
2026-09-04 23:35:50
8
Ashley Grace :
If you do find a good one for shoulders please share! I sublux or dislocate mine in my sleep regularly and it’s so painful all the time. But I have autism and sensory issues so binding my arm to my chest/side while I’m sleeping is just a big no-go 😭
2026-09-09 23:43:25
3
Queeniethebeanie :
K-tape actually rips my skin apart. The layers seperate. So even if I am careful with removing I still shred the skin while it’s on 😂💀 even when applied by a professional. I honestly don’t think that k tape is safe for EDS!
2026-09-09 06:14:09
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Shannon :
Can you have heds without skins bruising easily or doing this? When I found out I had hip dysplasia, I saw the symptoms and ruled it out at first because I didn’t have them all then found out with the X-ray that I did. Wondering if this could be the same
2026-09-15 00:44:52
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Brandy Schnur ❌️ :
Even bandaids make me blister & leaves a mark that lasts a week or more. ☹️
2026-09-08 22:43:47
1
D-Nice :
That happens to me😭
2026-09-04 23:15:21
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AlaskaMomma :
MCAS & HEDS here. My skin and muscles just forget where they should reside. Anyone else?
2026-09-05 02:14:45
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H²S :
Is there a brand that is more MCAS friendly? I sure haven't found one yet. 😔 Sorry you suffer, too! We just want the proprioceptive support and inflammation support! 🥺
2026-09-04 21:45:55
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✨K✨ :
This triggered my memory of the environmental allergy test I had applied to my forearm years ago. The nurses were aghast saying it was the worst reaction they had seen in years/ever. Could it have been EDS or MCAS making those results more extreme?
2026-09-16 16:01:06
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obsolescent :
barrier film is also an option if you can tolerate it. after my inner elbows were raw after a 4 day hospital stay, I was determined to find something to stop bandage adhesives from taking off that top layer of skin and this stuff works! it comes with or without alcohol.
2026-09-06 21:03:48
1
🌝 Carrie W Writes 🌝 :
I have scars around my hips from KT tape reactions, my skin has often blistered 😭 it's so annoying as it has really helped, but my god my skin afterwards, I look like I've been burnt
2026-09-09 07:48:01
1
counter_signal :
Guys, what do allergic wounds look like? I think I have the
2026-09-04 22:54:35
2
Taryn L :
I loathe my cgm for this. It blisters and scabs, even with the barrier wipe and flonase on it.
2026-09-04 23:48:30
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Nicole Jade :
does the barrier wipes work under tape ? I blister with adhesive and of course when you take the tape or dressing off it rips the top off.
2026-09-10 12:04:55
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kelseaa1111 :
rock tape and ok tape have been okay on my skin and when you go to remove the tape the trick is to apply an oil before a shower and I run the warm water over the area. it literally starts to melt off then I use an oil based body wash to get the last little build up. I need the support on my shoulders and under the scapula. i’ve never found any support garments that hit all those spots so the tape is worth it for me
2026-09-07 04:18:00
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Kim Fleck (Brand Fearless) :
Soooooo true!
2026-09-15 12:03:09
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Moi-rawr :
Jelliebend just teased a shoulder/arm compression garment. But I currently use something that is technically an ice pack for the shoulder. I found it helps keep my shoulder blade from winging out.
2026-09-12 22:06:10
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The_Ginger_One_82 :
Off topic (ish) but would hEDS contribute to medication sensitivity? As in same meds eg Levothyroxine, but different brands/manufacturers not working as well or causing issues??
2026-09-12 21:18:11
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Kaitlyn :
My PT tried KT tape on my spine once, and I ended up with a rash for over a week 😅
2026-09-11 21:01:29
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megan 💌 :
hi! so how do you go about getting diagnosed/evaluated for eds? and mcas? I believe I have both and I was just diagnosed with autonomic nervous system per my cardiologist! And Ive read they are usually diagnosed with one another.
2026-09-14 02:30:44
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