@alina.sara1: Day in the life bedridden, my birthday from hèll… This was one of the hardest birthdays of my life. I spent the day suffering and just wishing the day would honestly end. CRPS has taken over my whole body including my organs and left me suffering in immense pain. My mom is incredible and did everything to try and make my day special even while I was suffering. She surprised me with the best gift ever, a @lolablankets ! I am soo grateful and it made my day💛 My malnutrition and hypoglycemia have been getting worse and my body is fighting very hard to survive each day. We are getting it better under control but the week of my birthday my body went into a serious flare and all these new symptoms showed up. I was fighting just to stay conscious. Tbh I don’t remember filming half of these clips lol. My stomach pains were so intense we needed an xray immediately and thankfully there is a portable xray near us. We got some answers for my stomach pains, thankfully it wasn’t emergent but it’s something we need to deal with soon. It was a hard day and not how I was hoping to spend my birthday but i’m just grateful I am here and got to have another birthday. . . . #chronicillness #raredisease #crps #chronicpain #Vlog
is this the same condition that maya kowalski had?
2026-09-05 02:59:07
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¡BTS PAVED THE WAY! :
how did you get crps? Google says you can only get it from an injury, but im curious
2026-09-05 05:16:12
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Lilly :
my problems are so small im so sorry :(
2026-09-05 00:50:56
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C££ Gra¥ :
I have CRPS as well. I actually just got admitted because the pain was too severe. My birthday is the 17th and im praying my illnesses behave so I can have 1 day of peace. Happy Belated Birthday 🎂
2026-09-05 02:38:05
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kellseyyy :
My little sister got crps when I believe she was 9. I don’t really remember exactly what she did but my mom took her to what I believe was center that was doing shock wave treatment to try put into remission. It doesn’t work for everyone but it worked for my sister. She been in intermission for almost a decade.
2026-09-05 03:39:52
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enri 🥥 :
you are the strongest person i know and i look up to you every day 🩷
2026-09-05 00:33:44
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joe bart’s pastor :
Not comparing our situations in any way, but you give me so much strength as someone with chronic pain. ♥️You are so strong. Happy birthday!!
2026-09-05 01:01:09
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ella🩷 :
im so sorry you go through this you are genuinely the strongest person ive ever seen i really hope things get better for you angel
2026-09-05 00:42:32
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Jenny ⛸️ 🏃🏻♀️ :
This sounds like torture. I’m so sad for you. What are the new symptoms?
2026-09-05 00:52:22
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Hannah :
i’m a nursing student and very curious about everything, what pain meds work the best for you? I’ve heard a lot of people with CRPS get to a point where pain meds don’t even help.
2026-09-10 06:03:50
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Lucas :
Does crps get worse over time?
2026-09-06 15:11:44
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kat :
happy birthday beautiful girly 💓 im so sorry it wasn’t enjoyable but these videos are so helpful thank you for taking the time and strength to spread awareness
2026-09-05 07:01:10
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El 🌱👩❤️💋👩🔮 :
been following for a long time, give this girl a miracle 🥹
2026-09-05 17:42:04
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꧁✶𝓛𝓲𝓪✶꧂ :
I got allodynia on a small patch on my arm for two nights and could not sleep and it was awful thank god it passed but it made me think of you and how much you endure. I cannot imagine that kind of pain all over I hope you find relief I’m so sorry you’re hurting all the time no one deserves that
2026-09-09 18:47:23
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aho_sera :
Your mom is so cute decorating your room so nicely ! Sending love to both of you ✨
2026-09-05 09:06:24
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GracefromLV :
How did she get this 💘so sorry
2026-09-10 00:15:47
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evelynleigh🎷📣🩵 :
Just sang happy birthday for you, and I hope you may have a day where you can celebrate it without any pain! you deserve it ml, you got this <3
2026-09-08 20:55:11
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tati🪽🎀🐰 :
sending you so many spoons🩷
2026-09-05 06:59:40
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emma 🌱 :
the decor your mom put up is so cute, happy birthday ur so strong 🩷
2026-09-05 20:54:02
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mhysablackfyre :
Would a m0rphine pump be an option for you? Happy birthday 🎁
2026-09-05 02:48:33
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Emma ☺︎︎ :
I truly hope that things can improve for you someday, at least to where you’re not in so much pain all of the time. You’re so strong for dealing with your condition every day. Happy birthday 💓
2026-09-05 01:39:38
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jaxxxie :
should you go to the hospital?? this video made me so nervous for you. and ps happy belated birthday!!!
2026-09-05 01:16:23
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liv :
would cutting your hair possibly help even just a little? i have chronic migraines and constantly need to cut my hair short because of them. obviously it isn't even remotely comparable to your crps, but im just trying to think of anything that could help. i hope things get easier for you soon beautiful, and happy late birthday. 🩷
2026-09-05 00:35:02
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smile face 😀 😘 :
heart ❤️💙 💜 💖
2026-09-05 06:04:25
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